
gfp
Advanced Members-
Posts
2,054 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by gfp
-
ARCHIVED Genetic Testing For Kids
gfp replied to beth67's topic in Parents, Friends and Loved Ones of Celiacs
Open Original Shared Link -
ARCHIVED Genetic Testing For Kids
gfp replied to beth67's topic in Parents, Friends and Loved Ones of Celiacs
So for the rest of us (and just to confirm) that pretty much questions the use of saliva and buccal mucosa (cheek cells) for babies being breast fed? (or for the sake of completeness cannibals) -
ARCHIVED Long Reaction To Being Glutened Or More Hidden Gluten?
gfp replied to RobynJ's topic in Parents, Friends and Loved Ones of Celiacs
All that and more ... more being learn and move on! It is so easy to beat ourselves up over this when really S**t Happens ... At one point I obsessed over finding the offending cup-cake/CC etc. but really it's only useful as a learning experience and what you can avoid in the future. Sometimes you will be quite certain but mostly you have multiple... -
ARCHIVED Genetic Testing For Kids
gfp replied to beth67's topic in Parents, Friends and Loved Ones of Celiacs
Thanks ... that sums it up perfectly! Other than babies one wonders who else the genetic test is useful for. (A few obvious ones here like I'm actually growing the fetus in a test tube to harvest the kidneys and just want HLA results to check organ compatibility) Honestly: I really doubt it's the first baby they did the test for... and the email... -
ARCHIVED Genetic Testing For Kids
gfp replied to beth67's topic in Parents, Friends and Loved Ones of Celiacs
The plot thickens, I contacted the lab Nikki linked to and asked if with it being a sample of buccal mucosa if the presence of breast milk would confuse the results. I was expecting some answer about waiting but instead I got the answer that they can't guarantee the process in these circumstances. My thinking (which may or may not be correct) is... -
ARCHIVED Genetic Testing For Kids
gfp replied to beth67's topic in Parents, Friends and Loved Ones of Celiacs
There is really no point doing IgG when the baby is still breastfeeding and the mother is not eating gluten. For that matter, if an adult is not eating gluten then there is no point looking for specific antibodies be they IgA or IgG. -
ARCHIVED Celiac Disease And Swine Flu
gfp replied to strawberrygm's topic in Parents, Friends and Loved Ones of Celiacs
>>The topic is about whether celiac disease increases risk from swine flu. Let's stay on topic, please. With all due respect the vaccination may be harder on those with over active immune systems. It doesn't need to be the actual non-live flu viri ... because it could be an immune response from something else in the vaccine. When a vaccine... -
ARCHIVED Genetic Testing For Kids
gfp replied to beth67's topic in Parents, Friends and Loved Ones of Celiacs
Many thanks Nikki, looks just the ticket. Would still be wondering about US costs so I can compare when I get a cost from this place... thanks -
ARCHIVED Celiac Disease And Swine Flu
gfp replied to strawberrygm's topic in Parents, Friends and Loved Ones of Celiacs
To be fair, it is not a rumour but a statement of fact. Universal Healthcare means protecting the population over individuals. Where possible one hopes most Dr's will at least "Do no harm" ... but the job of federal and country healthcare is t prevent an epidemic. Some vaccinations are arguably not worth the risk on a individual basis but make... -
ARCHIVED Genetic Testing For Kids
gfp replied to beth67's topic in Parents, Friends and Loved Ones of Celiacs
Currently my partner and I had little Ollie on 29 August. My partner who does not have celiac disease (so far as we know) has been gluten-free during breast feeding. This seems to be working as he has jumped from 40th percentile at birth (a week early) to 97th percentile in height and mass. He has also yet to be ill, despite being surrounded by people... -
ARCHIVED Long Reaction To Being Glutened Or More Hidden Gluten?
gfp replied to RobynJ's topic in Parents, Friends and Loved Ones of Celiacs
It certainly isn't dumb but it is unanswerable. As an adult, or more precisely as someone who is extremely analytical I cannot ever say for sure. How long is for me about 4-6 weeks but with decreasing severity and frequency SO LONG AS I DON'T MESS UP IN THE MEANTIME. The only way I can tell myself is by being 100% gluten-free which means... -
ARCHIVED It's Not The End Of The World.
gfp replied to lsmall05's topic in Coping with Celiac Disease
You might find it easier to swallow (sorry) ... if you look at it another way. Its not really the gluten causing the problem, its your bodies defenses mis-identifying it. Imagine you are in a war zone wearing a Blue UN Beret.... well theoretically noone should shoot at you. But imagine the sniper is color blind... he can't see the beret is light... -
ARCHIVED Captain Morgan's
gfp replied to lobita's topic in Gluten-Free Foods, Products, Shopping & Medications
See there you go again .... Product: Captain Morgan - Original Spiced Rum Ingredients: Puerto Rican Rum, Spice and other natural flavors Product: Captain Morgan - Parrot Bay Mango Ingredients: Puerto Rican Rum, natural Mango flavors Product: Captain Morgan - White Rum (38%) Ingredients: Rum Product: Captain Morgan - White Rum (40%) Ingredients... -
ARCHIVED It's Not The End Of The World.
gfp replied to lsmall05's topic in Coping with Celiac Disease
Susan, I would recommend you start preparing for the gluten-free now. Examine what you usually buy and check it out, any doubts then post a question on this board. Check out alternatives now.... then you won't feel so limited when D-Day arrives. You can even check out some recipes and cook them, being on gluten for the endoscopy doesn't mean every... -
ARCHIVED From The Gig Thread
gfp replied to gfp's topic in Gluten-Free Foods, Products, Shopping & Medications
Rice guy, exactly the reason the legislation has to be brought in at the correct place and level of the supply chain. The problem is the food industry is run by the giants. They have the money and power to lobby but they are the last people who should be influencing any standards. I appreciate that with the best will in the world accidents can... -
ARCHIVED Captain Morgan's
gfp replied to lobita's topic in Gluten-Free Foods, Products, Shopping & Medications
Without the pictures its hard to explain but my understanding was the crozes are the 'upright' pieces of oak. "After the toasting level is reached, the coopers are ready to finish assembling the oak barrel. The grooves inside the oak barrel (called crozes) receive an application of wheat flour paste (while the barrel is upright). After this the crozes... -
ARCHIVED New Here. Not Sure If It's Celiac Or Gluten Intolerance
gfp replied to Abbizzy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I almost never ever say this BUT..... I think you should consider going onto gluten for the rest of the month.... You were not gluten-free for so long but obviously it worked well.... If you get a positive blood test it will be simpler (although as noted you will probably become gluten-free anyway) but in your particular case you have been gluten... -
ARCHIVED Done Crying Now I Am Angry
gfp replied to ravenwoodglass's topic in Coping with Celiac Disease
LOL, that's almost funny.... When doing my masters the science library was all relegated to trailers. They were awful in the summer and awful in the winter.... the power was forever going off and the photocopiers seemed to be so old you had to go over the papers in ink after copying.... The arts library (which contained millions of -
I find Tamales are one of thiose things that are incredibly easy once you get the hang of it . If I don't cook them for a while I loose the feel for how long and the consistency.... and I think its so much about how it feels etc. I have a few things like this and I usually try a couple first and see how they turn out....then you can adjust the amount...
-
ARCHIVED It's Not The End Of The World.
gfp replied to lsmall05's topic in Coping with Celiac Disease
LOL it often actually seems that way..... I don't think its the case but I once saw a documentary on pet food. Apparently they add addictive things to some pet foods. I think the gluten thing is just a symptom of the food industry (emphasis on industry). Food isn't cooked, its engineered and the food scientists look on how to do something as... -
ARCHIVED Done Crying Now I Am Angry
gfp replied to ravenwoodglass's topic in Coping with Celiac Disease
Did he give any reason ??? Perhaps he thinks you would cause a fuss... but that doesn't need to be the case... I wouldn't suggest making waves but doing this in as nice a way as possible. Ask how can they help ... not demand it. Same goes for timing the elevator etc. quite honestly that seems a bit over officious ??? rather just say proximity and... -
ARCHIVED "manufactured In A Facility That Processes Wheat"
gfp replied to *lee-lee*'s topic in Gluten-Free Foods, Products, Shopping & Medications
This is really true, There is a huge difference having a bottle of soy sauce in a cupboard for visitors to put on take away and baking with wheat flour. Even if you spill the bottle you can use disposable wipes and mop it up and you know you did it. My earlier question still stands (and I have no Kraft products) does anyone have a product from Kraft... -
ARCHIVED Done Crying Now I Am Angry
gfp replied to ravenwoodglass's topic in Coping with Celiac Disease
I know its potentially embarassing but as was said on the other thread.... make it official. You shouldn't have to put up with this but as glutenfreewithease has just said.... there are lots of things can help and the prof might turn out to be as cool as hers. Honestly, if I was there I'd go in and do it for you.... surely someone can come in and... -
ARCHIVED From The Gig Thread
gfp posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Both of these really do seem to me to be proper topics for debate at the GIG. As I said, I worded things badly but there is a very fundamental question. Do GIG get paid for the work they do from the food industry. This is really fundamental. It's not illegal and indeed this is EXACTLY the situation in the UK with CUK. In order for CUK to pass... -
ARCHIVED Do Sensitivity Levels Go Down?
gfp replied to dilettantesteph's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I also noticed that the delay seems to have become 'longer' for intestinal reactions though the brain fog starts off pretty quickly. The brain fog is so subtly creeping in its hard to say exactly when it starts.... I just feel a little out of it.. then a bit more then more. Often its my really good friends spot it first....