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zenjess1980

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Everything posted by zenjess1980

  1. zenjess1980
    Hi There, thanks for the reply Yea it is kind of a mute point considering gluten covers wheat anyway... but I was curious and it was not something I really ever explored further. The testing was IgG, btw.
  2. zenjess1980
    Thanks. And yes I am 2 years Cancer free -- on December 16th, and doing pretty well Yea, it's a shame doctors aren't more clear on these things and do not have clear communication either! I have to say this forum has been a fantastic help. I'm glad you are staying gluten free!!!! Best wishes to you and your daughter!
  3. zenjess1980
    This is quite possible, if I am glutened (which happens) I get it bad. I noticed that within a day of no gluten, it clears up nearly completely. I've had this my entire life. Only since going gluten free, has it cleared up. Hmmm......... But I also do believe I'm having hormone issues (long story, but I'm 2 years post radiation and chemo, and I...
  4. zenjess1980
    So I've been thinking... My story in a nutshell --- had a weak positive blood work for Celiac several years back, had biopsies which were negative. My doctor's seemed stumped and told me I "probably didn't have Celiac, but not sure entirely what your results mean" and I could " probably continue to eat gluten and be fine." -- the subject was dropped...
  5. zenjess1980
    I also have positive blood work, but ended up having negative biopsy. I literally had a doctor tell me "I don't quite understand your results. You'll probably be fine continuing to eat gluten." ... and so began a long journey. VERY long story short, I ended up getting duodenal non Hodgkin lymphoma (cancer) which is apparently related to untreated Celiac...
  6. zenjess1980
    I'm a 'King Arthur' fan
  7. zenjess1980
  8. zenjess1980
    Hello, Peg I too have Fibromyalgia, IBS, and Celiac Disease. Although, I was diagnosed with IBS prior to Celiac, and assume I may not have had IBS after all. If you continue having pain, I'd definitely see a Rheumatologist to see if you do have Fibro. I'm currently taking Savella and Gabapentin for management of my Fibro and my flares rarely...
  9. zenjess1980
    Diagnosed Celiac, and am overweight. I am starting Weight Watchers. Anyone else do the program?
  10. zenjess1980
    Does anyone have Keratosis Pilaris as a skin condition related to Celiac and *NOT* DH? (I do)
  11. zenjess1980
    My blood work was positive for Celiac, after years of mis-diagnosis and nobody putting two and two together or giving me straight answers. Thank you Google (LOL). I went in for a Biopsy to confirm Celiac Disease. Came out of my endoscopy with "no visual damage to your villi from Celiac, BUT, there's a mass in your duodenum. We biopsied that. It looks...
  12. zenjess1980
  13. zenjess1980
    Thank you again for your reply. I agree that people respond to Diabetes much more than Celiac. I suppose because they understand it better. The old myth that Celiac is "rare", is just that... a myth... And I appreciate your honesty about me being my own best advocate. Again, thank you. I think I really need to sit down with my wife and speak with her about...
  14. zenjess1980
    Thank you Gemini and squirmingitch for your replies, I really appreciate it! Yes, I knew that duodenal/intestinal non Hodgkin Lymphoma was highly associated with untreated Celiac Disease (I did some research, but the 'do I have celiac do I not have celiac?' has been a back and forth question with doctors for a while.) Needless to say I was pretty shocked...
  15. zenjess1980
    So I was told again by my GI doctor that I do not have Celiac Disease because my biopsies were negative, and I do not need to be eating gluten free (I had been seeing my GI doctor previously who diagnosed me with non Hodgkin lymphoma of the duodenum - part of the intestine. I am since in remission.) I have been told twice by 2 different doctors that...
  16. zenjess1980
    Thank you everyone. I'm sorry other people struggle with this too!
  17. zenjess1980
    I'm 6 weeks gluten free and I think my insomnia symptoms are improving! Yay!
  18. zenjess1980
    I believe this is very common. When I asked my doctor (at the time) to test me for Celiac disease, after being told I had a psychosomatic disorder by other doctors I'd seen, my doctor hesitantly tested me. It was positive. My doctor then told me that I could "probably" still eat gluten and be o.k. because Celiac is "so rare." I was also diagnosed with Hashimoto...
  19. zenjess1980
    Hello everybody. I have been diagnosed with fibromyalgia for several years, have celiac, but over the last 2 months or so I've been experiencing a lot of joint problems - particularly in my fingers, knees, and most recently, I've developed swelling, red imflammed bumps on my 2nd toes. I saw my pcp on Friday and she asked if I've ever been tested or diagnosed...
  20. zenjess1980
    My family doesn't get it. Really don't know why they would. Even being a diabetic, they will still make foods I really can't eat [and they are well aware.] It's frustrating because it contributes to me feeling like it -and my health- is not all that important. My family isn't the most supportive in general, but when it comes to food that's pretty significant...
  21. zenjess1980
    Thank you everyone. I see an integrative medicine doctor and will ask him about this. I will also check into that book "The Autoimmune Solution."
  22. zenjess1980
    So, question: How do you know if you have any other intolerances/sensitivities/allergies? Does anyone have any experience with the elimination method? And what exactly goes into that? What are the top foods to begin with? Thanks in advance ~Jessica
  23. zenjess1980
    I particularly have a hard time with Aspertame.
  24. zenjess1980
    Thank you everyone. We are taking Carnival. Great to hear they are gluten free savvy
  25. zenjess1980
    Thanks guys
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