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emma6

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Everything posted by emma6

  1. emma6
    you're lucky you dont catch colds. im the opposite i catch everything very easily and get alot sicker than whoever i caught it from and take much longer to get better.
  2. emma6
    thats so funny i can imagine you walking through the store haha im very over sensitive to alot of smells like paint, perfumes, candles which make my allergy symptoms worse but it still persists 24/7 regardless of where i am or what im doing. that's very interesting yes i'm still hoping i will have some improvement from treating celiac even if its minor...
  3. emma6
    the test you had which is listed as negative is called EMA Open Original Shared Link your thinking of total Iga which checks that you are not deficient in Iga and are able to produce antibodies. people with an Iga deficiency can get false negative results. since you tested positive for ttg iga that suggests you're not iga deficient and you...
  4. emma6
    @Jmg thanks for the link, i didn't know you could have refractory celiac even with normal antibody levels. i thought i was out of the danger zone with that one. i've already taken eating whole foods while avoiding gluten and cross contamination to the absolute extreme because with every month i wasn't getting better i thought there must be a tiny...
  5. emma6
    thank you so much Gemini, my appointment went really well, he straight away suspected sjogrens syndrome before i even had a change to bring it up!! he found markings on my legs called livedo raticulitis which i was unaware of and the rash i assumed was DH, he thinks is something else although i didn't catch the name of it. he also thinks my poor circulation...
  6. emma6
    i think it just depends on the person, if you have celiac its still going to raise antibody levels and cause intestinal damage regardless of whether you have a reaction or not. i have celiac with no reaction to eating gluten, so i find it so strange that some people decide if something with gluten is ok to eat based on their reaction to it.
  7. emma6
    thanks i've been tested for vitamin deficiencies recently and am still taking vitamin supplements. i had very low iron and borderline vitamin d last year, they are in the normal range now but that hasn't changed any symptoms, if only it was that simple.
  8. emma6
    thank you! thats so true. the written referral is only two sentences which barely describes 5 percent of whats wrong. they wouldn't let me make an appointment for months because the referral listed fatigue first and "they dont see people with chronic fatigue" but my fatigue is so mild its the least of my problems. thats good to hear im dairy free aswell...
  9. emma6
    thank you for the suggestion. i will definitely ask the specialist about that, i actually asked a doctor about sjogrens testing a few months ago but since i don't have dry eye symptoms they dismissed it right away. thank you so much i'll definetely look into it
  10. emma6
    oh oops so that is the original article i thought it sounded like just a summary of the sciencemag article
  11. emma6
    this is exciting, hopefully they will continue to research this even further over the next few years. i've been trying to find the full journal article but seems like it requires a membership to read it. i would be so interested to find out if i've ever had the virus or how many people with celiac have had it.
  12. emma6
    does anyone know what to expect from an immunologist appointment? i can't seem to find much information about what they do besides allergy testing. are there any questions or blood tests i should ask for? it took months to finally get an appointment and i'm so nervous its going to be a waste of time like every other specialist i've seen. especially...
  13. emma6
    try having just a little bit of gluten each day and slowly cutting it down to nothing over a week or two, that's what I had to do. I cut gluten out cold turkey for a couple of days and had really severe withdrawal symptoms, constant headaches, nausea, dizziness, fainting it was so bad I couldn't do anything but stay lying down. so I was having a cracker or...
  14. emma6
    there are tests available for food intolerance testing but they are not scientifically reliable, which is why doctors do not use them. there are a whole range of tests you can order which are used by alternative practitioners but unfortunately most of them have no medical value and are essentially scamming you. if your gluten and gliadin IGA/IGG were part...
  15. emma6
    wow thats a lot of allergies! do you actually have an allergic reaction to all those things? was it an IgE allergy test? i believe the blood test more commonly has false positives than the skin scratch test. did your allergist offer you any kind of allergen immunotherapy . if you had the IgA/IgG food intolerance testing, its not scientifically...
  16. emma6
    yes i had a constant headache for the first two weeks along with dizzyness, fatigue, nausea it was really intense, i constantly felt like the room was spinnig even when i was lying down but it slowly got better i went back to the doctor i was seeing because it was so bad she wouldn't believe me and said it was impossible to have withdrawls from gluten...
  17. emma6
    I think this demonstrates that you still don't have a proper understanding of how celiac disease works. you can't just make up a theory and decide that's how it works. having a small amount of gluten now and then is still going to trigger an autoimmune reaction, make a person's antibody levels rise and attack their body. which can take weeks or months for...
  18. emma6
    thanks for this! made it the other night after trying to substitute a regular recipe for gluten-free flour and failing haha
  19. emma6
    some people have celiac disease with no symptoms at all or no classic symptoms. I had absolutely no reaction after eating gluten would have never suspected it. i'm vegetarian and gluten free its definitely not easy. have you tried making meals that you can make the same meal but slightly different like fried rice/noodles with vegetables and tofu then...
  20. emma6

    ARCHIVED Salicylates

    emma6 replied to kaygato's topic in Food Intolerance & Leaky Gut

    there is no accurate diagnostic blood test for salicylate sensitivity. there is a test for overdoses from medication Open Original Shared Link i believe its possible to be diagnosed by being given increased amounts of salicylates while being monitored for a reaction under medical supervision but it seems quite extreme. i have thought about...
  21. emma6
    since you are Iga deficient, did they test you for TTG IgG aswell? if not, i'm in Sydney so not sure if this is helpful but douglass hanly moir pathology seem to include ttg IgG when a celiac panel is requested compared to other pathologies which i've only got ttg iga with the same referral.
  22. emma6
    sometimes there is msg in sauces, tomato, bbq mayo etc. I get really bad headaches from the tiniest amount of msg/artificial colors/flavours so I avoid most of them.
  23. emma6
    Probably not the answer you want to hear but i can understand where your daughter is coming from. if I went gluten free for those reasons i would most likely cheat as well. i mean maybe she has researched it herself and is questioning if its really necessary for her to be on such a restrictive diet or has tried eating gluten when you're not around with...
  24. emma6
    so glad you are cancer free now. i'm sorry you have been through so much. thats crazy your GI decided a negative biopsy overwrites positive bloodwork even when you had developed lymphoma. i thought they would admit theres a chance they may have missed the damage and advise you to go gluten free anyway. at least your on the right track now though the...
  25. emma6
    unless they gave you a really good explanation why you would test positive for celiac without having it, i would play it safe and stay gluten free. did your positive Antigiladin Igg go down to the normal range after being gluten free for a while? you could get it tested again see if there is any change after eating gluten in asia. i also don't have...
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