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gfp

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Celiac.com - Breaking Celiac Disease News & Info:

Everything posted by gfp

  1. gfp
    very good idea
  2. gfp
    Well they don't even know where to take the biopsy.... I can tell from the pm you sent me you are a very kind, polite person who considers other peoples feelings, perhaps they are taking advatange of this? (GRRRR) ... perhaps you could get your hubby or someone to make a visit with you and give you extra backup? Yep I can understand, thats why I'm...
  3. gfp
    This debate has gone forwards and backwards... can you adsorb it? (possibly but unlikely) but regardless its always a risk, under finger nails and such and really better not done... if you are going to do it then pre-made refrigerated dough is a huge plus over having flour floating around which is a almost dead cert... Did you dust the cookies etc. ??...
  4. gfp

    ARCHIVED Italy

    gfp replied to Lexis's topic in Traveling with Celiac Disease

    Just post them and I'll translate... Italian isn't my best language but I can read it perfectly well.
  5. gfp

    ARCHIVED Italy

    gfp replied to Lexis's topic in Traveling with Celiac Disease

    Believe me its a big mix.... Italy is really good, France sucks in a lot of ways.... part of the problem is that many of the chefs take umbrage for suggesting they may have used an industrail additive. A friend of mine owns his own resto and in the early days I used to have to go through everything but he did it because we have a very good mutual friend...
  6. gfp
    Italy is pretty good, last time I flew out I had an early flight so I had already bought a huge gluten-free pizza the night before (this was before the current regulations though which now seem to change daily) .. I figured on taking it on the flight but in the end ate it while waiting...course I had a miuch shorter flight but 10hrs isn't too long... (we...
  7. gfp
    I spent ages doing this... and noone would give me a firm answer. I even went through all the stuff your not allowed to import into Oz and again you can't get a straight answer.... Moreover it seemed to depend on who you got... we watched in horror one inspctor guy who seemed to find something in everyone who passed on his line and in the end we got...
  8. gfp
    I think its also a problem that even if they do take a good biopsy in a child so young they are notoriously unreliable anyway.... From what you wrote I kinda feel like everyone is passing the buck.. I realise its frustrating but perhaps take a step back and decide based on the expected accuracy of the various tests if its worth putting her through it right...
  9. gfp

    ARCHIVED Protien And Workout Supps

    gfp replied to tp23's topic in Sports and Fitness

    Well, I did a lot of research on this when I was vegetarian. What I missed doing was in retrospect looking into the other possible problems with wheat and soya proteins, boy did I eat a lot of Soya protein at the time thinking it would be the best replacement... my mom who's also a celaic is actually very soy intolerant, she had some tablets with soy in...
  10. gfp
    Is it not possible to take him to a normal GI specialist who has knowledge of celiac disease? I realise you want or prefer a pediatric specialist who knows celiac disease but perhaps it would be better to just find any GI specialist who knows it?
  11. gfp
    Im not sure of the logic in that, I see the skin specialists point but that's from his perspective. From the perspective of you and your daughter you have to balance long term discomfort vs short term more discomfort for a skin biopsy... and I'm not even sure the biopsy itself is very accurate in toddlers? Nor is it surprising for the blood tests to...
  12. gfp
    Are you actually reading my posts??? If you actually read my posts their was no 3 day trip it was a layover on route to Australia. I'm starting to wonder if its worth correcting this at all and that you are not simply being deliberately contrary. Perhaps I should just leave it to others who have read my posts ? I really don't want you to be...
  13. gfp
    I think you know the answer .. .. but what age is your daughter anyway? It can be very difficult to get reliable tests from very young toddlers anyway but equally they shouldn't then say "he/she doesn't have celiac disease...." I don't know what I'd do, at one level I'd worry about their overall competance and also worry that as she gets older they will...
  14. gfp
    I agree and though this doesn't directly affect me like you guys I'd say the easiest way is pretty obvious.... Gluten Free should always mean gluten-free.... pure and simple and the limit should be if it can be detected by any method then its not gluten-free. This gives them something to aim for.... Because of CC and mixed product lines and just plain...
  15. gfp

    ARCHIVED Slurred Speech

    gfp replied to Nantzie's topic in Coping with Celiac Disease

    Like Jersey angel just said.... What I gave found is after going gluten-free and becoming more sensitive I get similar things all neuro-based for no apparent reason What I think is that we have different thresholds for GI symptoms and neuro symptoms, perhaps in some people the GI is first and in others the neuro??? For me if I get a tiny CC I sometimes...
  16. gfp
    I think its both.... there is however a mechanism which is scientificly known which I mentioned in my first post on the subject and this is a real withdrawal where the body's mood regulation mchanism is damaged by the gluten. Both gluten and casein are classed as exorphins (you can just google exorphin) which means they are external products that mimic...
  17. gfp
    Wow, I feel a bit less stupid sharing that now, I did wonder but then I thought it best to share) Everyone seems to assume that kids who hate school are being bullied or some other big issue that should be obvious and although these are very important and shouldn't be scoffed at (I have friends who were bullied at school) there can be other deeper reasons...
  18. gfp
    The simplest, safest and best is not to cook anything with gluten it it. Many of us find it easiest (for me its just me and my girlfriend usually and I cook 90% of the time anyway, not just the gluten-free thing) to have no gluten in the kitchen at all. On the very rare occasision my girlfreind gets cookies etc. (presents etc.) they are kept ina plastic...
  19. gfp
    Oops we switch to a secret language when n00bies are around We can't say its really secret .... Oh go-on then Cross Contamination.... its a short couple of words but encompasses 90% of the risks when you are trying as hard as you can....(take me with a pinch of salt on this, I get all emotional over this subject) Anyway, its really important but...
  20. gfp
    Karen, I agreed with your earlier statement but didn't say so just to try and be diplomatic which isn't my strong point. However this is so spot on....I was relating my experiences, its not even that I do this every time I accidentally get glutened either, but it has provided me with insights into withdrawal which was the point of my first post on the...
  21. gfp
    Respectfully, I was attacked in public while posting about gluten withdrawal. Also I agree with elctra, even if she doesn't agree with my reasoning that we do have some duty to make sure factual evidence is presented. One of the main reasons for my long absenses is because this was not happening and the first person answering a topic was not contradicted...
  22. gfp

    ARCHIVED Protien And Workout Supps

    gfp replied to tp23's topic in Sports and Fitness

    Oh well, I've spent way too much time on this. I'm procrastinating from doing something much less enjoyable that having a friendly debate. We may need to agree to disagree and move on. Its up to you, I am more than happy to debate with anyone who is polite as you are....I'm also happy to provide information and I would appreciate you take time to...
  23. gfp
    I can't agree more..... Going gluten-free is not so easy as we think, then once we get used to it its not so hard as we thought Getting into the routine is hardest and this takes practice and almost everyone makes a few mistakes.... If you can eliminate as many risks as possible then you are more likely to identify the mistakes ... Financially...
  24. gfp
    The only way to not take risks is to go self catering and take or buy new your own pots, pans and utensils... I actually do this but its not possible everywhere so I have to either limit WHERE I vacation or whay I do. My last trip to Italy we camped half of the time simply so I could be safe... I ate exclusively in gluten-free resto's which were certified...
  25. gfp

    ARCHIVED Protien And Workout Supps

    gfp replied to tp23's topic in Sports and Fitness

    sigh .. Its really not worth picking points through all the quasi-science but I'll do 1 paragraph.... Its the one that corresponds best to your post and you were so polite about it that I owe you an answer for you to either beleive, research yourself or disbelieve as you like. (see my signature)
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