Jump to content

Packard

Advanced Members
 View Profile  See their activity

  • Posts

    29

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Packard

  1. Packard

    ARCHIVED Restaurants

    Packard replied to Miki's topic in Gluten-Free Restaurants

    There is a lot of information given out in these forums without any scholarly, medical, or scientific studies being referenced, and without any qualifying remarks to precede what is often times opinion. I qualified my remarks. Also, there is a generally recognized threshold of acceptable levels of gluten and if you are very careful with your regular diet...
  2. Packard

    ARCHIVED Restaurants

    Packard replied to Miki's topic in Gluten-Free Restaurants

    Everyone's sensitivity is different. I can tolerate trace amounts of gluten so if I take a hamburger off the bun I don't get sick. There are others who feel that the contact with the burger is enough to contaminate the food with gluten. It may be for others, but not for me. You will need to come to your own conclusions. Celiac is a big pain as...
  3. Packard
    Have you tried Lactaid? Or have you used Lactaid tablets? The tablets will allow many people to consume dairy. Lactose intolerance is not necessarily Celiac related. I'd give it a try. Note: Lactaid milk has a longer shelf life than regular milk.
  4. Packard
    See: Open Original Shared Link
  5. Packard

    ARCHIVED Restaurants

    Packard replied to Miki's topic in Gluten-Free Restaurants

    My condition is not as bad as some and I take medications for psoriatic arthritis that also mitigates the effect of wheat contamination. Keep that in mind while reading my response. I eat in restaurants frequently. I consider certain foods "safe". Some examples are: steak, roast chicken, broiled chicken, baked potatoes, eggs, omelettes, bacon, 1...
  6. Packard
    I've always assumed that I was lactose intolerant (my father was). Not much of a hardship as I don't normally drink milk. However when I was going through the testing process "T.R.O." as my doctor called it (To Rule Out), I took a lactose tolerance test. It is very simple: You eat nothing from 10:00 the evening before and show up at the doctor's...
  7. Packard
    The FDA has a website and discussions on the topic of labeling for gluten free. See Open Original Shared Link
  8. Packard
    Putting my neck out there is one of the lesser documented side effects of celiac sprue.
  9. Packard
    That's what I thought I had, but the doctor said otherwise. The patches of dry skin were in fact psoriasis. And the condition is psoriatic arthritis. My condition was quite bad. I had swelling in the knuckles, wrists, and elbow. I had tendinitis in the elbow, jaw and neck. It was so painful that it kept me from sleeping. There is a worrisome...
  10. Packard
    I had that condition (still do, but it is well controlled). Do you have any psoriasis any where on your body? If so, you might want to see a rheumatologist. I was diagnosed with Psoriatic Arthritis; it was very painful and rapidly progressive. It was a long time in figuring out what it was. Ask your doctor about this. This is an auto-immune response...
  11. Packard
    I read the labels. Several of the low calorie meals list no offending ingredients. My condition is not so severe that minute amounts of cross contamination is a problem. None of them carry a label, "Gluten Free", though you can e-mail the manufacturer to check. Also, BJ's Wholesale Club carries many Thai and Vietnamese instant meals that are gluten...
  12. Packard
    There are a lot of really acceptable substitutes for oatmeal so this really should not be a big issue. I eat oatmeal (Quaker) with no issues, but my celiac is very mild and mitigated by the drugs I take. There is Cream of Rice as a substitute. I make a cheaper version of Cream of Rice. I buy Minute Rice and put a couple of scoops in my coffee grinder...
  13. Packard
    There has to be some other mechanism going on here. My dog got a yeast infection in his ears and I treated it with a topical oinmnent. He is neither a celiac nor does he eat any wheat. This has to be an independent issue. I don't believe the yeast in foods can survive the cooking cycle. The hot water in my dishwasher is supposed to kill yeast...
  14. Packard
    A friend of mine used to love banana sandwiches with mayonnaise. That is a disease unto itself.
  15. Packard
    Get the test. If it is the pancreas that is causing this, it is easily treatable with a pill a day. Get the test. It is self administered. You bring in the samples to the lab, and your doctor will give you the definitive result. No guessing and a real remedy. Get the test.
  16. Packard
    My symptoms are less severe than most of yours and I complained early on. My doctor never came up with a diagnosis. After 6 months of distress I came across an article in the local paper about an entire family with celiac. I decided to try a gluten free diet. After 2 days most of the symptoms were gone and after a week I felt fine. But then my immune...
  17. Packard
    Black stools and and floating stools and oily residue were the things that my doctor was looking for when he thought it was malabsorption. My hair was already thinning, but it thinned out a good bit more after I started the medications (methotrexate, Embrel) for the psoriatic arthritis (also a immuno-related condition).
  18. Packard
    The test looks for undigested fat in the stool, an indicator of malabsorption. My doctor was not even considering celiac, so I assumed it was an independent condition. I believe it has to do with the pancreas. Google: "Pancreas, malabsorption" The Merck Manual has a discussion on this subject.
  19. Packard
    My doctor desperately wanted my condition to be malabsorption. He understood the condition and knew how to treat it. There is a definitive test for malabsorption, involving stool smears. There is an effective treatment for malabsorption involving a type of insulin (taken in pill form). If you suspect malabsorption get the test done.
  20. Packard
    I've read that beer is so highly processed that it does not impact celiacs. This seems to be an area of contention. I drink it (alcohol free) and have had no difficulties, but my condition is mild compared to others. I find that if the wheat is the 6th or 7th on the list of ingredients that I am able to eat it with no difficulty.
  21. Packard
    My symptoms are not as bad as some of yours' are but bad enough. I directed most of my frustration and anger at my gastroenterologist(s). Basically they deserved it as I thought then (and now) that they basically failed me. That they should have made a diagnosis much earlier and they did not consider celiac in their thoughts. They like surgery. They...
  22. Packard
    So many people have eliminated so many foods from their diets that it is scary. What is your food testing methodology? I eat out a lot (lunches, breakfasts). When I get blindsided by some gluten it is often difficult to pin down the culprit. I could eliminate everything that I ate that day to be safe, but it would be too inclusive. For example...
  23. Packard
    Gluten free; but if you have seed alergies be aware that mustard is a seed. Mustard alergies represent 1.1 percent of all childhood alergies. Google: Mustard seed, alergies
  24. Packard
    I am working on a invention: A De-Glutinizer It is a device that looks like a microwave oven. You place anything in it and set the timer. Presto. It's de-glutenized!! Are there any investors out there interested?
  25. Packard
    Celiac is a funny diet. Most diets challenge your will power. Most celiacs have conquered that aspect of the diet--I mean, how many of you would willingly go off your diet? The challenges are people (like your team mates) and being sandbagged when they stick some wheat flower where you would least expect it (like on french fries). Or when they lie...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.