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Latest Celiac Disease News & Research:
Everything posted by KathleenH
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ARCHIVED Please help.. Is this recovery??
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Aww I'm sorry that unfortunate about the doctor. There are some bad doctors out there. I went to one before my diagnosis and told him I went to the bathroom and there was quite a bit of blood and that's never happened to me before. He looked at me like I was crazy and said "how do you expect me to help you with that." Needless to say I left crying... I digress... -
ARCHIVED Feeling a bit jealous
KathleenH replied to SadBlueDot's topic in Coping with Celiac Disease
Hi! =[ I'm sorry you are feeling sad. Isn't that the worst when someone tried to tell you "it wont hurt it's just a little". Sometimes for me it just helps to make jokes about it. I'm sorry your dad has a hard time understanding. I miss Chinese food too I haven't had it in while. Do you like too cook? Maybe try going on pinterest and look up gluten free recipes... -
ARCHIVED Please help.. Is this recovery??
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey, I hear ya when you say " I still can't seem to do as well as I know I could if I were feeling healthy. " Aint that the truth... I think I really started to feel genuinely sick maybe 8th grade but I thought the same thing as you.. like "oh I'm just feeling depressed and its making me feel like s$#& it will pass",,, Then I think there was a point where... -
ARCHIVED Please help.. Is this recovery??
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sounds good I'll have to look into that....haha totally wish that was a thing too! This way I would know how I'm doing and if you contaminated yourself vs you're just sick. There's totally a way to do that. So I had that meal I thought may have contaminated me and I feel fine. Thank goodness for that, I would have felt bad throwing it all away. So either... -
ARCHIVED Please help.. Is this recovery??
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks guys all your responses were appreciated! I will definitely have to get the blood sugar checked to be safe. You say go asap or just wait till next Wednesday for my nutritionist appt? After the celiac diagnosis I kinda chalked all my other weird symptoms up to it all being caused from that. I'm learning now though from all of you that other diseases... -
ARCHIVED Please help.. Is this recovery??
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks all. When I was younger we were suspecting diabetes because I would get shaky, light headed, faint, etc. Nothing ever really came of it and now looking back on it I assume it could be the celiac. I feel like I should get it checked out again though, Im not sure of the last time it was done. What do I say to them? Just can you check my blood sugar levels... -
ARCHIVED Please help.. Is this recovery??
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hii! Yes, this is something i've been considering. Im going to see a nutritionist next week and im going to ask her about it. Thank you for looking out for me! Do you know id night sweats are a diabetic thing too? Ive been having that issue too lately. -
ARCHIVED Please help.. Is this recovery??
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Ughh that sounds terrible. Lol i love beets. Im sure it will just happen sometimes Im just afraid of not being able to find the culprit and recontaminating myself. Thanks for the support! -
ARCHIVED Please help.. Is this recovery??
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, I didnt eat out for meals .. I have one idea of what it might have been so Im actually going to eat it again today and see if it makes me sick. If it doesnt then good because I made a lot of it haha but if it does I'll chuck it all out. I do also think it could of been my coffee I got at dunkin doughnuts. There is a self serve one I go to but now im... -
ARCHIVED Please help.. Is this recovery??
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Heyy! Things are ok in college now much better than last year. My junior year was rough i was really sick and I just gave up and did really poor in my classes. I was a straight A 4.0 student my frist year and not far off my second. It was hard becasue i couldnt get out of bed and people were just calling me a lazy college kid so I felt really bad about myself... -
ARCHIVED Please help.. Is this recovery??
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you ?. Its really nice to have this support group because you guys understand. Today is a new day and im feeling a bit better so im gonna kick ass on my test today and just be more careful with food. -
ARCHIVED Please help.. Is this recovery??
KathleenH posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi guys. I really need help/someone to listen/someone to understand. Today was absolutely horrible. I started out feeling fine this morning just a little tired but by noon or so an incredible headache washed over me and I've been sick the rest of the day. The headache wouldn't stop and along with it came stomach pain and worse joint pain than I normally have... -
ARCHIVED Gallstones, CCK Deficiency?
KathleenH replied to Tom G's topic in Related Issues & Disorders
Hi! Many people get gallstones at some point in their lives. A low fat and high fiber diet help I've heard it helps keep the bile as a liquid instead of the cholesterol hardening. Also If you consume too few calories that can give you gallstones too. I didn't know about CCK deficiency in people with celiac disease I wonder if I have that.. how do you find... -
ARCHIVED Overwhelmed by This Possibility
KathleenH replied to GalaxyDuster's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello!!! Im wondering if you have ever had your gallbladder looked at? Although I have celiacs I had very similar symptoms when I had gallbladder disease. I had the same back pain too and lost 50 lbs without trying. Turns out my gallbladder was stuffed with 30 gallstones. -
ARCHIVED Nutritionist/Malnourished
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Where do you get yours? online or a pharmacy? Also how do you know you dont absorb/process the cheaper version? Based off check ups or you just weren't feeling better? -
ARCHIVED Nutritionist/Malnourished
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey guys. Got some of my results back and im vitamin b12 deficient. Wondering if any of you had this and if its difficult to bring back up to par? They told me to get supplements and take them daily for now but I'll have more tests done when I see the nutritionist next week. -
ARCHIVED Sorting out Celiac--Symptoms and testing HELP!
KathleenH replied to Run2TheCoffeeShop's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi! I'm sorry you havent been feeling well for so long . How did you feel when you werent eating the gluten? I had the same original diagnosis of IBS with constipation. Also I have has similar problems with stress fractures so that really could be an indication that something greater is going on. Although your IGA came back low I have heard of people getting... -
ARCHIVED Withdrawal Symptoms?
KathleenH posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello everyone. I have only been gluten-free for two weeks now but I felt like by day 6 or so I was feeling decently energetic and okay. Now I'm two weeks in and these last couple days I'm absolutely exhausted, irritable, moody. I know this is super early in recovery but why would I have started to feel decent then bad again? Is it normally like a roller... -
ARCHIVED How do you know when you're glutenated ?
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hmm yaa maybe that was it- 8 replies
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- cross contaminated
- gluten
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ARCHIVED How do you know when you're glutenated ?
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Also wondering if you can be cross contaminated if you share a straw with someone who ate something with gluten in it? Its pretty frustrating... I thought i was doing good but then I shared a drink with a straw after they had been drinking beer- 8 replies
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- cross contaminated
- gluten
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ARCHIVED How do you know when you're glutenated ?
KathleenH replied to KathleenH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hm I don't know for sure but I did make it from scratch. I'm gonna five it another try but if it keeps upsetting my stomach I'll just assume its not for me. Thanks for the video I'll be sure to watch it.- 8 replies
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- cross contaminated
- gluten
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(and 2 more)
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ARCHIVED How do you know when you're glutenated ?
KathleenH posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey guys I know i've asked like 1000 questions and I probably getting annoying! So sorry!! But this is a question I cant seem to find the answer to. How do you know if you have been cross contaminated? Since I've only been gluten free for about a week I don't think I know what it feels like to be well yet so it would be hard to tell this early on right? How...- 8 replies
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- cross contaminated
- gluten
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ARCHIVED No diagnosis, lots of problems, celiac disease?
KathleenH replied to someone0's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would maybe just try eating gluten free now if you cant get an official diagnosis. I mean as long as you are getting your daily nutrional requirments theres no harm done I wouldnt think. I do keep a food journal as the cyclinglady suggested and it really does help! I also write down how im feeling that day. -
ARCHIVED No diagnosis, lots of problems, celiac disease?
KathleenH replied to someone0's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey!! Sorry you arent feeling well . One thing I have noticed and read about is that people that go on gluten-free diets when they arent advised they often experience complications like you have. I think this happens because of things like vitamin deficiency and loss of nutrients from not eating the grains like wheat, barley, etc. Now on the other hand Ive... -
ARCHIVED been 6 days since my daughter had her biopsies done
KathleenH replied to tarab87's topic in Related Issues & Disorders
I'm no expert and I was only recently diagnosed but heres what I would think... I feel like if her blood work came back indicating celiacs and they cared enough to do an endoscopy than chances are are her biposies will show celiacs. Also if it doesnt maybe she's gluten intolerant? But like I said I'm no doctor lol. What helped me in the meantime of waiting...