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NightSky

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Everything posted by NightSky

  1. NightSky
    Ok thank you. It's Mutaflor, manufactured in Germany
  2. NightSky
    Hi, Can any supersensitives confirm whether Maltodextrin has caused them problems. J have been on a super strict non processed diet for several years but my doctor has prescribed a medication that contains Maltodextrin. It may be corn derived but I have been grain free for years so very wary. Many thanks,
  3. NightSky
    Hello, I have started Low Dose Immunotherapy. Firstly this is just to support my existing limited diet, to avoid me becoming sensitive to what I am currently eating. They have helped me stop reacting to B vitamin supplements that previously caused problems. In a couple of months I can start LDI in order to reintroduce some foods. As stated previously...
  4. NightSky
    Hello, Yes I have no plans to eat gluten ever again! I just want to eat things like Humous but can't because I get gluten-like reactions from cross contamination and all grains. I found out from genetic testing that I don't have celiac disease. I was concerned that it could be refractory, with all the health issues attached to that so that's a relief...
  5. NightSky
    Hi, I am going to start Low Dose Immunotherapy soon and plan to include wheat as one of the things I'm treated for. Has anyone tried this? I am not diagnosed as I took gluten out of my diet years ago and I have been super sensitive for the last two years with multiple food and chemical sensitivities. My hope is that LDI will reduce my sensitivity...
  6. NightSky
    Hi, I was a bit delayed replying to this as I have been battling airborne gluten of all things! (The building I live in has had the entire front removed and re-plastered.) I live on the ground floor so every time I opened my door, a gust of wind blew plaster dust in to my house and particularly living room. I have had to sleep in my daughter's room,...
  7. NightSky
    This - I agree with all of this. I have also twigged that if oats are a problem then certified processed gluten free food is out. And I got really sick from drywall. It's such a relief to hear this as there was a time when I was feeling like an alien for thinking these things. Well I agree 99.9%. I had a skin problem, possibly DH, which got better when I...
  8. NightSky
    Hi Celiac4762, The carbs I eat are sweet potato, parsnip and squash plus loads of fruit. With rice I'm ok if it's from a reputable source. If I ever get glutened by something then I steer clear of it for a month to give myself an extra break and then go back to it in smallish quantities. I have carbs once a day rather than every meal to save time. I...
  9. NightSky
    Hi, I feel your pain. Sorry you've been going through it. Interestingly, my sensitivity went up when I was massively sleep deprived looking after my baby. Anything that stresses your body, stresses your immune system. Good work with the handwashing by the way - definitely a winner when sharing a kitchen with gluten-eaters. Lots of good suggestions...
  10. NightSky
    Oh and plaster dust was a problem for me.
  11. NightSky
    Oh I worried about that too It'll be ok though. It's just a question of working it out x
  12. NightSky
    Hi, Sorry to hear you have been getting these symptoms. I too had symptoms despite my strict diet. I agree with the above. First port of call Eating out - I advise not doing this Sharing a kitchen with people who eat gluten - I advise not doing this Eating processed foods - if you are very sensitive then this could be problem Eating...
  13. NightSky
    This is the diet I have been on! It got rid of the horrendous brain fog. I do not eat anything processed. I cook everything from scratch and have a gluten-free home. My health has improved ten fold and I had the diet assessed by a medical professional and it's nutritionally complete. The research I found suggests there is a range of reactivity with some reacting...
  14. NightSky
    With all due respect, Gemini, AristotlesCat is not "the vast majority of celiacs", he/she is a specific person who has posted on the forum because a doctor has advised that their celiac disease is not under control. Repeating the same old information again and again about the standard gluten free diet, being strict etc etc isn't going to help every single...
  15. NightSky
    With all due respect, Gemini, AristotlesCat is not "the vast majority of celiacs", he is a specific person who has posted on the forum Hi AristotlesCat, I'm sorry about some of the responses you have had here. I felt pretty annoyed on your behalf that this is still happening on the forum. I also posted a while back about my symptoms that...
  16. NightSky
    The FDA has found trace gluten in coffee. Please look into the Fasano Gluten Cross Contamination Elimination Diet. It was designed for a clinical trial for celiacs who were not responding to a standard gluten free diet. It is based around avoiding processed foods and those such as grains which show up as containing gluten even if 'naturally gluten free'.
  17. NightSky
    It's good to be aware isn't it. Medical research has verified airborne particles can be problematic and hopefully there will be greater refinement in the research to establish greater understanding over time. The site manager at the construction site informed me that my symptoms starting coincided with when the work with cement started. As I got sick...
  18. NightSky
    I agree. For fats I find avocado, bone broth, olive oil, coconut milk and a small amount of nuts helpful.
  19. NightSky
    I eat butternut squash, parsnips and lots of fruit! I also eat sweet potatoes, though these are thought to be problematic according to the Specific Carbs Diet. I haven't noticed a problem with these but have yet to do a test with them.
  20. NightSky
    That's great your doctors accept that you are celiac. They sound like keepers!
  21. NightSky
    Hi, I would definitely vouch for grain free. My symptoms got worse and worse on the standard gluten free diet! My sensitivity went sky high and I remember one episode of head fog lasted for two weeks with no break. I know people have longer-lasting head fog but this was five years after going gluten free. What got rid of the head fog and other symptoms...
  22. NightSky
    Hi GFinDC, can I ask how it has been for you not having a diagnosis? Have you sought follow up care such as bone scans? I am in the same boat, having given up gluten five years ago and reacting severely to trace amounts. I don't feel I need a diagnosis for myself but really just to help others around me. It can be hard for them to understand and accept. I...
  23. NightSky
    Thank you. I'm at work now so should know in the next few hours whether or not I will get a reaction. I have been doing this job for several years and I am very fond of it but do need to think about my health too. Fingers crossed it will be ok. Also I have a doctors appointment so will see what they say.
  24. NightSky
    Hi, I posted a while back and my symptoms have been so much better since I started on the Dr Fasano Gluten Cross Contamination Elimination Diet. Although the dermatologist said he wouldn't recommend I reintroduce gluten after five years of being gluten free because of the severity of my reactions and so couldn't diagnose whether or not I have DH, I wasn...
  25. NightSky
    Hello Strawberry Moon, yes, things are better now. For about five years I started and stopped different foods with no method and as someone else on this forum pointed out, that can be crazy-making. I just went back and forwards without improving my understanding of what the problem was. Then I started this method. Cutting out grains, dairy, eggs, pulses,...
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