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heli

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by heli

  1. Pet store chains sell Eucanuba which I used for my dogs before, well their gone now. Other brands are lamb & rice based. It's better for the dogs anyway. When a dog has a tummy ache they go outside and eat grass so they can throw up. So, why would a dog food company put wheat (grass) in the food? Convenience, but it is not good for dogs. I got glutenized...
  2. heli

    ARCHIVED Lithium

    I am a nurse & celiac person. I don't know that there is anything specifically about lithium that prevents a celiac person from using the product. However, in the past when I was on multiple meds, I always made it a habit to call the pharmaceutical company and have someone discuss the flow agent for capsules and the binding agent for compressed tablets...
  3. After I found out that I have an intolerance to grapes, I had to give up wine. My husband bought me an expensive, aged Tequila. Severe gluten reaction. I haven't figured that out yet. I wonder if the aging process (in the oak barrels) has some way contributed to cross contamination. Any thoughts?
  4. No miracle, but I can recommend that you use a high quality, stabilized aloe vera product. The healing component in the aloe plant is a simple plant sugar called mannose, it binds to the cell surface and occupies the receptor site so that the bacteria cannot attach to the cell (published biochemistry research). Carrington Labs makes a pharmaceutical quality...
  5. Pain is very motivating. Involve that young lady in being as wary as a fox. Teach her to "interrogate" for all food that she is offered. Be sure she always has a snack (Think Organic bars are great to carry) so that she does not get hungry and eat indiscrimanately. Mom and daughter are partners in improving health. I know the majority of the load for food...
  6. heli

    ARCHIVED Genetic Test

    mamaw - well, I don't know if you will ever get this. I am having so much trouble following links that were previously posted but here goes: DQA1 is the alpha chain on the gene and is not currently considered as part of the gene profile for determining celiac disease. DQB1 02xx means that the beta chain (as opposed to the alpha chain) carries the DQ...
  7. I've used a great multi-vitamin for over 4 years. It has no artificial ingredients and its binding agent is water cress. I never have any nausea with it. But because it is a whole food vitamin it is taken 2 twice a day. Your body can only absorb about 400 to 600 mg of calicum at any one time so you actually get better absorption taking it twice a day. The...
  8. heli

    ARCHIVED Genetic Test

    Okay, I will give this a try anyway: Early in genetic testing there was only DQ 1 DQ 2 DQ 3 DQ 4 As more genetics were researched subtypes of these four were identified: DQ1 having subtypes DQ5 and DQ6 DQ2 - no subtypes, it is bad by itself DQ3 having subtypes DQ7, DQ8, DQ9 DQ4 - no subtypes (the only gene not associated with...
  9. heli

    ARCHIVED Genetic Test

    Dear jknnej - I am quite familiar with the gene testing and would be happy to give you the information you are looking for. However, I seem to have lost the question in the thread. Please restate and I will give it a try.
  10. Sarah - I think this thread started out about snacks. One of the best snacks that I have found (and carry with me at all times) is the Think Organic food bars. Some are not gluten free so, check ingredients. My reaction to casein is muscle aches all over and severe fatigue for 1-2 days. It's like I have been drugged and I can't get out of bed but no digestive...
  11. heli

    ARCHIVED Quote Of The Day

    My older daughter was severly ill from 6 years old until 16 years old when I figured it out and had her tested. I had her younger sister tested and she is celiac too. So, when I handed the doctor (actually avery good pediatrician) the results and said, "she has celiac," She said, "Wow, that is really rare; you seldom see that." My older daughter was severly...
  12. Also try Namaste mixes. YUM! Next time you see that left over chocolate cake break it down into what it really is: POISON. It is not for you. And always have something you can snack on. Nuts, fruit, Think Organic bars ( ( always have some in my purse so that I don't cave & I don't get a headache from going hungry.)
  13. Also, what are you eating when you are stressed? Maybe you are over indulging in those refined grains? Acid reflux & IBS are celiac symptoms not just stress. The gluten free diet is inconvenient but "nothing tastes like feeling good!" I've been gluten free for 2 years and it is the best health choice I ever made.
  14. Most meds are gluten free these days, however many are bound with cornstarch and corn is in the same grass family as wheat, barley, rye. I personally have a huge reaction to all corn products. But to encourage you, over about 14 months I was able to eliminate all 12 daily medications.
  15. CASEIN - "the principal protein in milk." When coagulated by rennin or acid it becomes one of the principal ingredients of cheese. So, casein is the name for the amino acid sequence of protein in milk. In the case of your rice cheese, the company probably went as far as they could with rice and then added the casein to complete the process. So, casein is...
  16. heli

    ARCHIVED Infertility

    After 8 years of marriage I still was not pregnant. Using fertility drugs I did get pregnant. I had very scary pregnancies with both girls. My placenta did not mature and my babies did not grow. I had c-section with both and complications with both. Lots & lots of trouble because of malnourishment so no ovulation and all those pregnancy problems. I wish...
  17. IgG positive really is not specific enough. What you want to know is, "which antibodies were positive?" The panel should have included tissue trasnglutaminase (tTg), antigliadin antibodies, anitendomysium antibodies, and I can't think of the other one right now that is in the standard panel. I'm not sure what the fifth one would be either, unless it is IgA...
  18. I love enterolab. I had antibody testing and fecal fat which were all bad. I also had my 2 daughters tested. One was very sick for 10 years and carries my DQ2. I just ordered the DNA on the younger daughter who also had antibodies to gluten and malabsorption. I finally talked my older brother into DNA, and I talked my Mom into DNA. My Dad died a while back...
  19. Erin - My family has been supportive because I was so sick and now I'm well. When people seem so aghast that I turn down pizza and they say, "What can you eat?" I very nicely (which is hard sometimes) name all the wonderful healthy foods that I can eat, and mention that I make my own bread. I came to the point that I can literally give up any food to feel...
  20. My daughter also was undiagnosed for 10 years. She was royally ill at 6 years of age and by 16 had given up on sports, school, and the future did not look good. I diagnosed myself, then her. You can have a stool test done for your little one that you order on line and does not require a doctor's permission. I highly recommend the testing - I like knowing...
  21. heli

    ARCHIVED New Doctor What To Test For ?

    Donna - I also was misdiagnosed for 50 years. I diagnosed myself and was confirmed by a lab. I suspect all of your symptoms are food reactions triggering an autoimmune response. The suggested blood panel would cover a lot of issues but why? You already know that you have celiac disease - of course you have a leaky gut! You also may know that gluten intolerance...
  22. Don't forget that dairy is more than lactose. Many celiac disease (including myelf) are IgG reacting to the casein milk protein. Being glutenized makes me bloat even if there was no cow in sight.
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