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shellbean

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by shellbean

  1. shellbean
    Thanks for the advice. I'm one of those squemish types too! But not knowing for sure is aggrevating. It sure would answer alot if I went and had a biopsy done. I would be alot closer to knowing if I had celiac or not. I was alot like you regarding the reaction to the creams. Everything they gave me to use made me itch really bad and the bumps would...
  2. shellbean
    My skin problems sounds a little different than everyone else but in a lot of ways the same. For starters, ever since I was born, I have had a million miniature "pimple" looking bumps ALL over my entire body. They NEVER disappear. Growing up the docs always said they thought it was eczema. One doc thought every single pore in my body was clogged (I don...
  3. shellbean
    I have the brain fog alot. When I get it, my eyes go a little blurry and what I am thinking I want to say and what I actually say are completely different. I get tongue tied and I suddenly forget what I was saying in the first place. I forget how to do some of the simplest things. I was always smart and learned new things very quickly and never had trouble...
  4. shellbean
    I was told the same things. I actually had a GI doc do the endoscopy on me after my gallbladder was removed because I was having so many problems and I specifically told him to check for celiac while he was in there and lo and behold "he forgot". He even "forgot" I had my gallbladder removed. That's when I knew I had the wrong doctor. And they call us...
  5. shellbean
    I feel the same way you do. I guess you can say I'm a hard headed girl! Also, a family member of mine died from intestinal cancer so hopefully I will be scared straight soon too.
  6. shellbean
    Before they removed my gallbladder, the attacks felt like I was having a heart attack. They usually hit in the middle of the night. I will never forget all the pain. It was the most horrible thing i have ever felt. When I have the sharp pains now it is very sensitive in that area to touch. It's right where the 3 small incisions are. Actually it hurts...
  7. shellbean

    ARCHIVED Vision

    shellbean replied to whitball's topic in Coping with Celiac Disease

    I have had alot of problems with my vision too. (Boy, after you've read all my recent posts you'd think I was a serious mess! ) I have problems with blurry and cloudy vision and also peripheral problems. I have been running into things that I swear was further away than it really was. I grew up having numerous migranes too. My eyesight is getting worse...
  8. shellbean
    Oh boy. So things that have gluten like that can affect you even though it's not entering your body? I was thinking only stuff you ate or things like lotions or makeup that stays on your skin for a period of time, or things you mix with your saliva (like envelopes) were the only hazzards. And the learning continues...... This is getting tougher by the...
  9. shellbean
    I'm glad I read this because I was wondering about the gluten/acid reflux thing too. I was bad last night and ate a fast food meal to test myself (....BAD I know! ) and I ended up with the heartburn pains and reflux, etc. just to name a few. Well, I guess that explains that part!!
  10. shellbean
    Thanks so much for the advice. I am going to hang in with the diet. I know I don't have a choice now. I hate to say "I'm glad I'm not alone" because i don't wish this on ANY one but it is so nice to know I'm not imagining what I am feeling and that so many others are experiencing this and that I have a place to go to talk. My job is in accounting at...
  11. shellbean
    Did any of you first notice you had a problem with celiac right after gallbladder removal? I had my gallbladder removed Sept of last year and that is when all my problems really began. I had a huge gallstone to get stuck in the duct and they had to remove the gallbladder. I didn't have a choice at that point. The doc told me I could die if they didn't...
  12. shellbean
    Here's where I'm at today: I just found a new job (had to quit the old one because of the stress). I have been on the gluten free diet for about 2 months. I was out of work for about 1 month between the two jobs. During that month is when I started the diet. I felt really good and all the pain disappeared. I started the new job and the first week wasn...
  13. shellbean
    That's a good idea. I haven't met anyone around here that have our problem (mainly because I'm still trying to figure out how to contol it and am too wound up in that!) but I'm sure they're out there. I think it's just nice to actually meet someone in person that knows what I'm going through. I don't know how the PM thing works on this website but when...
  14. shellbean
    I haven't found any support groups here in Charlotte but I did want to let you guys know (in case someone from Charlotte reads this) that I found a really good health food store called Home Economist in Davidson, NC. They also have two more stores in Charlotte too. They are a very large health food grocery store and they have TONS of gluten free stuff....
  15. shellbean
    I was prescribed nulev and pamine forte by my GI doc when he thought my only problem was IBS. I took pamine forte every day to relieve IBS symptoms and it worked for a while but then the side effects became worse than the IBS symptoms themselves (especially mental effects - like confusion, disoriented, depressed, etc.) so he prescribed NuLev. At first before...
  16. shellbean
    I just found some of WalMart brand stuff that said gluten free on it too and you should have seen me! I just about embarrassed myself! I was sooo happy! People started looking at me funny when I yelled out "LOOK IT SAYS GLUTEN FREE!!!!!! I CAN EAT IT!!!!!!!!!!!!" I made myself laugh at that one! LOL. One question I have too is how do you know when...
  17. shellbean
    I really, really REALLY dislike it when people ask me "when are you due" and I'M NOT EVEN PREGNANT!!!!! (I've got the big belly syndrome! LOL Always swollen...) And I really dislike the fact that EVERY time I start to head out the door to go somewhere, it never fails, I have to run back in 5 times to the potty before I can get myself into the car!
  18. shellbean
    I am a big Walmart shopper (I'm a poor child! LOL) and I used to buy alot of the Great Value brands until I heard to be careful with generics. Do you mean they actual say "gluten free" now or do they just show on the labels if it has wheat etc in it? This is great news! I had called Kraft's 800 number and asked them if A1 had gluten and they told me that...
  19. shellbean
    I'M ON IT!!! I will hunt those cookies down so fast you won't be able to count to 2! LOL Thanks for the tip!! There is hope afterall! :lol: (you can tell you just made my day! heehee)
  20. shellbean
    That is a really good article. She said it exactly right! I couldn't have said it any better!
  21. shellbean
    MACARONI AND CHEESE!!! That was my huge favorite. When I learned I couldn't have that or bread or OREO's ( ) I cried! LOL This has to be the hardest thing (the gluten free diet) I have ever had to tackle in my life. I am still learning so I have accidentally slipped in gluten from time to time because I get SO hungry and shaky that I just grab something...
  22. shellbean
    Hi Kathleen, I want to offer you my support too. I just diagnosed myself by means of the gluten free diet. All of my doctors couldn't figure out what was wrong with me etc etc so I did it myself. And the diet has really helped me. I am very blessed to have a wonderful man in my life that completely understands what I am going through and is very supportive...
  23. shellbean
    Does anyone know of any support groups in or near Charlotte, NC? If not, does anyone know where any good health food stores are here? I can't find any!
  24. shellbean
    Thanks to you all for the advice! At least I know I'm on the right track. Thanks Nini for getting me started with the newbie survival kit. That was a huge help. I am going to cut back on the dairy and see if that helps too. I just ate a small bowl of gluten free rice with a small amount of sugar and butter and the only other things I ate today were a...
  25. shellbean
    I may not be much help but here goes anyway...LOL! I was not diagnosed as celiac by a doctor. They couldn't figure out what was wrong with me because all my tests came back negative. I decided to self diagnose myself by going on the diet and have been on the gluten free diet for about a week. I cheated once by eating a piece of bread with wheat in it...
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