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Nickie

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Everything posted by Nickie

  1. Nickie
    Udi's white sandwhich bread and the whole grain are awesome. I can eat the whole grain right out of the bag with nothing on it. It is so far the best Gluten Free Bread I have ever tasted, I only purchased it because the loaf was the lightest. Also there frozen pizza crust is great too.
  2. Nickie

    ARCHIVED Dapsone

    Nickie replied to hippo33's topic in Dermatitis Herpetiformis

    You should go gluten free now instead of causing you more pain and suffering later. I started getting DH at age 12, 40 now, No one coule ever diagnose it they had no clue. I asked to be tested for in in 2006, finally figured it out then did the blood test and was positivly diagnosed with celiac disease, I started dapsone at 100 mg a day and spent about ...
  3. Nickie

    Happy birthday and may God bless you today!

  4. Nickie
    Hello I have been diagnosed with DH since March of 2006 and have been on Dapsone 100mg since then, recently I spent 10 days in the hospital 7 of the days in ICU, I thought it was just an asthma attack however 4 days after I was admitted I found out that it was something that is called metahemoglobinanemia, which means my blood was not allowing oxygen...
  5. Nickie
    I know what you mean, this is my favorite Chocolate cake!!! You could always try, I think that is part of cooking gluten free, experimentation. Like I said I had to add a little more sugar than normal, but in the end it turned out great. Never know till you try.
  6. Nickie
    I found a bread that is the closest texture to real bread yet. It is kind of spendy but it is good. I got it online at noworriesbread.com. It is $9.00 per package and that makes 2 loaves, I got about 34 slices out of it and froze it in packages of 4 slices a piece it is great.
  7. Nickie
    Just thought I would share this with everyone. My husband made a chocolate cake the other day, non gluten free from a mix. So what happens I want some. I have always made a cake called Chocolate Mayo cake so I said what the heck I will try making it gluten free and see how it does. Worked great here is the recipie for gluten free. 2 cups flour (I used...
  8. Nickie
    Thanks I think I truly do know more than my doctor about celiac disease/dh, because of reading others ecperience and researching on my own. My doctor does listen to me, in fact I said I want the test she had no problems running the blood tests, they came back weakly positive, so I am a little confused on what that means. I put a call into her to have...
  9. Nickie
    Well that would be good. I hate fruity pebbles and cocoa pebbles, trix are not even my favorite but they are better then those two.
  10. Nickie
    Trix have Wheat Starch in them. Just went out to the Generral Mills website to look at ingredients has wheat starch at the end of the ingredients.
  11. Nickie
    Connie What is the texture of this bread. I am new and tried a bread that I bought from the health food store and gagged, could not get past the texture. Is it somewhat close to wheat flour bread? And maybe you can answer this I made banana bread using the Arrowhead Mills Baking mix and there is a sour aftertaste, what ingredient or lack of ingredient...
  12. Nickie
    I love my rice Krispie treats 6 cups rice krispies gluten-free or Cocoa Pebbles might work haven't tried it yet 1 cup light karo syrup 1 cup sugar 1 cup creamy peanut butter Cook sugar and karo syrup till warm and smooth then add peanut butter and stir in well. Turn off heat and add Rice Krispies I add 2 cups at a time, fills a 13 x 9 inch...
  13. Nickie
    Not so sure about that one. I hardly ever get a mosquito bite even when camping. My family gets upset with me. For some reason they hate me.
  14. Nickie
    I have asthma have had it since I was 17, 2 years after I started getting my rash which 20 years later, finally last month was diagnosed as DH. I just did a PFT, and I have to go to a specialist in pulmology now too, cause I have severely bad lungs. So who knows if it was related. Makes me wonder though.
  15. Nickie
    I started getting acne after I was 30 and can relate to the large ones you are talking about, Dermatologist about 4 months called it cystic acne, I take 100mg of Dorxy a day and I can't remember the name but it is a medicine with derma....and mised with a lotion it has benzoyl peroxide and is less drying for me then Retna A. I also take 100mg of Dapsone...
  16. Nickie
    The dapsone has worked great for me. Cleared up and healed except for legs which were really bad. RICHARD....after research I have found that if you have DH you will have celiac disease, hence the positive blood results. Still working on gluten free, living on a lot of veggies and fruit and boiled eggs, cheese haven't had bad reaction to those yet, I hope...
  17. Nickie
    You should have a fresh unscratched blister for the biopsy, and the area around it, when they did my first set of biopsies came back and said it was traumatic dermatitis. So my derm told me to come up anytime I got a new blister to restest again, I did and suggested eliminting DH, he agreed sent it down, sent it down for second opinion and came back positive...
  18. Nickie
    Well, I am glad that I never experienced that although I do have a hard time gaining weight. Everyone gives me a hard time and I tell them I eat I eat LOL. I just got my blood test result, had to go in for a pulmonary test for my Asthma, she told me it was positive. Just makes me wonder for 20 years my body must have been doing battle with intself inside...
  19. Nickie
    See I have read all that, but even my doctor said that DH does not necessarily cause cleiac disease, but I told her that I want to get the tests done to be sure. I have learned through years of going to doctors you have to do your own research and go in there with your gloves on and prepared. HOw much Dapsone did you start out taking. Right now I am on...
  20. Nickie

    ARCHIVED Hormones And Dh

    Nickie replied to elkris's topic in Dermatitis Herpetiformis

    I found this to be true as well. I could also tell how mild or not mild my cycle would be by the intensity of breakout. I am thinking now that maybe it was because of the foods i craved during this time. Who knows.
  21. Nickie
    I have had my rash since I was about 15 years old. (20 years) I went to numerous doctors none of them had any clue what my rash was. I would get the blood and clear blisters on my hands, very painful, could not even reach into my purse without pain. It was awful. And to repeatedly go to a doctor and a dermatologist and to have them have no idea what it...
  22. Nickie
    I agree prednisone is very nasty stuff. I use to take it when I had bad asthma attacks, but now I tell my doctor go ahead and prescribe it, I won't take it.
  23. Nickie
    This is an older post but just joined up. Have your dermatologist check for DH dermitits herptiformis. I just got diagnosed with DH after having the rash for 20 years in many different places, and yes very painful and unsightly. Just had my bloodwork done on 2/27 waiting for results. Might be DH doesn't hurt to ask I actually asked my dermatologist to...
  24. Nickie
    Ask about DH or Dermatitis herptiformis, related to gluten intolerence
  25. Nickie
    Can't remember what magazine it was, but it was the article that got me to ask my dermatoligist about my rash, which just got diagnosed as Dermatitis Herptiformis, realted to gluten intolerence.
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