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corinne

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Everything posted by corinne

  1. corinne
    I have collagenous colitis which is in the same family as lymphocytic colitis. It can definitely be frustrating at times. Unfortunately, there is no known cure and it does run and up and down course. You may have months with no symptoms and sometimes things can be rough. A good gastroenterologist, as you said you have, who you can talk with on a regular basis...
  2. corinne
    My biggest problem is how many calories I need when backpacking. If I hike around 8-10 hours, I need about 4000 calories per day which means about 1500 at dinner. That's a lot of rice noodles! I try to compensate somewhat by bringing lots of peanut butter and chocolate but I still lose weight over the trip.
  3. corinne
    I haven't done any long backpacking trips gluten-free, but I have been packed for 5 days at a go and where I've had to pack light because of having mountaineering gear in my pack. I'd second the instant grits or cream of rice for breakfast. Cream of rice is good too with some hot chocolate mix stirred in or dried fruit. For lunch, I usually do corn tortillas...
  4. corinne
    When I visited my brother in Edmonton, I stopped at Kinnikinnik and they had gluten-free ice cream cones. I didn't buy any because I spent way too much $$$ on other goodies in the store, but they looked "real". I'm not sure if they sell these online, but many of their products are online. Trade Joes sells Belizza sorbets. These only have fruit and sugar...
  5. corinne
    I've tried a lot of different milks. My favorite is almond milk and rice milk is a fairly distant second. Potato milk works fairly well in baking. I tried hemp milk and spat it out; the flavor was too strong.
  6. corinne
    Wow - your friend is very lucky to be alive. I rockclimb and the stats say that less than 10% of people survive a groundfall over 25 feet. He's got a rough road ahead with the injuries and is fortunate have thoughtful friends such as you.
  7. corinne
    Thank you!! After 2 years, I have finally healed enough to tolerate rice and corn and I have started making goodies. Mostly disastorous results, but eventually it will get better and with these tips, the learning curve will flatten out.
  8. corinne
    I've never felt anger. I was scared before I had things under control. I had D up to 15 times a day and sometimes for 2 hours straight, cramps and sometimes vomiting. I was afraid that I would lose my job and someday not be able to leave the house. It was such a relief to have my life back. I am so glad I am no longer on prednisone and to know that I will...
  9. corinne
    Can you get Mi-del arrowroot cookies where you live? They're gluten free, fairly inexpensive and easy to crush to make a crust.
  10. corinne
    Apple chips are good. You can also make carrot, eggplant or zucchini chips on a cookie sheet at home. Puffed rice squares, coconut macaroons and nut bars are good sweet snacks that are fast to make.
  11. corinne
    Concentrated sugars and in particular high fructose can cause diarrhea; too much juice is a common cause of "toddler diarrhea". I'm working to gain weight (5' 9 and 115 pounds), but I have colitis so it's hard to keep the weight on. I too find that eating lots of healthy fats - nut butters, avocados and olive oil help.
  12. corinne
    I'm not sure I understand your question, but I love aioli. Friends showed me how to make it when I lived in France.
  13. corinne
    I also have microscopic (collagenous colitis) and my mother is celiac. I, however, am not celiac. There is a correlation between microscopic colitis and celiac and microscopic colitis can often be controlled by a gluten free diet, but these are two separate diseases. I follow a completely grain-free, soy-free and dairy-free diet and yet, I still have symptoms...
  14. corinne
    I have collagenous colitis and I follow a gluten free (well actually grain free including corn+rice, dairy free, soy free etc) diet. I haven't been diagnosed with celiac, but my mother has celiac disease. The gastro. just started me on Asacol so that I can expand my diet a bit, because I'm losing weight, but so far Asacol is making things much worse. To...
  15. corinne
    I've only been on Asacol since Mon. and I'm ready to quit. Things have gotten worse - 30 min. D. this morning, again at noon, and again late afternoon plus mild cramps all day. I do have regular flareups, where things are really bad, but that's only every 6-8 weeks. Occasional severe flareups are more tolerable than everyday moderate D. I can't afford to...
  16. corinne
    I tried homemade yoghurt when I first when on the diet and got REALLY sick from it and I've moved since so I no longer have a yoghurt maker. I have a gas oven which is either hot or off so I'd need to buy another yoghurt maker which would be a nuisance if it only makes me sick again. That's why I was thinking about trying storebought yoghurt and using lactaid...
  17. corinne
    I also have a type of inflammatory bowel disease so maybe some this can help. 6-mp and prednisone are taken to for inflammatory bowel disease not for celiac. These drugs are both immunosuppressants and are very strong. It is hoped by taking these powerful drugs that the IBD can be brought under control. Then, drugs such as asacol are usually taken to...
  18. corinne
    I get D from dairy, but I think I'll try yoghurt with a good dose of lactaid and see if that works for probiotics.
  19. corinne
    I'm a chemistry professor. I really enjoy helping the freshman nursing, animal science and other students who really struggle with chemistry make it through and maybe even enjoy it. The other fun part is teaching the chemistry majors especially the senior electives where the students are really maturing and almost ready for the "real" world. I'm more proud...
  20. corinne
    Thanks for sharing your story. What kind of field work do you do? Just wondering if it might be possible to get back out there once you are feeling well for a while and feel very comfortable with the diet. Besides gluten I don't eat any grains including rice, no dairy, no soy, no nuts, no potatoes etc. Two weeks ago, I spent a week in the field collecting...
  21. corinne
    Grey - I too am on the tenure track; I just finished my first year. LOL about summers off - with 4 research students, grant writing, conferences etc. etc. it's still 14 hour+ days. I've been gluten free for 3 years and also wish I had been diagnosed sooner. My 7 year PhD probably could have been done in 5 if I could have concentrated. I had a rough time...
  22. corinne
    It's funny - my dad is Austrian and I actually miss eating sauerkraut Anyways, the new GI was very good. He wants me start taking Asacol. He also suggested taking a probiotic. I'll give Asacol a shot. I haven't been feeling great lately and it's true, taking meds might actually make it easier to do the sports I enjoy. I really wanted to go for a run...
  23. corinne
    The SCD (and especially gluten-free) helps me keep the colitis under control; I have far fewer symptoms - bad D every few months instead of every day. Things are much better but still not under control so the GI decided today that I should try Asacol. I don't take probiotics, but the GI I visited today also strongly recommended probiotics so I'll do some...
  24. corinne
    With collagenous colitis, the docs say that diet has no effect, but for me, I have less flares by eliminating things like cabbage, nuts etc. I eat a very simple diet (just fish, chicken and a few well-cooked fruits/veggies and avoid all grains/dairy etc). I no longer have daily D, but when it flares up, it's hard to make it work. I teach university so I can...
  25. corinne
    I have collagenous colitis not Crohn's, but the symptoms/treatments are pretty similar. It's so true that it's a matter of perspective. It's said often on this website how hard celiac is, but to me it would be great to have something that can be fixed with diet. Then I hear about other people's situations such as that little girl and feel grateful that I...
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