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Lillyth

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lillyth

  1. Lillyth
    Thank you! I just made sure I can get email notifications, so if anyone has an questions about disc replacement, feel free too pm me!
  2. Lillyth
    Thank you. And now, because of this thread, I am having the celiac conversation with folks over at my spinal forum! I am going to see if I can figure out how to get the site to email me if someone needs me. I'm not on here but want to be avaible in case someone needs me.
  3. Lillyth
    I haven't been on here in years, and I know this topic is very old, but I just wanted to bump it and mention the possibility of going overseas to get the discs fixed. I am doing that this weekend. I will be the first American to have six levels replaced in my spine all at once. Don't suffer needlessly. My theory is that the disc problems happened...
  4. Lillyth
    Yet another port I can find NOTHING about. Anyone ever been here? Or know anything even in general about Nicaragua? Thanks!
  5. Lillyth
    Thanks to Larry, I now have ports 2 and three taken care of! Now we come to more difficult territory. Guatemala. I recall once having Guatemalan food, but that was before, when I didn't know there were things I couldn't eat. I would love any and all info on this particular city that anyone has, or even on Guatemalan food in general, since I don't...
  6. Lillyth
    That is so great to know, Larry, thank you! I will take your advice, and happily. I am very glad to know I will get a more authentic experience - I was worried I would be stuck with only high end resort type places - which, while I love such food, is hardly the *real* Mexico. You just took care of two ports for me! Now for the other eight.
  7. Lillyth
    Hi everyone! I am looking into going on an 18 day cruise from San Francisco through the Panama Canal to Ft. Lauderdale. I will be asking intermitently about ports of call. I am trying to ascertain ahead of time if it will be worth it for me to go. Luckily I found a place in Cabo San Lucas (Sunset da Mona Lisa) that everyone seems to recommend, and...
  8. Lillyth
    McCann's is NOT gluten free! The following from their website: Open Original Shared Link Are McCann's Oat products gluten free? All McCann
  9. Lillyth
    Just in case anyone searches this in the future, it is a generic drug, so you need to contact the specific mfr. for exact info. As of 9/24/07, Watson Pharma, who makes Kaiser's Nort., says they are not a gluten-free Pharma Co, which mean they do not certify the gluten-free status of their drugs. The most likely source for gluten is, however, starch...
  10. Lillyth
    The pharmacist I spoke to says it's not. My doc says she spoke to a pharmacist who says it is, and an old post from 2005 says it's not. Anyone know for sure?
  11. Lillyth
    Hi There Rachel! I have to say this is really funny that the first post I read & respond to is yours, since you just told me to come here. Anyway... I don't know about the corn, but are you hypo or hyper thyroid? My doc to me I was hypo a few years back, and, being that we are both anti medication unless all else fails, he suggested I start...
  12. Lillyth
    At the Stanford Celaic Conference yesterday I spoke with Dr. Peter (I think) Green. He is one of the MAJOR experts on Celiac. He told me that a Celiac who has been on a Gluten Free diet for a while may very well test negative for Celiac. Also, when I went through the gammut of allergy tests a few months ago, I was very perplexed to find out I tested...
  13. Lillyth
    As a matter of fact - thanks to the Celiac Conferece yesterday, I do! Oats do not, of themselves, contain gluten. But because of the ways in which they are grown, they are often contaminated with wheat. There are two different mfrs. in the US that carry gluten-free oats. I don't know their names off the top of my head, but if you do a search...
  14. Lillyth
    My two cents: No, the mother was NOT being responsible. I have been in a facility, personally, that says they use dedicated equipment for wheat & corn. All the equipment is wood, which, as we know, retains gluten. When I was witnessing the milling process, wheat flour was EVERYWHERE!!!!! The mills were one foot apart. I had a hard time even...
  15. Lillyth
    Bubbies
  16. Lillyth
    I heard today that the distillation process is slightly different for vinegar vs. alcohol. Dunno if it's true or not. Funny, for me, it seems to be something in common between distilled alcohol & vinegar - wine is okay for me. If you don't mind my asking, what are your symptoms? (Maybe we can find a common thread here)...
  17. Lillyth
    That is exactly how I feel! Everyone keeps telling me that, as a celiac, these things are safe - yet I always react to them precisely the way I do to gluten. For more see: http://www.glutenfreeforum.com/index.php?showtopic=23890 I'm so confused about this! I keep hearing that it is okay, yet I keep having reactions... And the fact that I am not ...
  18. Lillyth
    I went to the Stanford Celiac Conference today, and asked the folks there about the distillation process and how that works with alcohol made from grain. I won't bore you all with the lengthy answer, but the long and short of it is that this debate may never be put to bed: the distillation process should remove all of the gluten, but depending on the...
  19. Lillyth
    I didn't see anywhere in his/her post that said everyone shoucl give up foods that do not agree with him/her. Given that blue cheese started as a substance bourne from moldy rye bread, I don't see how this is anything but cautionary. There are strains of blue that are consumable by celiacs (Outback Steakhouse, TJ's), but as a general rule, I think that...
  20. Lillyth
    I will be going to the celiac conference at Stanford next month - I will be sure to bring this topic up, and see what the folks "in the frontlines" say. As for reacting vs. believing you are reacting - is there really a difference? I mean sheesh - am I really having diarrhea, or do I just believe I am having diarrhea? Isn't the end result still diarrhea...
  21. Lillyth
    I, personally react to Gin. (And all other distilled grain alcohols). Again, not to restart the distilled-alcohol-safe-or-not debate, my advice would be to have a glass (or should I say a Gin drink), but only one, moniter yourslef to see if you react. If you do, don't drink it anymore. If you don't react - GREAT! FYI, my molecular biologist friend...
  22. Lillyth
    Does anyone know if Frenet Branca is gluten-free? I emailed them and haven't gotten a response yet. If anyone knows, I'd appreciate a response ASAP, as I am going out tonight. All my friends drink it, and I like to give it a try, but not at the expense of my health. TYIA, Lil
  23. Lillyth
    Annie's makes a great Chipotle BBQ sauce (gluten-free). it's super spicy. Too spicy even for me (and that's saying something!) I usually buy the Chipotle BBQ sauce, and either their regular or Honey Maple and mix them together. I don't know what stores are near you, but here is a link to Whole Foods locations in NC Open Original Shared Link I...
  24. Lillyth
    From a few months ago. Not that I imagine you were all sitting around on pins & needles waiting for MY biopsy results, but I thought it might add to the whole celiac *drama* that seems to be DH biopsy tests. They came back "inconclusive". All they could tell me is that at some point, my skin had been itchey, inflamed and irritated. DUH...
  25. Lillyth
    Both my sister and I (separately and without taling to one another about it for weeks) have been glutened by Amy's. I guess this teaches me to call right away every time now. When I called Sojo Foods about a glutening, they fixed their very next batch, and also said that my call was the first they had gotten. (Funny then that I have been glutened...
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