desirun

I’m so sorry. I also have not heard of any such cases in the community, with family members, or coworkers who have received Moderna. Has anyone contacted Moderna? Has this been reported as a vaccine related injury? I would start contacting large university hospitals in your area to see if any are treating similar cases. If that leads to a dead end I...

My daughter is now in high school and there isn't a 504 plan option anymore, so she is on a health plan. I'm not sure if the plans vary from state to state, but in IL 504 plans are still an option for elementary. My guess is your school isn't familiar with celiac decease and the need for a 504 plan. Ask for a note from the MD's office and continue to advocate...

My daughter is 13. She was diagnosed last August. She also had horrible neurological symptoms. We went to a highly recommended and regarded GI doc who was stumped by her neuro symptoms and didn’t believe they were celiac related. We finally took her to the best Celiac GI specialist in our area who understood that her systems were related to gluten and celiac d...

My daughter dropped from TTG's of 50 to 18 in two months gluten-free. Keep up the good work!

To clarify, did the endoscopy come back completely clear? Maybe the results are being misread? Do you have a copy of the report? I speak from experience that even GI’s can miss Celiac Disease on an endoscopy report. I’m worried 4 weeks on gluten would be torture and too harmful to your healing body. If your wheat antibodies were high and you responded wel...

Agree with above- retesting her TTG antibody levels should shed some light on the situation.

True, we could both be! TTG testing approved, genetics are not in our case.

Soccer tournament went great. Thanks for your tips and support. Excellent suggestions that helped.

Has anyone done this genetic test yet? My daughter has Celiac, and hoping this is an accurate/less expensive way to determine if my husband or I are the gene carriers for the rest of our family. Any thoughts/knowledge on results vs. traditional blood genetic testing?

Are decorative cookie sprinkles with gluten-free ingredients but made in a facility that manufactures wheat considered safe? So many gluten-free products are also produced in a factory with wheat but test less than 20 PPM...so unsure on this one. If they are not safe, what brands are go tos?

great post.

I need help, my 13 y.o. daughter is 9 weeks post diagnosis, still feeling icky, but wants to travel and play in her 3 1/2 hour away soccer tournament this weekend in Indianapolis..ugh. We'll hit the road Friday and head back Sunday afternoon. Our hotel will have a microwave and small fridge. The team has planned a meal out at Buffalo Wild Wings and other...

Ditto above. Run for the hills. Find a new doctor. There is nothing more toxic than a physician treating an illness he/she is not versed in and/or making up an unfounded treatment plan! Good job following your gut, something IS way off!

Agree with Cycling Lady. My friend's daughter with Celiac is chronically constipated and takes Miralax daily. My daughter was diagnosed 9 weeks ago. She initially had diarrhea 5-6 times a day. Now that she is gluten free, she has 1-3 formed BM's a day. One thing I've really learned is the symptoms vary so very much from person to person.

Celiac.