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gfp

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  • LexieA

    LexieA

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  1. Anyone know how to make barbeque sauce without any added sugar at all? (no sugar, brown sugar, honey, etc.) The only form of sugar that I can tolerate is fructose, in small amounts. I miss barbeque sauce SO very much...so this post gave me hope, maybe you guys no how to make it without sugar :)

    The sugar is mainly needed for the browning. Its the sugar part that does that but pureed fruit or juice as others suggest will do the same thing. If you leaveit out altogether it won't taste that different ... (less sweet obviously but you are probably used to that) so go ahead and try ... it will be less sticky at the end but for the taste just marinade longer.

    If you add no or little sugar obviously leave out the lemon or lime ... etc.

    Baking barbs apricots sound good too, you can use dried ones but liquidise them first into a gel then it will add the consistency. The ketchup is optional ... obviously just change this for tomato puree of you want a tomato bbq. squce.

    Octoberme

    Really put effort into finding gluten-free Soy sauce, its much more versatile as you can use it in many other things as well and its not something you can make yourself.

  2. quite often it might not be that food but a delayed or reoccuring item or CC somewhere else.

    Remember you can get CC just catching a bus ... its not a huge risk but its one of those thousands of tiny risks we do everyday ... for instance you sit on some crumbs and then when your home you transfer them to the sofa then after you wash your hands you brush the sofa or your trousers/skirt and CC. The chance is small but we do hundreds of little things every day ... so you just gotta realise sometimes you will get caught out ...

    Once you realise this then you realise a one off (like Peanut butter) might not actually be the peanut butter ... (or it might be) so I say try again ..

  3. A really good homemade bbq sauce is from Gourmet mag years ago, I can't find it online anymore (I probably have the copy somewhere!).

    It is .....

    1/4 cup soy sauce, gluten free

    1/4 cup yellow mustard, gluten free

    1/4 brown sugar

    1/2 cup ketchup, gluten free

    We have used this for years and I always play with it, you can add ginger, garlic, lemon or lime juice and so on.

    Yep quite honestly can't see why anyone buys barbecue sauce when it only takes a few minutes to make and you can add countless variations...especially if you marinade the meat/chicken etc. since then you spend 5 mins prep and a few hours marinading ... its not like it cuts down total prep and cooking time

    On top of this you can add for instance pureed fruit (less sugar and ketchup) .. honey (less sugar) celery salt (so long as you aren't allergic to celery) ... and for me usually lots of garlic and fresh perhaps galangal with or without the ginger ... you can make it more Tex-Mex adding some coriander and cumin or more far eastern with five spice etc. all really quick and no need to shop specially...

    Quite often I like to do two meats like ribs and wings then I make a lighter one for the wings and heavier for the ribs but its 90% the same ... just add more gluten-free soy to the ribs one etc. or pureed apple to pork ribs etc.

    With a bit of practice it really does only take 5 mins

  4. The Celiac Sprue Assn. has a "doctor" packet which I don't recall if they send to a doctor or you buy it from them and send it to the doctor. The packet contains up to date info especially written for doctors.

    The problem is: would a doctor have the time and inclination to read it?

    This sums it up .... (IMHO)

    Firstly if you have to buy it .. not the cost but because that makes it seem like someone is making something from it... note I said SEEM .. because they are probably just covering costs but its how it seems ... someone has something to sell but that product doesn't offer any return in terms of income for the Dr.

    (cynical I know)

    Secondly the reading part ... again what does it gain the DR ? This again seems cynical until you look at th rest of the stuff MD's get sent to read .... well funded campaigns from pharmacutical companies with tangible kickbacks.

    MD's are just people, most have a life outside of long hours, if they are going to ead something then they will usually read something that pay's them...

    don't know about the rest of us but I know I have a distinct difference in the number of doctor visits and tests I have had since diagnosis. My pre pile contains hundreds of pages and if you throw in all the test results the pile is even higher. My post diagnosis pile is less than 20 sheets, in five years, including test results. How much money is being wasted by them not diagnoseing us? It comes to billions I am sure.

    IMHO the emphasis has got to be about money ... this is what controls the politics of centralised medicine and the economics of private medicine. MD's have nothing to loose by not diagnosing ...

    Debmidge's signature perhaps sums this up ?

    The problem IMHO is this needs not be about personal gain or even some assoc. because it seems all these associations end up with admin, admin takes staff etc. and they end up being a business not a charity.

    If something could be done with 100% volunteers (including lawyers) and then MD's and state health were sued and the money put back into awareness then it would make the most impact ??

  5. Your sister-in-law may be thinking of GlutenEase, which claims on the label that it "assists with gluten and casein digestion."

    If you take a capsule or two before entering the mine field of a salad bar or other area of high cross contamination possibility, you could possibly minimize your symptoms. The same could be said for taking some as soon as you realize you have been glutened. It has, in fact, helped me through a couple of such instances, and my daughter has used it that way, too.

    HOWEVER

    It is not NOT NOT a license to eat pizza and do-nuts. :o:(

    The thing is (IMHO) the reaction is so variable ... at least for me the amount of gluten bears no real correlation to how much I eat. Like many here I have eaten a whole pizza and though I got away with it only to crash 3 days later and I have had the tiniest CC and reacted in an hour.

    Most toxins decay in half lives... that is you get rid of more in the first day than the next if you get rid of 1/2 on day one then 1/4 on day 2 and 1/8 on day 3 (etc.) so perhaps a pizza takes 7 days and a tiny CC takes 6 ... ?? (just exampes)

    However overall I have found other factors make much more difference, mainly general health and level of fatigue, sleeping properly etc.

    At the same time the time to reaction is also variable from hours to days... I might eat something today and not get a reaction until Wednesday ... (Today being sat) .. or I might react the same day...

    Because there are so many possible sources of CC its hard to relate today's slip with perhaps having eaten something Tuesday?? which was the slip??

    So putting this together does the pill work? Does it delay it or accelerate? etc. etc. but most importantly how can we judge if it helped at that salad bar when we might not react for 3-4 days and then we blame something else?

    Herein I think lies the danger in that we take the pill and think the salad bar is OK so it must be something else but perhaps its just the delayed reaction from the salad bar?

  6. Gluten works like a neurotoxin and is, like carbohydrates in general, very addictive. When we stop eating the stuff we go through withdrawal and detox for a while but its only a short 'trip'!

    Just really some pointers so you are not confusing yourself ....

    First gluten is a protein, not a carbohydrate. It comes packaged in carb rich foods but the gluten itself is a protein.

    Secondly the primary toxicity of gluten is as a exorphin, that is an external protein that can bind to the endorphin receptors.

    These are the same receptors that opiates attach to ... withdrawal is in many ways similar to opiate withdrawal.

    Some people get it bad and others less so ... so in answer to the OPS question ...

    Can anyone explain why fatigue happens when going gluten-free?

    This is partly the exorphin withdrawal ... unlike morphine gluten doesn't quite fot the receptor and hence the process damages the receptors. When our body thenwants to give us a boost it releases endorphins (via a whole chain of stuff starting with seratonin if I remember correctly). However the natural "pick me up" cannot bind to the damaged receptors.

    On the other side, where are you and how's the weather? Do you get out and get some fresh air? etc. etc.

    Others mentioned depression and this is easy to slip into with gluten withdrawal. Its not so easy to do as to write but get out and get some sun and fresh air ... tire yourself out physically and get some good sleep, its also possible your not sleeping well (as in not quality sleep) .. again the seratonin chain being messed.

    Back to AliB

    The low-carb diet might not be helping.... carbs are much easier for the body to digest and provide energy. If you don't eat enough then the body will use the protein you need for recovery.

  7. A lot of posts just seem to dissapear ...?

    Just accept it as part of this forum I guess ...A sometimes post replies that just dissapear into the ether (this one might) ??? but its a commericial venture ... I guess the owner decides what is allowed and what is not. (and the "rules are basically only applied as and when)

    The most frustrating are the ones you research and reply and then just dissapear like you never replied... so I rarely do that anymore since so much censorship goes on, no point posting references and links if they just get deleted.

    See now I posted this and took a screen shot but lets bet it disapears in the next hour or so ... I'll post the screenshot elsewhere :D

  8. That is possible. Remember that your small intestine is something like 22 ft long, and celiac is a patchy disease. So, it is possible that the area that they biopsy is not yet affected by the disease. Most doctors will take a few biopsies from different locations, but that is something you need to discuss with him.

    You blood result is positive. The blood tests for Celiac don't give false positives, only false negatives. And the TTG test is highly specific to Celiac disease. It has to do with the immuno rxn in your intestines.

    I would also discuss what the Dr. will interpret a negative biopsy as.

    If at the moment they are happy then you get a false negative biopsy how will this affect their view?

    Sometimes less can be more ...

    On the other hand if they view the biopsy as a way to view the extent of the damage (not diagnose celiac) it can also show the amount of damage and whilst they are in there they can check for other things.

    The danger is the biopsy comes back negative and you then end up in no-mans-land of celiac or not ...

    One thing is for sure, if you are going to get it get it ASAP. Once you go gluten-free you will not want to poision yourself deliberately for several weeks just to get a 'gold standard'

    Thanks. My next question is how gluten free are celiac sufferers suppose to be? Can I eat it once in a while or in small doses? Are there different levels at different degrees? OR, do I need to give it up altogether down to the last crumb forever?

    You are going to get a bit confused, don't worry .. we all did

    First yes 100% .. the problem so far is you have no idea what that means .. (really)

    Unfortunately neither do most doctors or even GI specialists.... its one of those things that seems simple and when you look in depth seems really complex...

    HOWEVER... its actually complex but still easy... like driving a car or riding a bike... it seems impossible at first but soon it becomes second nature... inbetween you will probably have times when you think "I'll never get this" or "its not worth this hassle and stress" .. trust us, it is and once you get it off it is actually really easy.

  9. As others have pointed out, if your mom keeps going on about it it's because she doesn't think you listened,

    I do the same thing ...

    What gets it out of my system is the other person actually listening all the way through (not sidetracking or going off on a tangent or walking out).

    If you do this ONCE then she knows you got it and it will be easier for both of you.

  10. Thank you for all of your advice I'm sitting here with a pen trying to get it all down. Nothing seems to be getting rid of this headache though. I had my biopsy today, Oh what fun. My GI specialist said I needed to adopt a high fiber diet but this confuses me because I eat tons of high fiber foods; popcorn, brocholi, culiflour, zuchinni, rice etc. basically everything I eat has high fiber content. Perhaps I'm simply not absorbing it because of the celiac disease?

    No because you don't adsorb fibre, that is basically what fibre is... (the part of food that is passed through in simple terms).

    Rice, especially white has not so much fibre... basically its the part that is gotton rid of in white rice BUT the figures can be misleading because they often refer to uncooked rice. Hence per oz or hundred grams uncooked it appears quite good but when you adsorb all that water there is little left percentage wise.

    Zuccini is similar, its lots of water .. take away the water and its not much fibre ... however eating food naturally high in water like zuccini, celery and cucumber is pretty good overall.

  11. Hi gpf,

    No offense taken. Its just your comments were a little pointed to what I had said using non usual ways to deal with pain overall.

    Sorry it wasa quick answer before work!

    My kidneys were badly damaged years ago which is why I don't like to rely on ibuprofin and tylenol, plus I am actually allergic to aspirin and most antibiotics (though there is one kind I can have and have had recently--but this for me is a rarity since I am less than anxious to go on them willy nilly for obvious reasons).

    As I said, most over the counter pain meds have a rather stressing effect on one organ or another.

    Because of the connection between "pleasure" and "pain relief" there is actually a lot of bias against the more effective ones which are also seen as recreational drugs. Codeine is far less bad for you than tylenol or asprin on a pain for pain-relief basis but authorities like the FDA worry that because it is addictive people will abuse it. Unfortunately ... when people are in severe pain they will also overdose on asprin or tylenol.

    Thus my search for alternatives, as you might well understand. We all take our own brand of risks. Taking fibronylitic enzymes and garlic regularly greatly reduces my chances of getting a blood clot as well as gets rid of scar tissue both in injured muscles and villi by the way.

    More importantly they actually deal with the issue NOT simply relieve it.

    Recent research shows the damage from migranes can be very similar to mini-strokes and some research actually classifies them as mini-strokes with the same brain damage caused.

    And oh, I forgot. I used to make feverfew tea and found it really did help against migraines. But avoiding the allergens helps even more! The straight herb from the bush worked better than the

    tincture by the way. Now I know why since the tincture was made with (gluten infected) alcohol.

    I might have to look into this ...

    Very interesting info gfp.

    I was in extreme pain following outpatient surgery in October. I was given hydrocodone upon leaving the hospital, but that night it was clearly not sufficient. So my surgeons nurse called me in some Talwin pain med, and some Phenergan (P) for potential nausia from the Talwin, so she said (she is a very kind lady and I tried to give her a very thoughtful Christmas present)). All I can say is the combination finally knocked my ass out. You can't feel pain when you are definately asleep.

    I believe it does both .... the fact you already took the hydrocodone is probably the reason. You can only metabolise so much in a certain time ... the promethazine increases metabolism of the hydrocodone (more is converted to morphine in the liver) ... However as above ... they could have just given you morphine to start out but its "frowned upon" ..

    I think mostly its so much covering their ass ... my bet is the surgeon would have a colleage prescribe morphine if they had the post op pain but for a patient they give something less overtly contravertal?

  12. I agree with you, if you find something that treats the situation use it. However sometimes that's easier said than done. I was too sensitive to take the usual drugs. Going off milk products (except for org. nonfat yogurt) and eggs seemed to resolve it finally for me. However it took years to figure that out. Going off gluten of course also helped greatly but did not do the whole trick. Even now when I get CC'd or am otherwise poisoned it can come back--but I find for me the Yoga and pinpointed muscular manipulation (not massage-more like pressure point and not on the head itself) really does help go along way in doing the trick. I think taking magnesium and more absorbable calcium helps me too plus detox herbs.

    And yes I used to get 1/2 my face swollen, visual distortion & extreme pain way too frequently. It seems all the women in my family get it and I am pretty sure its connected for them too with the celiac and other food sensitivities as it was for me. I am not as familiar with men getting migraines as women, even though I know they do.

    Again as far as yoga goes, they find meditation of whatever form changes one's brain chemistry positively and for some quite powerfully. Too often migraine sufferers tend to be perfectionists after all--so we carry around a lot of stress that needs to be relieved.

    Yolo, my comment asn't really directed at you (as much as people reading the thread)

    However its interesting that you say it comes back when glutened.

    I used to get a migrane at least once a month and it would last up to 2-3 days on occaisions.

    Now they are a thing of the past except very infrequently when I'm glutened ....

    Anyway, they are the number 1 cause of strokes in young to middle aged men (they are no less dangerous as you get older but other things become number 1)

    I'm so glad they are behind me now as long as I don't get glutened ...

    I'm not a great one for dropping meds at the drop of a hat but .... these are one thing i don't mess about with ....

    Unfortunately .. the ones which work best tend to be restricted and even though my GP can prescribe coedine she has to be careful how much or it attracts attention.

    The shame is (IMHO) that many over the counter meds like tylenol, asprin and ibuprofen do serious organ damage before they are actually VERY effective.

    Also because of the way many are metabolised you need to take a full dose not take a little and see how it goes for any pain that gets worse by itself...

    (I guess I need to explain that)

    I headache can cause a worse headache simply by the pain and stress so taking a tiny dose often does nothing but taking th rest later messes with its metabolism so you never get enough to be useful but you do get enough to stress your kidneys or liver or stomach (depending on the meds).

    Its always a hard call of course but I usually either put up with it and try and relax or take a decent dose since anything inbetween just messes up (i.e. it would have gone away anyway or it wouldn't)

  13. An old trick I used to use for my migraines was to put my hands and feet into pans of hot water. It pulls the excess blood out of the brain. I found putting 1/2 teaspoon cayenne powder in water and gulping it down helped too--though its not for the fainthearted--and requires a strong stomach. It creates quite a jolt but that shock can sometimes cure a headache.

    Just a point .. migranes shouldn't really be put up with. They are actually dangerous (more so in men). Much as Yoga and herbal stuff can be great for mild headaches if you are getitng a migrane the best thinig is to treat it before it develops as they do a lot of damage to your system regardless once they do.

  14. A statement such as "most (headache) pills have gluten" is IMHO very over generalized, and most likely over exagerated. I take generic acetaminophen and iboprofen and have not had a problem.

    best regards, lm

    True but it can seem that way sometimes !

    Often generic seems less so than brand name. I guess because the pills are 'packaged' cosmetically ? Mostly 'own brands' seem better for being gluten-free and they have the added benefit of being cheaper ...

  15. Depending on the severity ... generic ibuprofen (find a cheap brand and check the product sheet then stick to that brand)

    Severe I get prescrpition codeine phosphate. Combined with Promethazine which doesbles the efficiency of conversion into morphine in the liver it is quite effective so long as you don't need to drive etc.

    Promethazine can be bought over the counter in the UK as an allergy med so I can get double the effect while my GP doesn't need to prescribe as much Class A ...

  16. Every legal cheese label should have a phone number where you can call to ask if the cultures/molds they use are gluten-free. Most blue cheese companies are used to this question - and the specific mold which causes the blue to occur is penicillium roquefortii (possibly there is one less i). I've never heard of a blanket penicillium problem - these pen-mold strains are also used to make "white rinded" cheeses such as camembert and brie. Fungus derivative (mucor muheii) is used to "set" many cheeses and is called "vegetarian" rennet in the industry (which makes curds out of fluid milk). I don't believe it is active in a finished cheese, but I am a cheesemaker, not a food scientist.

    I'm sure your cheese counter person is doing their best, but is not in the business of making cheese - so better to call direct if you have any concerns.

    ps: I make blue cheese, and our blue mold straight out of the bottle is not considered gluten-free.

    There are a few permatations ... Blue cheese can be split into 'authentic' blue cheeses and copies. (and some between just to complicate matters) ...

    A 'pure' blue cheese is started with live but native penicillin. In a real authentic blue cheese this is native to the caves where it is matured. In some cases a gluten-base is used to kick this off and in others it is transferrred via spores naturally.

    Sometimes an example is easier ...

    Several cheeses are legally allowed to be called Roquefort. The criteria is the sheep must be grazed in a certain area and the cheese matured in the same area but the area is reasonably large.

    Within this area several manufacturers use different methods of infection. Roquefort Societe uses a natural infection with no gluten based host. Roquefort Carles uses a rye based host which is placed in the cave and the mold injected into the cheese. (Hence CC)

    Baragnaudes (owned by Societe too) is also naturally infected but with a different strain of P. Roquforti native to a specific cave system.

    However ... until recently bleu d' auverne used a native P. Roquforti but they are now legally allowed import the southern strain. How they do this probably differes from manufacturer to manufacturer. Some still use the native (inferior) strain.

    If the cheese is not authentic (i.e. illegal by WTF laws but legal by US laws then all bets are off) This is still more complex as the cheesemakers themselves break international law selling the cheese to the US and UK since these countires make it difficult to sell real unpasturised blue cheese.

    Even more ... the UK squeezed out its own cheese market by allowing a monopoly to develop. Hence now great classics like Wenslydale (of Wallace and Grommit fame) are not even using Ewes milk anymore but pasturised Cows milk????

    I lament this as a cheese lover ... even more so since I can't get away with much casein!

    So ... basically call the manufacturer on a case by case basis is really the only safe way...

    Finally, all this goes out of the window if your cheese shop is using the same cheese cutter !!!

  17. Which fast food/restaurant fries does everyone eat safely (as long as the fryer is dedicated)? I don't want to start the Mcdonald"s debate, just wnat to know where everyone goes to satisfy their cravings....Thanks!

    I don't really think eating out anywhere is 100% safe but especially not fast food. You will probably get some good examples but bear in mind a dedicated frier is only as dedicated as the attention paid to it.

    I really doubt any fast food place is going to empty the whole frier if something falls in ...

    So long as you bear this in mind, then you take (and minimise your own risks). (which is as much for anyone else reading this)

    As far as fries .. erm I make my own... I'm not going to risk making myself ill for something I can make in 10 minutes or so ..

    (certainly as far as cravings gos anyway ... if push comes to shove and I haven't eaten for over 48 hours and don't see me getting anything safe in the next 12 I might take a risk ... however this hardly ever happens, usually you can find somewhere sells some fruit or something safe.. All I need is enough to stay conscious until I can find something safe.

  18. FIND A NEW GASTROENTEROLOGIST NOW!

    I think we've all had doctors like this. There is not enough awareness about celiacs amongst the medical community. I basically diagnosed myself before going to my GP and demanding tests and the name of a good gastroenterologist. This followed years of being passed around by doctors telling me one of three things:

    Unfortunately true !!!

    You can usually tell if they are interested or .... its just another patient on another day. If the MD/GI doesn't respond and LISTEN its going to be an uphill battle. Even when they acknowledge one aspect you will need to fight for the next.

    Easier to get a GI that is aware or willing to listen...

    One day it might be "something else" and you don't need your GI having put you in a mental cupbaord of "obsessed with XXX"

  19. !!!!! :D You are helping me a lot! Now I understand completely but thank you for making me feel free to ask if there was anything not clear!

    The pain in the chest you are describing is exactly what I felt today. And that pressure at the base of the throat....Oh yes it is horrible....so that is a symptom...Good to know I pobably not gonna have my first heart attack......

    Its also quite treatable (short term).

    You possibly keep coughing too (or clearing your throat). Pre-diagnosis I had this so bad I was breathing in so much stomach acid it paralysed my lungs.

    Omneparazole will stop the acid (short term) and make sure your bed is elevated at the head end (A few thick books under the matress etc.)

    Acid reflux can feel like a heart attack ...the good news is its not. If you can get the omneparazole then it will relieve the stomach and this will give you some rest.

  20. I know that you want to be as reasonable and nice as possible in all of this. But it is imperative that you document EVERYTHING and have a formal meeting with the teacher, the principal, you and one other parent (to serve as your witness).

    Sorry, I have to agree.

    The bottom line here is that the teacher deliberately ignored you...

    She really needs a good kick up the ass but I think you will have to make do with the meeting and take a witness.

    This is likely to happen one more time ... the teacher sounds like one of those "I know better" types so I doubt you can change their mind so instead you need to scare them ... (in other words this teacher needs treating like a child since they obviously cannot be trusted to act like a responsible adult)

  21. I removed wheat and feel soooo much better. She was happy, but angry that I did this on my own.

    So you need to ask her whatever you don't eat?

    Lets say you had dental work and stopped eating chips because they were hurting ... do you need to ask her permission?

    I explained that it would come out negative due to not eating wheat. She said that was a myth (UGGHH!!)

    If it was a myth then why should celiacs not eat gluten? Isn't the idea the villi will mend?

    Firstly a biopsy is never reliable as a negative, they don't test everywhere let alone 1/1000th the area of the intenstine so its easy to miss.

    The longer without gluten the more repair the less chance they find a damaged area.

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