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NicoleAJ

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Everything posted by NicoleAJ

  1. NicoleAJ
    I actually still get bloody stools from time to time, and I'm not 100% sure if its gluten related. My doctor identified it as ulcerative colitis--I even have the still shots that show parts of my colon bloody and damaged, but the GI doesn't really know enough about celiac to say definitively whether or not it is related to trace amounts of gluten or damage...
  2. NicoleAJ
    Actually I ate at the Hard Rock Cafe in Philadelphia. It's listed in the Triumph dining guide as being celiac friendly (don't buy the guide by the way). So I went there and spoke with the waitress and the manager and gave them my Triumph dining card and she gave it back to me assuring me that all was gluten free, and I was violently ill for days. It could...
  3. NicoleAJ
    You may also consider the fact that you're eating too many fruits and vegetables. I know it's all you've got, but too much fiber can cause quite a few problems with D. I do agree that nuts are a great option as are avocados. Are you maintaining your weight in all of this?
  4. NicoleAJ
    I wouldn't say that not liking D.C.-- city where one has spent a great deal of time and has always gotten sick many times and hasn't found very many accomodating restaurants--is worthy of name-calling or questioning one's sanity. Let's just say that not everyone likes D.C. and save name-calling for boards other than celiac.com where we come for support and...
  5. NicoleAJ
    You may just want to ask your friend for suggestions as to what she generally eats. I imagine that any place with a good salad and an ability to mix it in a fresh bowl with oil and vinegar would probably be a good bet. If not, you might want to go with some sort of reliable Asian place (for tofu/rice dishes) and bring your own gluten free soy sauce. I...
  6. NicoleAJ
    With me it's hit-or-miss. I have had several meals out where I've been 100% fine, but I've had quite a few that weren't ok as well. I usually order the same few things at the same several places and ask for them in the same exact way--most of the time it works out, but sometimes it doesn't. I chock it all up to the cross contamination issues you're talking...
  7. NicoleAJ
    Maltodextrin should be gluten free if it is produced in the United States, but in other places it might be questionable. I tend to make it a policy to call the company and check if the product is gluten free if I see things like maltodextrin, natural flavors, modified food starch, vinegar (if it doesn't specifiy whether or not it is distilled or a vinegar...
  8. NicoleAJ
    I was impressed by the graphics of the villi though--that was pretty cool. I doubt they actually turn black, but it did illustrate the point nicely.
  9. NicoleAJ
    I went 24 years undiagnosed and the only voices I hear are through an ipod. And I may have had internal bleeding, but it was coming out the other end.
  10. NicoleAJ
    Though they had to find some way of sensationalizing celiac for popular consumption and a good story line, I'm not sure that having a young crazy baby-drowning mother was the trick--it somehow seems like a retrospective apology for Andrea Yeats and other baby-killing mothers rather than being about celiac. How many people get cancer that young without...
  11. NicoleAJ
    I was lactose intolerant for years, and I was still having some problems after going gluten free, so a year after my diagnosis my doctor had me do a lactose intolerance test--I just had to drink something with lactose and breathe into a bag at regular intervals--very non-invasive compared to all of the other tests I got. Turns out the test was completely...
  12. NicoleAJ
    Even if you could safeguard against all cross contamination, which would be virtually impossible, emotionally you might feel as though you are doing a great thing, but it might only add to your feelings of being isolated when it comes to partaking in particular foods. When I was first diagnosed, I had people come over for a presidential debate party, and...
  13. NicoleAJ
    BetseyCo--I hope you've found out what was going on since your last post. Don't lose hope. I'm 5'6 1/2" and was down to 94, but four years later I'm actually up to 125 and I love it--I finally fill out my clothing and spill out of my bra. When going on the gluten free diet I was so emaciated and malnourished that I couldn't really eat fatty foods, but...
  14. NicoleAJ
    Erica, It sounds like you have the right idea in just letting yourself heal for now. But I'm in a similar situation where I have a boyfriend finishing his dissertation, and I'll be beginning my own in the Fall. I've got some news for you--writing a dissertation is not so difficult that you cannot cope with life while its being written. My boyfriend...
  15. NicoleAJ

    ARCHIVED Throat Hurts

    NicoleAJ replied to 2old4's topic in Coping with Celiac Disease

    Also, Hall's Sugar Free varieties of Black Cherry, Strawberry, Honey-Lemon, and I think the rest of their sugar free varieties are gluten free--any of their sugar-containing cough drops are not gluten free (even though they look like it when you read the ingredients because the way or the place that they process their glucose has high contamination risks...
  16. NicoleAJ
    Yeah, all of these reactions to Sunmaid dried fruits seem strange to me. I am extremely sensitive to gluten, but I make trail mix with the Sunmaid apricots, raisins, and golden raisins (along with craisins and plain nuts), and I eat it every single day without having any problems (as long as I don't eat too much of the dried fruit). It's too bad that so...
  17. NicoleAJ
    Thanks for posting the recipe. Though I love Gluten free Pantry brownies and many other products of theirs, I was seriously underwhelmed by the angel food cake.
  18. NicoleAJ
    I'm going to visit Kalamazoo tomorrow through Saturday, and I was wondering if you have any decent restaurants that are accustomed to dealing with celiac? Or grocery/health food stores where I could buy prepared foods?
  19. NicoleAJ
    Thanks Mango for posting this topic. For those of you with allergies, how do you deal with them? I'm allergic to arrowroot, and a few months back it wasn't listed in the ingredients for a gluten free sauce that I ate (must have gone under "natural flavors"). Before diagnosis I used to just feel minor throat constriction when I ate arrowroot accidentally...
  20. NicoleAJ
    Wow, Molly, I'm also glad that you got your diagnosis in time. It's really interesting for me to hear your story because I had the exact same symptoms as a baby--vomiting and all (except for constipation--I had D instead). However, it was the late 70s and they didn't do all of those wretched tests (or even a test for celiac disease). My mom was convinced...
  21. NicoleAJ
    Woo Hoo! What great news.
  22. NicoleAJ
    When they say no gluten in their recipes they really mean it too. If they are making a dressing that contains known allergens or gluten on their line then they always produce that one after the non-allergen or gluten containing products have already been made. After they finish with the allergen or gluten containing recipes they sanitize all of the equipment...
  23. NicoleAJ
    Yes, I just edited it. Thanks for noticing. I can't imagine anything fried in only egg coating would be very good.
  24. NicoleAJ
    I just had great success with chicken fingers tonight (I also used to like Popeye's chicken). I've had lots of good fried chicken, but this was by far the best for chicken fingers. Of course I eyeballed it so none of these measurements are truly accurate. 1/2 cup rice flour 1/2 cup tapioca flour 1 Tsp potato starch 1 Tsp Adobo seasoning 2 TBSP Xanthan...
  25. NicoleAJ
    Tanya--thank you, thank you, thank you. I'm so excited that you posted this list and had such a great time (with no gluten problems) in Paris, especially since I'll be there on May 24th. By the way, when you say chicken salad do you mean a salad with grilled chicken on it or chicken salad made with mayonaise? Did you find a lot of things had mayo in...
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