gfp

Thanks! .. What's bolgnaise??

Sorry BOLOGNESE !

or do you really not know?

I smell a lawsuit...celiac disease is a protected disability...

If they were accomodating other disabilities (wheelchairs and the like), they're in trouble.

Well fair enough i don't know US federal law on this but I really don't see how.

My girlfreinds mom does a lot of charity work for a foundation where they accompany people to different venues, especially wheelchair bound people who's carer might need a break. Being an artsy person she gets a lot of museums, galleries and sometimes concerts... but especially concerts in historic venues (its a big thing to have a concert in genuine Roman ampitheatres or chateax etc....)

However they have to really make sure in advance because of safety ... not just the person i the wheelchair but everyone else. I was at a recent outdoor event where people we packed in and behind a special enclosure for wheelchairs and each person had 2 extra security people to physically carry the disabled person in case of an emergency. (and I'm guessing help out with toilet facilities) While this is great you can't just turn up... you can't just let a wheelchair into a surging crowd of 30,000 people ...

However I have to say at the same time there were NO FOOD issues. You could take any food or drink in so long as its not in a hard case or glass. There were hundreds of food stands, non of which I personally tried but one was selling cheese and saussicon (the cheese probably being OK) with glasses of wine... and people were buying bottles of wine and the staff decanting it into plastic water bottles or you could take in a plastic water bottle full of your own alcohol...

In the same way this was a private venue... if they only want to allow people they choose surely its up to them?

In the words of Randy Newman

They got little baby legs

That stand so low

You got to pick 'em up

Just to say hello

They got little cars

That go beep, beep, beep

They got little voices

Goin' peep, peep, peep

They got grubby little fingers

And dirty little minds

They're gonna get you every time

Well, I don't want no short people

Don't want no short people

Don't want no short people

'round here

Plenty of private venues have "You must be this tall to ride" signs.

Aren't any of you scared of cancer at least? I will not risk my life for the sake of eating out.

Not really, most of the old studies on this are fundamentally flawed since their control population is presumed to have an insignificant number of celiacs (1:5000) when in reality it has 1:133

However the other reasin is in its simplest form cancer is caused by mutation in cell replication.

In other words the more cells replicate the larger the chance.

If you are celiac and eat gluten daily then the cells are constantly being attacked and hence forced top regenerate and the cells of the intestine are not "designed" to do that unlike for instance the stomach.

Hence if you eat out and are careful and say get caught out 1-2 a year its no big deal... compared to daily.

Sure its not nice etc. but the risk of cancer is correspondingly smaller....so I think if you keep eating out as a non regualr thing and are careful then the risks are controlable.

Well, I have all of her lab work that I recieved this past Friday at the hearing. After reviewing the records, I feel a lawsuit would be so easy to win!! I don't know how to diagnose celiac, but my daughter has a lot of tests that came back favorable for celiac. I have no problem sharing the whole story.....I just wasn't sure if everyone else wanted to hear it. I am planning on going to the media early this week. If you'd like more information then e-mail your phone number, and I'll call you. It would take to long to write it all. I do feel Celiac moms and dads need to be aware!!!!

Bree

Bree, if I can suggest start a new thread specifically on the tests...

Also we can offer you endless help on coping with celiac, it seems so hard at first and its really not...

Try and keep a thread on each type of question (gluten-free living, test results etc.) and you get better responses that way.

After what you've been through we will all pull together I'm sure and help you understand celaic and how to cope...

Incidentlally.. before you do a press thing... make sure you throw out your "contaminated" stuff.. it won't hurt publicity wise... and it will really help you coping wise!

You know you might think of being tested yourself as well...

Uhhh... after reading (or trying to) your post, I was sorta guessing YOU were a molecular biologist or something.

Nah, Im a geologist... (well geochemist) but ion channel research is a fast track to a Nobel prizxe nowadays!

Honestly its horribly complex for even a chemist cos its not REAL chemistry its neuron cellular chemistry and how for instance muscles actually work... (how the elctricity is generated and used) ...way beyond me so I can kinda follow it from a chemistry and biology standpoint but don't understand it well enough to explain!

Seriously I think most specialists would be amazed anyone had even heard of it!

Anyway here is the wikipedia ion channel (so far as i can tell this looks OK but really I couldn't say....)

Open Original Shared Link

the single molecule water .. I can't find...but it refers to one ion at a time crossing the barrier (i think)

If you read and understand this then you know a lot more than me!

oooh just read it and it mentions MS and dendrotoxin!

Got a good recipe??

Yep sure

for a classic quick bolognaise ....

Start off and chop onions and start frying (1/2 onion per person is about right if you are adding meat, if its a neapolitan more onion and no meat)

Add a teaspoon to table spoon of mixed herbs and when onions softens and some salt and 1/2-1 clove garlic per person sliced thin or crushed (I use the flat of a knife to crush .. pull off the skin then chop having just cut off ends ..really quick way faster than a garlic press! ) salt to taste...

Then meat if making bolgnaise then add tomato puree once meat starts browning (table spoon per person is fine)

stir it in then add 1 tin tomatoes per 2 people ... a gluten-free beef stock cube pre dissilved in cup of boiling water and about another cup of water per person ....

When its nearly ready add some corn starch to a cup and slwly make to a paste with water... then add enough water to make a decent amount of sauce and stir in... (just make up a lof of corn starch its cheap... and add enough .... so when its back on the boil its the right consistency)

....

leave to stand while you drain the pasta (timings should be about right) and then add grated pamesan.

I'm making the kids spagetti and I was wondering if anyone knows about ragu spag. sauce? It looks okay but the whole natural flavor thing has me wondering....

Honestly why take the risk when you can make one from scratch while the pasta cooks? I mean its probably OK but if you used tinnned tomatoes you can make a pasta sauce in the same time....

Lister, you are very young, your chances of it being cancer are low.

I thought you didn't communicate with your dad?

Yep and his dad winding him up like this i can see why...

I saw one that I thought was even more ridiculous. A local health food store was selling this "single molecule water" whose supposed benefit is the oxygen is separated into your body better or something. Talk about insanity (unless someone can prove to me that there is a type of water that is NOT single H20 molecule). Needless to say, this special water cost quite a bit more than tap water or nearly any other water.

Single molecule water actually refers to a bound molecule... its a biochemistry term used in relation to cell level permeability ion channles in cells.

For instance mamba's use a toxin known as dendrotoxin which blocks the K+ channel ...

Interestingly for us:

This is connected with spinocerebellar ataxia and MS....

Quite what the health food place mean by this is another matter

Technically all water with salts in is disasociated ionic but because of the hydrogen bonding this is never quite 100%...

Any futher info I think we need a molecular biologist....

Yea, that makes since. But why is flax a seed but not a grain? Never seen flax grow but I am under the impression it grows on stalks like wheat or oats and has a head.

Steve

A true cereals are grass family.

Oops! Didn't mean to pry!

Well you really weren't to know... I just thought people should realise why I was being evasive... I guess everyone understands if i put it like that

Can I suggest the good old fashioned lots of fruits?

Figs and prunes are pretty efficient....

In a real emergency a massage with blackpepper oil is prety much guaranteed.. but it will clean you out completely..

I have a feeling you and I could have a very interesting discussion on religion, but I'm afraid no one other than you and I would enjoy it too much. We'll have to save it for if we ever meet in person.

Actually the priest was also a interesting person to talk to....

The thing is it ran a bit deeper than divorce but I'm not going into details of my mom's sex-life here

Both of you....

If you want I will set you up a website where you can help share this with other moms and also post things like cases you find oput about....

I hope both of you keep up the good work after you get your kids back... so if either of you or both want I can make you a website (obviously for free - hope I don't need to say that) where you can post items to help out people I the same situation....

Just drop me a pm and I can make one in a few hours and help you get started.

How can a priest have such poor formation???? Ugh. I had to talk someone into the fact that yes, they have celiac and cannot receive the Host ... yes, we do believe that the Host is Christ, but the problem is that he took on the form of bread, which has gluten. It's not a test of faith, nor a punishment! Suffering, it is that, that's for sure! I agree, gfp, it is a shame when someone loses their faith over bad experience or another's poor formation. And, it's definately a free choice.

Fiddle-Faddle, good point. I don't like that either. I think that everyone is on their own journey ....

Chelsea, I don't necessarily think it got heated, I think everyone did a good job this time of talking about religion and still respecting others positions! I just think that whenever the subject of religion comes up with those of differing beliefs, that there is conflict, but as long as it's with respect, we can all learn from each other. I mean, I disagree completely with gfp on the existence of God, yet I agree with some things he says and respect where he's coming from, and enjoy chatting with him ... it's just that in these discussion we all need to remember that it's fine to put your ideas out there, but it's not something everyone is going to agree on ... and it's our differences that makes this world interesting!

Steve, just curious, was it an Anglican priest or a Catholic priest? I grew up Anglican/Episcopal, but converted to being Catholic in 1990. My grandfather's parents came over here from London, so our family has an Anglican background, sort of.

He sadly died a few years ago but he was an Anglican priest but very very close to catholic .... (latin in services and even confession) ... but seriously he was a nice guy.. he just believed this was the reason... but he was nominally Anglican but attended a lot of catholic seminaries with the blessing of his bishop whom I also used to know.

How can a priest have such poor formation????

I agree, gfp, it is a shame when someone loses their faith over bad experience or another's poor formation. And, it's definately a free choice.

Do you mean formation as in French? (=training)

anyway... the point I really want to make is although I personally view religious faith as misguided I would much rather see someone continue with their faith and be happy than loose it over a bitter experience....and be miserable for the rest of thier life.

Perhaps being outside gives me a different perspective .....?

Its the same in the other direction.... if someone is coerced or threatened to convert then what does that mean? Threatening to kill someone unless they convert or recant is not the point.... and even I as a non beleiver can see that!

For instance I have many Muslim friends who have urged me to convert to Christianity... not a single one has ever suggested I convert to Islam because they believe I will still be saved as a Christian or at least judged on my merits.

What the priest said was really like this... he wasn't a bad person he was a good person but IMHO misguided in more than one area.... and he wanted to save my mother for the sin of divorce.

I agree with natalunia, that constant thirst like that is a huge red flag when it comes to diabetes.

Perhaps the water thing is all from gluten-consumption / celiac, I do not know. But, I'd be watchful of your blood-sugar too. If you want to periodically check it, Walmart or many drugstores sell those skin-prick type meters (the test-strips cost more than the machines it seems). I did this for a while just to be sure my "issues" were not from something other than Celiac. I was trying to speed the diagnosis along since my doctors were a bit useless on their own for lack of believing I cuold have Celiac.

Also, the salt thing TestyTommy said has some merit too. My BP was low for quite some time. A cardiologist I saw told me flat out to "eat more salt" and salt my food, etc. to get the numbers up, since lack of salt could contribute to hypovolemia (spelling?) which results in lower pressure. The one thing all my doctors missed that I still find inexcusable was that the entire time I was anemic, which surely contributed to the low BP. So, I'd just recommend having basic blood test done too (red count, etc).

Getting your body in balance after Celiac seems to take time and practice. Getting proper amounts of vitamins and minerals, especially a proper balance of electolytes, is challenging for many, but moreso for us I think. Sodium and potassium balance is important, magnesium and others. Especially if you have malabsorption issues from disease.

I'm all for the more salt... those diarrea packets contain a balanced solution BUT its in glucose and the other thing you should do is check your blood sugar.

The easiest simple way is to ask a diabetic friend..... make sure you know the correct GI and if its anytihng off this see a Dr. ... and don't start huge amounts of glucose... first.

If your blood sugar is normal at different times of the day (ask a knowlegable diabetic when the test times are) then the sachets are really simple and could get you cback on track quickly... make sure it has K and Mg as well as Na.

edit

Oh and don't drink low sodium water, its a con and dangerous, especially in large amounts.

I have had reacurent boils for over two years now. I was on Antibiotics for over three months straight taking them 4x a day. Eventually they seemed to have stopped the current infection but I soon had another outbreak. I don't get one or two at I time. It starts with a few and before I know it I have fifteen or twenty of them under one armpit (I get them under both). Boils as you know hurt regardless but being were mine acure it makes it hard to function being you use your arms for most everything. I have decided not to continue with antibiotics because I would be on them everyday of my life and they don't seem to make much of a difference in the end. So over all I would say they don't work for me.

yeah both my mom and myself have always had these boils, they superficially look like zits but they are not.. they usually occupy several follicles not a single one...

I have a feeling they are related to celiac... maybe the body expelling toxins?? since my mom and I get them but my brother non celaic doesn't.

Both mine and my mothers have really cleared up since going gluten-free... my worst ones tend be along the spine and I remember lister posting about them... but now when I get one it tends to be huge... they also seem related to glutening incidents but weeks later.

Your armpits are very close to the lymphatic system. (perhaps something to consider looking for answers)

guess that's out!

Quite literally....

I wonder if promethius had anything to do with it....

Literally GM is a pandora's box. Noone knows what's inside the only certainty is once the lid is off its not going back inside.

I get freaked out sometimes. I went on a family trip and there was gluten everywhere. I must have washed my hands and my plates a million times. I think the worst for me is when I'm in an environment I can't control (not my house) and when I'm eating new food.

I would recommend getting some staples that you know you can trust. I have pretty much found a brand for everything I want to eat and I very rarely try something new.

Also, if you can make your food at home (pack a lunch for work and anywhere else you go) and don't eat out for a while, you might feel better.

OK, I was going to say this anyway ....

This isn't in your head and you have to be very careful. I'm a drug rep and I eat lunch with doctors several times a week. They usually ask why I'm eating different food so I explain it to them. I can't tell you how many doctors have told me that this is extremely rare that they have never had a patient in 25 years. That I'm the most sensitive person they have ever heard of. I usually say check out celiac.com there are about 9,000 other people who have it and most of them seem to be as sensitive as I am.

But should we laugh or cry????

Have you thought of carrying literature in your briefcase? Especially ones showing incidence in the US.

you could really educate a lot of Dr's very gently by "just having a copy" in your briefcase you were taking to read on the plane, car etc.

eKatherine, LOL, I was reading some of those other posts on that site and OMG reminds me of the time I found a cockroach in my MOUTH after taking a bite of chinese food... Oh it was so disgusting. I just never ate there again, but I should've tried to get compensation for pain and suffering!

Personally I hate cockroaches.... I have lived in many 3rd world countires and I really hate them BUT they are not going to harm you if theyre cooked. You can't really sue because of your sensibilities??? I mean people in china eat them all the time...

Open Original Shared Link

Sells "The Compleat Cockroach" complete with breeding tips and recipees.

Now personally I don't fancy trying the critters but I have eaten locusts and they aren't bad.

However even my cat wouldn't eat a raw cockroach... and he actually learned not to kill them (since he then had to clean himself)... you could see him.... cat instincts saying kill..kill.kill... and him mewing pitifully in self control.

ooops: Forgot to say my other suggestion....

You could write back and say you will not accept the money as you are only interested in the gluten-free status but if they insist they can make the cheque payable to your charity of choice.

Oh boy, won't this ever end?!

Look, all I'm pointing out is that a lot of people have an allergic reaction to molds. That includes penicillin. It's just like a product label stating "this product contains soy", or "this product may contain peanuts". Why do they do that since both of them are regarded as healthy, good things to eat? Even gluten-filled foods carry such warnings, not just gluten-free specialties.

I'm pedantic by nature! Honestly I'm not saying this against you I am just standing up for the poor and misunderstood molds.

Molds is just a label but its not a scientific taxonomic classification. Its a humanocentric classification ..

For instance as I'm sure you know many "nuts" are not nuts. A brazil not is not a nut.... but we call it a nut because it looks like a nut. Because we are human we class a whole set of completely genetically different things as molds. However we have a different view point about molds... but that's all it is a viewpoint.....

Its like many insects are both edible and healthy as are many worms but we think yuck insects or yuck worms .. because they have a connotation of being yucky. More specifically you could say pigs are yucky to Jews and Muslims yet I find them delicious ... I know many Jews and Muslims who do not eat Kosher or Halal and don't think twice before tucking into grilled octapus or steamed lobster but pigs have a special cultural place. i even know lots of atheist "Jews" and "Muslims" who have no rational belief that pork is bad but still find it distateful and don't eat it....I even have one friend who makes a point of eating anything non-Kosher whenever he is out of Isreal ... he is completely athesit and if we go for sushi he picks squid and eel because he can't eat these in Isreal... but he still doesn't eat pork and freely admits its just a cultural thing however he has eaten it just to show he doesn't worry about eating it....

Mold is like this... its a culturally yucky thing... indeed we call different members of fungi according to yuckyness .... but its not based on any real logic.... sure some moulds are bad but lots are good.

We have other categories like "beast of burden" which are very seperate species such as a horse and an ox and a camel. If you are allergic to horse you are unlikely to also be allergic to camel but if you are allergic to camel you might be allergic to llama.

The point is mould is just a catch-all term.... their only real similarity is at a very fundamental level (fungi) so its different to soy or peanuts (or even nuts).... its like this product may contain animals or this product may contain plants.

Oh? Well here's my exact words, in which I say no such thing:

Well, AFAIK the blue stuff in the cheese is mold, and that can really cause all sorts of reactions in people. I know I couldn't ever have anything like that at all. There are a number of potentially toxic substances that come with the mold. I would not recommend blue cheese to any Celiac. Anyway, I'd guess that if the mold is grown in a wheat substance, then that would be a gluten source.

Perhaps it's a matter of semantics. In that case, let me rephrase: I do not endorse the consumption of mold by Celiacs.

Here's a quote from Open Original Shared Link:

Penicillin is a common cause of drug allergy. One clinic found 2.5 percent of their study group reacted to penicillin allergy skin tests (IgE antibodies). Anaphylactic reactions to penicillin cause 400 deaths annually among Americans, making penicillin allergy a more common cause of death than food allergy.

Here's an interesting explanation of blue cheese:

Open Original Shared Link

The article is wrong.

Here's how Roquefort cheese was originally made:

The farmers would collect the milk, curdle it with rennet, then scoop the curds by hand into molds. A powder made from grating moldy bread was sprinkled into the curds . . . The bread was stored in the same damp caves that aged the cheese, and in a few weeks it turned blue and was ground to dust for cheese making (reference 1)

French cheese makers generally don't risk uncertain quality control by allowing their cheese to acquire its mold from the Roquefort cave air and soil, and instead use a starter like most cheeses.

Both of these statements are wrong....

Baragnuades and societe both use natural propagation fro the caves, papillon uses bread.

There are a number of potentially toxic substances that come with the mold.

Exactly how toxin? Salt is toxic... vitamins are toxic....

......... and these "toxic" substances are also taken by many people in the form of suppliments.

Strangly enough if you look at metrics like longevity and infant mortality most of the countires which eat "live" cultures live longer and are healthier than those who sterilise all their food.

Most mediterranean countries eat unpasturised blue cheese and raw meat frequently yet they live longer than people in the US and UK.

I'm not saying they live longer because of this ... but if it seriously detrimented health you certainly wouldn't see them living longer.

Moulds are extremely diverse, they don't even all belong top a single division (phyla) their only relation is that they are all fungi.... related at the same level as a dog and a sponge or dolphin and a frog. Some reroduce sexually and others a sexually and some both....

Some frogs are deadly poisionous and others are edible.... some fungi are edible and others are deadly poisionous... some animals like crustaceans cause allergic reactions but this doesn't mean that chicken is bad ... should we avoid chicken because a distant cousin a crab causes allergic reaction? Or should we not eat plants at all because some are deadly toxic???

This is like any of the recommendations made on this board to watch out for things such as dairy, soy, nuts, corn, etc. Many of us can eat one or more of these, and many find one or more of them unsuitable. Yet we tend to include at least a few when suggesting possible causes of reactions, because they are things which more often cause problems for Celiacs. I hope that sets the record straight. Now lets move on, shall we?

You cannot possible NOT consume molds and fungi in general... they are in the air you breath and on the food you eat. Indeed they in many cases protect the food you eat from bacterial infection...

The point is they are as diverse as a elephant and a frog.... Penicillin is not any ore related to Stachybotrys or Chaetomium than the elephant is to the frog, indeed the elephant and frog are a lot closer...

More importantly penicillin inhibits many dangerous bacteria such as Bacillus, Listeria, Staphylococcus, Streptococcus, Enterococcus, and Clostridium while at the same time not harming many useful bacteria needed for digestion. This is species dependant and roquforti is very good and preventing harmful bacteria and leaving the good guys. Colonic bacteria for instance tend to be gram negative and are not inhibited by roquforti only by specially derived relatives such as ampicillin.

Wasn't trying to offend . . . I was just giggling and thought I'd share it.

I'm not offended really I'm just more concerned with others reading the end of the thread.... who might not have the same level of faith but still rely on it and to have been told elsewhere that god is punishing them.

Again its best to give a personal experience I guess to illustrate this.

After my mother was diagnosed her priest told her that her celiac was a punishment from god and that he was testing her faith in transubstantiation. I have known this priest since I was 9-10 and he was a pretty nice guy ... indeed he's the one put me into a church school which itself led to a whole load of other problems but .. I still think he was mostly a good guy.

So my mother got to thinking that her whole life (which had been linked to celaic though she didn't know it) was one big punishment .. its a long story involving a hysterectomy and early menopause brought on by this and .....

From my way of thinking if someone who has lost their kids reads the end of this thread then the message seems to be that god gave back the child because ... well it was his purpose.

A lof of people loose their faith through things like this... (and I can't beleive I'm saying this) but that's not a good thing....

I'm not opposed to people having faith but I don't think faith should be something you adhere to because you are scared of the consequences... it should be through free choice and I equally don't think loosing your faith through a bitter experience is a good way to loose your faith....I personally don't see loosing faith as a bad thing though I acknowledge most of you do... but perhaps that is why I see a difference in loosing your faith over a bitter experience as bad as opposed to a simple analytical reason which I personally think is good.

If you discount for a moment that I think its good... then just try and see that soe ways are worse than others!

Its like chicken pox... sometimes it is good for kids to get chicken pox as kids... but when otherwise healthy and not vulnerable.... but someone who has lost a baby is already very vulnerable. ????

Intervening with someones kids is always risky ... but where do you draw the line?

I was queing for a phone card in a tobacconists a week or so ago and some very heavility pregant woman pushes through the long queue ... saying she's pregnant and can't queue (fair enough) and then buys 2 packets of cigarettes?????

Sure I'll let her through if she wants to buy stamps or a phone card at midnight but I felt a bit put out she was buying cigarettes!!!!!!

A long time ago (back when I lived in England briefly) I was at a supermarket and watched a mother packing her car with the baby in the trolley and the trolley on a step. Nothing was more certain than the trolley was going to slide off the step... and as I packed my car I watched the trolley fall off the step and mananged to catch the baby.

I would hazard a guess that had I offered my advice the mother would have told me to mind my own business but it was SO obvious this was going to happen. She didn't exactly thank me either.... though I guess that was mainly shock!

Perhaps the mother learned her lesson? Perhaps the week later she repeated it and the baby got brain damage?

Who knows?????

The problem is we are all genetically predesposed to caring for babies... if anything I am the person least disposed this way I know, I really detest being around babies but I still don't want to see them come to harm.

Just guessing, but I think it would last about 6 months in the fridge, course mine might be gone by then!!!

Yeah once they seal then they are good for at least 6 months but once yopu open them they do go off faster than commerical preservative packed stuff. If you use the jars with the little pop-up you can tell they are sealed as they cool.

Which ones made from goat's milk would you recommend? I'm still looking.

Bucheron is available in a blue variety...

Bleuet from the Loire is also very nice but somewhat hard to get hold of outside France but its nearby cousin Crottin de Chavignol is more available.

So far as I know all of the blue part is natural... it develops on the outside and doesn't produce veins like in ewe's blue cheese. Sainte-Maure de Touraine is a special Crottin which is more stringently controlled and has a AOC.

I think you will need a really specialist cheese shop to get the blue varieties since unlike the ewe's blue cheeses the blue is usually developed by the individual cheese shops.

Now please stop .... I have had my cheese for the week.... I have some roquefort in the fridge but I can't let myself eat it and all this talk about cheeses is................