gfp

I posted this question a little while ago for my son.(13 yrs old)

Every little pimple turns into a raging boil-and takes ages to heal as the hole tends to be big.

He's had to have numerous courses of antibiotics and are really painful for him.

His recent coeliac blood test came back positive (and so I'm sure it's linked)but also apparently he has low neutrophils-(Part of your white cells).

Apparently your neutrophils are your first line of defense on your skin,and a low count is common in someone with auto-immune problems.

As others have said,-no magic cure,but someone suggested to me on this site that eating garlic might help,and the aloe vera tip is a good one.

I've actually grown an aloe vera plant at home and found that breaking a bit off and rubbing the juice on my sons last boil seemed to help it heal quicker (at least he managed to get away without having antibiotics this time!)

I don't know but do the antibiotics actually do anything....????

Last time I had a huge one my Dr wanted me on antibiotics so I asked why and she said it was to prevent infection not to cure the boil. Since I don't get infections I didn't bother

This is the post I was responding to, where RiceGuy said none of us should eat blue cheese as it causes reactions in some people, and it does not agree with him. Certainly people who are allergic to pennicillin should not eat it, and we should not be eating gluten. But for people who are not allergic to pennicillin, there is no reason to not eat a safe blue cheese. It is not toxic. We have enough toxic foods to avoid without making our world smaller.

Of course, you are free to give up all blue cheese if you do not feel comfortable with it. Do Outback and TJ's serve natural blue cheese, or are you referring to salad dressings?

I think the point is that the thing most likely to upset a celiac in blue cheese is actually the lactose or casein.

If you are going to eat blue cheese then eat a natural one which is not made from penicillin grown on bread where you know the origin of the penicillin.

Obviously people allergic to penicillin should avoid it... that I hope goes without saying and people trying to lose weight should eat it in moderation but there is nothing specific in a real blue cheese towards celiacs.

However it is also packed full of probiotics and a very mild dose of penicillin as opposed to the plastic wrapped dead cheeses and most but not all classic blue cheeses are made from goat or ewes's milk which most people have less of an intolerance to than cows milk.

For most celiacs i would think that a non cow blue cheese is less likely to cause problems than a cow cheese.

I didn't see anywhere in his/her post that said everyone shoucl give up foods that do not agree with him/her.

Given that blue cheese started as a substance bourne from moldy rye bread, I don't see how this is anything but cautionary.

There are strains of blue that are consumable by celiacs (Outback Steakhouse, TJ's), but as a general rule, I think that blue cheese is something celiacs should steer clear from simply because of the nature of it (ie: that it was originally derived from moldy bread).

Lil

Blue cheeses originally started in caves.

Some use bread to culture the penicillin and others do not, they let the natural penicillin from the walls of the cave naturally infect the cheese. The specific strain of penecillin is dependant upon the specific geography of the area.

On top of this many celiacs also take probiotics which are found in natural unpasturised blue cheese from the original rennet.

I very much doubt steakhouse has a real unpasturised blue cheese to start off with but rather a artificial penecillium culture since the US does not respect international law in this area.

If you inhale something with wheat powder in it, yes, it will go into your lungs. Then you will cough it up. Sadly, you will not expectorate all of the wheat-containing mucous. Some of it will be inadvertently swallowed, and go into your intestinal tract.

Actually unless you are ill or very old (or stick your whole head in a bag) very little wheat flour should reach the lungs... the filtering is pretty good on anything that sticks to water... and transfer it direct to the Mucociliary escalator ... and hence into the stomach.

GFP,

Proteins/amino acids and large molecules are unable to cross the skin. Only very small molecules which are hydrophobic can cross the skin. Proteins and amino acids are large and for the most part hydrophilic. DDT and other pesticides are designed in such a way as to be small and hydrophobic and can definitely cross the skin.

glutamine is an amino acid not a protein. It's a special amino acid that crosses the BBB because glutamine is used for the production of neurotransmitters like epinephrine, and dopamine. As far as I know most other amino acids and definitely proteins do no cross the BBB.

I would definitely not worry about gluten crossing the skin, even through the use of cometics or shampoos.

How about amyloid protein?

In addition since amyloid cannot itself pass the BBB then could a similar mechanism be transmitting gliadin?

just out of interest do you accept he studies of neurological pathology with gluten?

honestly, don't have a clue! just didn't want to leave you hanging out here with no response...

LOL, thanks nini!

It does give a pshychological boost

Actually it has.It's the princely sum of £5.05 an hour!!

i must have missed that... I bet the waiters are all breathing a sigh of relief

It can be pretty hit and miss eating out in London.

About the only chain I know of that does G.F options on it's menu is Outback Steakhouse

Supermarkets are getting much better with all the big chains having a 'free from' section (except Marks and

Spencer who's G.F food is distributed throughout the store marked Gluten Free on the packaging.

Tesco's ,Asda's,Sainsbury's,and Morrison's all have a free from aisle.

Indian food is a pretty good bet too (my husband often has Chicken Tikka with plain boiled rice if he can't be bothered to cook!)

There is a tapas chain called La Tasca... a few outside London but the Covent garden one is pretty good.

You can't get all the items like the paella is only gluten-free in the mini (tapas sized) versions (which are prepared outside) but I usually take that as a good sign....

I just finally got myself a spring/autumn jacket.

Its taken several years.... every time I think I'll buy a light cotton jacket I look at the price and decide I can get a nice leather one for the same price! Of course I have a lot of leather jackets now .... I gave 2 away in the last year so I'm down to 4.... however 90% of the time I end up wearing my waxed one because its waterproof (also drink spillage proof and everything else ....)

So I just bought a light cotton summer jacket.. kinda based on the military style...

I'm thinkiing of trying to proof it.... i do this with my leathers all the time, usually using a goose or seal (I know they're cute but heck does it keep water off) based oil.

I'm wondering, can I use the same wax or do I need a speciality one?

The jacket is really adsorbant cotton so I hope it will take wax easily... but I also see speciality products for cotton...

Obviously its a bit one shot.... its not exactly easy to get seal oil off once its on! Course I'll test it on an outa sight part but would be interested in experience on this.

Open Original Shared Link

Mucus lines the respiratory tract, and cilia beat to remove the mucus out of the lungs. This is a continual process so any particles that penetrate into the lungs are trapped in the mucus and swept out up to the epiglottis where they can be swallowed.

Just in case anyone wants to read up.

I was going to reply to my above post anyway because I realize that it was not clear, so I'll just do that here, as I had some questions about some of the things you wrote too.

First and foremost, I am not saying that no distillation process ever removes the gluten. What I AM saying is that according to my molecular biologist friend, SOME distillation processes MAY NOT remove all the gluten. It just depends on the process, as they vary from maker to maker.

Also, according to my friend, the higher quality the alcohol, the greater likelyhood that it IS gluten free, though, as with anything, we should always check.

My sister, who is also celiac, reacted to Sky Vodka, after consuming it. We thought that alcohol was safe, so we weren't even looking for a reaction. She just had one.

I have also had prblems with distilled things, and have no other food intollerances (other than nitrates, and that is a completely different kind of reaction - the reaction I get to alcohol is definitely a gluten reaction). But then again, I react to things made on equipment "shared with wheat". (Prior to noticing that on the label).

I don't understand why people who are new to the disease would react more than someone who was not "new". Could you explain that please?

Also, why would someone react to the whaet strands or fibers if all the gluten has been removed?

I'm not trying to be all psycho & "anti-distillation" here - this all started because I have had (and my sister has had) independent from one another reactions to distilled alcohols. So then I asked my friend, because it didn't make sense as to why, if this stuff is safe, we were reacting to it. I know that various people have different levels of reactions & sensitivity. Maybe I'm just really sensitive. Maybe there is something else I am reacting to.

Again, I am not in any way saying that no one should ingest distilled things. I am simply saying that it might not, as previously reported, be 100%, always safe.

Lil

Lillyth... I have been saying this for a LONG time.

I have spent a lot of my professional life working for the research departments of oil companies ...

and ANYONE who say's distillation always removes gluten does not understand distillation.

A company I worked for spent millions researching multiphase azeotropic distillation (which your molecular chemist will tell you is what alcohol distillation is) and it is a crapshoot. (perfect description)

When I modelled this I used one of the fastest most sophisticated supercomputers in the world ... at the time in the top 20 in the world ... we had pressure sensors measuring the tiniest fluctuation in air pressure and someone opening the doors before the air pressure could be stabilised in the double doored chameber would competely change the imputities of the distillate.

A change in air pressure of a few psi-ft (like it raining outside) will change the composition, sometimes drastically (and this was in a airpressure controlled environment, the machinary can't react fast enough). A change in temperature of 1/100th of a degree will do the same as will a change in the composition of the mash (which can never ever be the same anyway since its a biological process) and we were using known components measured to parts per billion ...

Still people post ALL DISTILLED ALCOHOL is gluten-free.....

I KNOW it isn't but I can't publish confidential research ... nor would most people here even understand it or even begin to understand it.

Meanwhile many celaics react to grain alcohol....

I wonder if the aging process (in the oak barrels) has some way contributed to cross contamination. Any thoughts?

Probably .... it rather depends what the barrels were used for last.

Why do you think everyone should give up foods that disagree with you? If we only ate foods that nobody ever reacts to and contain no toxic substances whatever, none of us would have anything to eat.

Very true and I know you are a cheese lover who can't .... so you are hardly saying this through self-interest!

As it happens many real unpasturised blue cheeses have a lot of probiotics.

Also you can be allergic to one penicillin and not another.

The discussion centred on whether Roquefort cheese was made using yeast possibly from bread or not and two of us had heard different things. The amazing part is we were both correct!

In brief Roquefort Baragnaudes and Societé are naturally exposed to caves and cellars containing the Roquefort penicillin whereas Papillion uses a method with a traditional rye bread used to kick off the penicillin which is then transferred to the cheese.

So the old French "oui et non" is actually right in this case.

Does the transfer risk gluten? I'm not sure, perhaps its completely consumed by the penecillin but I know which I will be choosing from now on.

Sorry can't post link as it breaks board rules.

I'd just like to start off by saying, that no matter how hard you try to be gluten-free, it is inevitable you will eat some gluten when eating out at some point. You can only do the best that you can do... That being said, there is gluten-free food to be found in London.

Having been in London two years ago, I was shocked to find that there are very few British wait staff to be found anywhere. Most of our waiters/waitresses were from elsewhere, some of them not speaking English very well, and most of them with poor customer service... The whole time we were there (2 wks.), we only had 1 British waitress. Very strange. But, I mention this because when you eat in a restaurant in London, the wait staff will switch off on you. You'll start off with one wait person, and then anohter one will come to take over from the other person - so it can be litle daunting, especially after you explain your gluten situation to one person, and then another person comes to take care of our orders and more.

We went to P.J.'s, as was reccommended here at this website, located in Convent Garden on 30 Wellington Street. It was really good, with gluten-free options, and yes, the "flourless" chocolate cake is definitely gluten'free, as confirmed by the owner as he was walking by our table as we were dissecting it, and very delicious, however we only went there once. Most restaurants will add in a 12.5% service charge (the minimum for tipping is 10%) in the final bill, and the waitress we had tried to tell us that that was not the tip and we should add on another tip... We didn't think that was very cool.

There is a reason for this. Waiting tables is not very well paid, the UK has no minimum wage.

If the resto lists 12.5% for tips it is doing this to avoid paying tax on that 12.5% the waiting staff will not see any of it.

Most of the waiting staff will not be able to meet there rent on what they are paid, they rely on the tips on top of the 12.5% the resto creams off. Better resto's pay less because the wait staff are told they can make extra from tips.

Eating out in London is very expensive, and for the amount of money you pay, the portions get smaller and smaller the more touristy the area is.... I left Chimes, Shampan and tas Pide with a full belly. The others are almost pathetic. I guess the Brits don't eat much????

I would have a hard time believing that this is a cure. Cure to me would mean that the immune reaction would cease to happen, and there would be no risk of any intestinal damage. That would be a very difficult thing to verify. Because you can have celiac, with intestinal damage and positive biopsy and not have any symptoms whatsoever.

The only thing I would believe at this point in history would be that maybe someone will come up with something that might help or prevent symptoms, but not a cure. If this man was saying that he had found something that would help supress symptoms of being glutened, I would be open to that.

I'm very open to alternative things, but I'm also not willing to think that there is a cure to something that has a genetic component. I would suspect that he either doesn't know enough about celiac to know the details of the disease, or he's boasting and overstating his product or method.

I'd love to hear more about this if you get more info. Eventually I'm sure there will be a cure for celiac, and who knows if it will be figured out by a big pharmaceutical company like Pfizer or by a guy in Australia.

Nancy

Last time someone in Australia said they had a cure for ulcers it turned out to be true!

and that was against all medical knowledge.

Just thought it was funny that the thread became more religious AFTER the comment by "the athiest"!

The point was already better explained by fiddle-faddle.

Before the hearing the talk was of lawyers, legal process, expert witnesses and prayers....

After the hearing it turned into prayers, prayers and prayers.

I see your point about how people need the credit and I agree 100%, I Thank Everyone for everything they have done. But I also Beleive in THE POWER OF PRAYER and that has guided me to the right people. GFD as I have told you I think you are brilliant and I in no way meant to offend you or your beleifs. I hope you know I appreciate all the help you have provided to me.

Thanks everyone for the support

CIndy

Cindy...

I think its far more important to consider what a mom like yourself who knows she is not guilty who reads this thread would think if she submits to god and then the child is still taken away.

I'm sure prayer can be a great comfort for many but what I'm saying is consider how someone would feel if not only they find the legal process stinks (guilt till proven innocent) but that they are somehow being punished by god?

Its all in the wording.... if you believe prayer helps then fine but please don't make it seem like it is the deciding factor... I'm pleased for concerned_mom and I really hope things go well for you... but if people put all their support in prayer and it doesn't work what do they have left...

God didn't crash the plane, he allowed it to happen. We are all going to die, and with a belief in Heaven, it's not a bad thing. The man who lived may have not achieved his purpose ... or maybe it's the other 200 who were lucky, they got to die and be in Heaven, which is a place Christians are supposed to want to go ... the guy who is left should really be thinking about why he's still here!

Sorry but I doubt that is what is going through the minds of MOST of the parents and loved ones who died...

The survivor saying its a miracle god saved him is not going to help ....

If you want to see why then change the survivor to saying he survived "because Allah saved him...because he is a good muslim" or because "Shiva intervened ...because he was a pious Hindu"

I don't see why there can't be both simutaneously....

Concerned Mom, I am joyfully happy at the result and hope the same for Cindy. I know if I were in your situation, I would be thanking God not only for guiding all those concerns into the right direction for a proper verdict, but also for the level of comfort He gave you during this trying time.

gfp, our resident athiest, these moms believe in God and as far as they are concerned, God did play a huge part in concerned mom's positive outcome. You don't believe in God, and we have always respected your right to be a non-believer, but please don't criticize and come down on someone who has just been through the wringer. They came here for support, not to be criticized for their beliefs.........

Karen

Karen, and the thing is many many people here did give support. Regardless of their own beleifs. One of my beleifs is you are innocent until proven guilty however not everyone on this thread supports that view.

God did play a huge part in concerned mom's positive outcome.

This still doesn't answer why when god choses to crash a plane and take the lives of 200 people and leave one survivor how the one person who say's its a miracle that god saved him or her affect the families of the other 200 people....

When this survivor goes on TV and says god saved them what are the familes of the 200 dead meant to think?

Do you really beleive it is phycologically helpful for them to be told god saved this one person through his mercy while little Johny got taken away for cheating in class and baby sue got taken away for wetting her nappies?

What exactly is the benefit to these people who's families and loved ones were not worth saving?

Back more on topic.... what is someone meant to think reading that god gave them their baby back if this mother god chose not to and this mother knows in her heart she was not harming the baby?

Is that really going to help them when they have followed the advice of some on this thread and abandoned doing anything to help themselves and put their faith in god?

What exactly are you going to tell them? That god works in myterious ways? That god must have a purpose for that baby?

thanx for replying gfp, im gluten-free but kids and hubby are not, the prob is i know celiac is in the genes and i guess im thinking maybe ive passed it on to them. my eldest son is sooo skinny and eates for wales the amount of food he eates scares me and he never puts weight on, my hubby says that hes growing and is active so he wont put any weight on and stop being paranoid.

Then in all honestly NOW is the time to do a blood test.

Either way... because if they go gluten-free later you will have to put them back on a gluten diet. Noone wants to do this but least of all a mum ...

My concern is when I see "calls to prayer" when there is appropriate action that could still be taken.

That is one area... IMHO the appropriate and dare I say "christian" attitude would be to help other moms who have to go through this trauma.

Say prayers, fine but don't exclude the fact that good lawyers, a decent legal system and actually being innocent also help.

There is a lot of practical advice concerned_mom can share which will both help out moms in this situation and hopefully prevent other moms from having to go through it.

Or they may have been putting stuffing on something, or marinating or breading something.

Intestines are not popular around here as a food.

Yep but hence why they end up in the ground meat!

Hi Alison,

Grain fed meat and Coke are both fine.

Its always a good idea to wash meat anyway since the butcher may also have been making sausage meat etc.

Technically though I have to wonder if the intestines don't hang on to some gluten?

Hmmm, at my favorite Thai place, I've tried a peanut dish that was DEFINITELY spicy! At this particular place, all the dishes are made to order - mild, medium, hot, or thai hot (outrageously hot). I love spicy stuff, so I order it thai hot, but I think they can make any dish to your particular taste. I would just recommend stressing that you do NOT want a spicy dish.

The yummiest thing that I order is the Pineapple Fried Rice w/veggies and tofu (can order with meat). It sounds odd, but it has warm pineapple, raisins, cashews and it's just a GREAT combination!

The server who always waits on me at my favorite Thai restaurant makes me laugh. She's from Thailand, and says that I'm the only American who can take my food "Thai hot" I take it as a compliment

- Lauren

Authentic thai food is almost all hot.

If you ever travel to Thailand then true Thai food is very hot.

I had an Arabic friend who came to a Thai resto with me which cooks authentic Thai dishes and he ordered one of the "hot dishes" ... since he figured he's Arabic, he can eat hot food.... anyway we ended up switching plates because he couldn't eat it...

I like hot food .... but I have walked out of some resto's in Thailand just because walking in through the door burns your eyes. Ive literally walking in and thought hmm.. better find another resto ...

2% of the people who try to lose weight reach their goal and maintain it

As I have said before this is a absolutely negative attitude.

I could easily say 98% of people who do a gluten free diet do not maintain it.

If people set an unrealistic goal 25% below their ideal weight then sure most people will not attain it and those who do will find it difficult to maintain.

However if you set a realistic goal able to walk then 98% of people could maintain an ideal weight plus or minus a few pounds if they really wanted to and beleive it is possible.

If you start off thinking its impossible then it will be impossible.

As i have said before I know 2 people (but I now remember a third) who have started off by being clinically obese and have been told by their Dr's that they cannot lose weight and all threee lost over 50% of their body weight.

One has maintained this for 16 years, another for 10 (the one I forgot) and one for 5 yrs. Each of these had been categorically told by their Dr. it was not possible, they had slow metabolisms etc. and did so not only without any medical aid but also against medical advice. One had to have surgery to have his spare skin removed ...

I also know hundreds of people who have lost weight and kept it off even if from time to time they gain a few pounds. If you want to disqualify them for going a pound over their goal a few weeks every few years then I guess that is possible...

The point is you need to be prepared to make lifestyle changes.

If you are not willing to quit your job then you don't really want to lose weight.

2-3 three above both quit their jobs as part of losing weight...

My friend John had a deskjob which he quit in favour of a job which involved being outside walking 8 hours a day. His old job was a civil servant working for a highways dept and he quit this and took a job witho another highways dept where his job was to walk the streets looking for dangerous trips, pot holes etc. and note and mark them for maintainance. The other, my friends girlfriend quit a job in a stock exchange and took a job as a self employed mobile language teacher and walked between jobs. The third was lucky enough to work for a company that encouraged heathy living in its staff and gave her support.

I myself took a job in security with the same company from working in a research lab and from this I managed to then get into the training for the security personnel.

A large percentage of the "security personnel" are auditors or computer techs, not the heathiest people to start off with but due to the paramilitary nature of the company they all have to undergo a tough physical and a lot of survival and fitness training. I used my martial arts background to get a job doing the physical training for a while...

Most people only request security for money... the pay is usually over double the normal salary by the time you add danger pay and different allowances. Very few of them didn't make the physical and very few of them put weight back on while working for the active security in 3rd world countries. Very few of them quit either because by the time you make the descision to do a job where you expect to be shot at or have landmines you have to be pretty commited.

Quite a few bought the house they had saved for or whatever thier financial reason to get shot at on a regular basis and went back to desk jobs and yes, some of them put weight back on because they had reverted to the previous lifestyle. However significant numbers went back the a desk job and continued doing an active life and watching what they eat.

I never suggested any starvation diets and I don't think you need to go on one to lose weight, I lost 25 lbs and have kept it off and i just changed my portion sizes and exercised more. Do I think this will work for everyone? Nope, but I do think that most of dieting is willpower, yes some people have hormonal disorders and other medical conditions that make it far more difficult for them to lose weight, but I did it when I was over 45 and certainly my metabolism has changed a lot. I'm not trying to pretend I have the answer for everyone... I hate when people start jumping on me, I'm just thinking outloud here... I was just saying that the reason so many doctors don't push diet is that most people can't do it for whatever reasons.

I'm not sticking up for either group I'm just making some observations. I agree that it is hard to lose weight and keep it off and since sticking to a gluten-free diet appears to me to be easier then dieting to lose weight and keeping it off and so many people can't even stick to a gluten-free diet, I was just making the point that that is probably why so many doctors just offer the Rx, they get frustrated with people not trying. I'm not saying either group is right or has it easy, etc. Again just an observation.

I agree completely....

Yet another thread goes religious!

I don't suppose the lawyer and expert witness had anything to do with this?

Must have been god who was too busy crashing a plane so that he could miraculously save one suvivor when they took the child away?

I guess since its all down to god then sharing the information with other mothers in the same situation to help them is pointless.

2 days ago my youngest son came in to go to the toilet, within seconds i herad screaming my som ran out of the bathroom crying and saying " my willy my willy it hurts" it was awfull this went on for a while and i amnaged to cal him down when he allowd me to look at him his penis was red and infalmed so i took him to the docs who said he may have an infection and gave steriod cream and antifungal cream, now i know the doc gave him that as she thought it may be thrush, this scares me as my main symtom of celiac was thrush, he has had another attack like this yesterday in the middle of tesco and screaming again, im traeting him with cream and he hasnt had another attack yet but i feel like a big red flag is waveing in my face about this, my hubby is against getting any of the kids tested and says that im too clued in tho the whole gluten thing and am paranoid about it, am i ? or am i justified in my thinking, could it just be a water infection? ive allready done a water sample which has been sent off.

I would say that depends if they are gluten-free or not.

If they are gluten-free then I would say not since they would have to do a gluten challenge.

If not then why wouldn't you?

What? No. You would COUGH it up. I don't swallow my phlegm. Yuck!

Doll, this is an involuntrary action. You produce about 100cc of mucous a day.. do you spit it all out?

The reason I ask is because you seem so sure you can't ingest gluten by breathing it.

Its a long time since I was at school so perhaps this has changed since I studied the process of the 'mucociliary escalator' however we still use this in lab safety training all the time.

Is it not possible you missed this class?