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gfp

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Everything posted by gfp

  1. gfp
    Is all of this down to mal-adsorption? I honestly don't know but I feel there may be something more systemic? Has anyone been tested for Lupus? (I know House always say's it's not Lupus but...) It seems so common that another autoimmune reason seems as likely as mal-adsorption? It might be lupus or related fibromyalgia or something new? I...
  2. gfp
    Thanks Lynayah, the last thing I wanted to do was offend but I also felt sometimes you have to take off the sugar coating. It has been a hard thing for me to accept but you only need to look at the countless super-fit professional athletes who have thought the same way. (Pick your own sport but you will countless find many who 'let themselves go'. My...
  3. gfp
    I'm not an expert but I don't think so. Low IgA is just something comes along for the ride with the 'weird' DQ human antigen profiles for celiacs. Is it possible you were tested for IgA serum but not the deficiency? (You say years ago and testing has moved on and IgA deficiency now 'included' in screening). This is partly just progress, the increased...
  4. gfp

    ARCHIVED Imported Msg

    gfp replied to srthomas21's topic in Coping with Celiac Disease

    The corruption is really only the latter half the story .. The problem is 3rd world countries do not have the laws in place to start with and manufacturers do not have an audit of where bulk ingredients come form. MSG is MSG .. regardless of source. Governments want to maintain exports but this is way down the list of items, one of which (in common...
  5. gfp
    Why? It is the only test valid before 2 years? If you had the genetic tests and the baby was DQ2 or DQ8 would that change your mind? As said earlier, it is every parents personal choice, I am just really trying to find out why, specifically what is the advantage when the disadvantages and risks seem so numerous.
  6. gfp

    ARCHIVED Imported Msg

    gfp replied to srthomas21's topic in Coping with Celiac Disease

    Why don't you provide evidence that MSG is properly labelled in Thailand? My advice won't hurt anyone. Your idea seems to be "We don't need to worry about MSG" Obviously you have spent a lot of time in Thailand and feel qualified to make this comment; you probably not only know the major food exporters but probably get invited to dinner by them on a...
  7. gfp
    My left arm already has shortened ligaments (indeed it doesn't stretch the whole way) after a injury years ago when I tore both ligaments.
  8. gfp
    Miss Christy: Gobbie say's it all really. Do the same simple test as Starbuck's legal council.... If you get ill after what can you claim/sue for?
  9. gfp

    ARCHIVED Imported Msg

    gfp replied to srthomas21's topic in Coping with Celiac Disease

    MSG can be derived from many sources. Wheat gluten used to be the primary source but has now changed within the US. Worldwide MSG is simply a waste by product commodity. It will be produced from whatever waste vegetable proteins are most available and most economic. I would think it is unlikely Thailand has rules about the source of MSG and...
  10. gfp
    I share your feelings on doctors: however some stuff is mainstream and even a poor doctor can follow the diagnostic processes. Parasites might be yuck ... but they are also usually/often easily treatable and curable. Often this involves drugs and therefore the drug companies ensure doctors have the information as opposed to diagnosing celiac...
  11. gfp
    What I don't understand is why introducing gluten seems to be looked at in the same way as "your baby might one day be able to see" or "one day he might be able to be exposed to direct sunlight". It is like there is some huge reward to be gained from baby being able to eat gluten, something worth taking a risk. If baby was blind and they wanted...
  12. gfp
    What I don't understand is why introducing gluten seems to be looked at in the same way as "your baby might one day be able to see" or "one day he might be able to be exposed to direct sunlight". It is like there is some huge reward to be gained from baby being able to eat gluten, something worth taking a risk. If baby was blind and they wanted...
  13. gfp
    I can sympathize yet offer little in advice. Each of my joints seems to take in in turn ... the trigger has been walking along a smooth sidewalk! That was it for my ankle, no stress, I as just out walking in sensible shoes on a smooth sidewalk - result 2 weeks of agony and not being able to walk. Same thing for my knees and neck ... Currently my...
  14. gfp
    I think that sums it up for me. I really just don't understand why anyone would introduce it deliberately if they knew the baby will sooner or later develop celiac disease. It's not like baby can't see or hear, it's just avoiding a type of food that many cultures managed without. On the other hand I guess there is also a case for developing some...
  15. gfp
    You inadvertently pulled a few strings. For quite a few reasons one of the most traumatic experiences many of us have and do face is friends and relatives who refuse to understand, don't want to understand or can be plain nasty. (often a combination) Quite often that friend or relative is in denial ... they have problems but refuse to admit them...
  16. gfp
    If processed sugar is a problem then you might have some infection feeding off it. Sugar obviously isn't good for anyone BUT a lot of starches and carbs break into sugars and ultimately glycogen is a sugar. In other words it is really unlikely YOU are reacting to the sugar (in that way) so much as something else like a parasite or yeast? The starches...
  17. gfp
    I think you will find the NYT article refers to IgE mediated allergies.
  18. gfp

    ARCHIVED Mexico Trip

    gfp replied to Jeremiah's topic in Traveling with Celiac Disease

    There is usually a option which is cooked to order. Breakfast you can usually get eggs done as you like. The biggest risk is the tortilla, at least if they are real corn ones you are OK but the tourist places often use fake (American style) ones. Lunch/Dinner you can often get plain BBQ meat or fish. The quality of food is often pretty OK, even on...
  19. gfp
    Exactly what I would have said until I saw it! I am one of the most cynical people here and I very very rarely endorse anything I don't understand HOWEVER .. I have seen this work. When it was introduced to me (by the wife of a friend with Chrons') I was very very skeptical. I was also as ill as many of us get ... and willing to try anything having...
  20. gfp
    Some people will not and never will 'get it'. Quite a few people here have the same problem and the best answer I can give is "At least you choose your friends". I lost some of my oldest friends because they just couldn't (or wouldn't) get it. >>Someone on this forum coined the term "rat poison" for gluten, That was probably me: However...
  21. gfp
    Frankly, no idea! I don't think anyone does. Ollie is 4 months and doing really well. Mom who is not celiac has been gluten-free through breast feeding and we have yet to get his genes tested. He was originally going to be born in St. Thomas' hospital in London (possibly the foremost paediatric unit in the UK) but after we moved house this was...
  22. gfp
    Depending on how you define 'out of body' I get a certain amount of this when glutened. It's not like the TV/film 'experience' so much as a feeling I am watching myself and steering by a remote control with flaky batteries! I often say things I don't mean, or more accurately things I do mean but shouldn't say ... and I know I shouldn't and try and...
  23. gfp
    Several points: >>I'm thinking that if I can do at least 15 min. on my exercise bike every day Any less than 20 mins with your heart rate high enough and you will not see much in terms of weight loss. 15 mins is better than nothing but 30 mins every second day would be more effective and 60 mins even better. Gliadin is a protein found...
  24. gfp
    Most oven cleaner is based on caustic soda, it willmake anyone feel sick if they breath in the fumes but nothing celiac specific.
  25. gfp
    Unfortunately I can't comment on American Peirogi but I expect these have a passing similarity to slavic peirogi in the same way American Pizza looks similar to Italian Pizza. Anyway: In Poland Peirogi are huge .. not in size but cultural cuisine. The relationship with Italian Ravioli is best described as Ravioli are stuffed pasta and Peirogi are...
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