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celiac3270

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Everything posted by celiac3270

  1. celiac3270
    I did a quick search on google for gluten seizures and this is what it came up with: Open Original Shared Link Open Original Shared Link
  2. celiac3270
    Yes--it's not bad at all. I was quite scared before my first one a little over a year ago, but by the second, I knew what a breeze it was--don't let the endoscopy scare you
  3. celiac3270
    Of course--the positive is that as a division of Hershey's, Reese's won't hide gluten...
  4. celiac3270
    I agree--my non-celiac brother wouldn't eat vegetables either--then he found ketchup . For years he dipped vegetables and meat in it, and even grew to like noodles with ketchup. However gross it seems to us, it works, and it won't hurt to add a little extra ketchup to ones diet.
  5. celiac3270
    Yes--I've heard the same thing about Trader Joe not being reliably gluten-free. They used to claim that some product was gluten-free and someone called them about it since it contained "barley" on the label. They then realized the mistake, but it tells you something if they claim something is gluten-free and write barley on the label. I've had a similar...
  6. celiac3270
    Clan Thompson also makes product booklets -- for foods, prescription drugs, over-the-counter medications, etc. There are confirmation dates, whether the product is gluten-free or not, vegetarian or not, etc. and also the company's phone number, so you can call them to make sure it's still gluten-free. They're small enough to fit in a pocket, paperback,...
  7. celiac3270
    Thank you . It's.....not terribly common, but not rare either. They can't explain it, but it usually isn't too big a deal, since it's often found in infancy (though not in my case). Nope...this doesn't require a celiac diet--or any special diet--but I have Celiac Disease, as well.
  8. celiac3270
    Sorry...too many posts on NYC to post this under all of them, so I'll just start a new thread. The Gluten Free Awareness Program added 2-3 restaurants for New York City: Open Original Shared Link Open Original Shared Link And there's another without a website. Here is the entire list for NYC (Peter's Gourmet Diner and Restaurant, or something): Open...
  9. celiac3270
    BUMP (Gabel wanted to reach more people in their 20s...) EDIT: oops, sorry...didn't realize it would already be at the front from a recent post.
  10. celiac3270
    The ads don't cover the posting area for me, but when I have the window in a normal mode, all the text in the posts are crunched together. Therefore, I've been maximizing the window so I can see everything better--the way I used to . It was fine with ads on the left, since those just continue down the column that's already taken up with links to sections...
  11. celiac3270
    Oh, about the malrotation: Malrotation of the intestines happens when the fetus is still inside the mother and is usually spotted by doctors shortly after birth. In my case, they missed it entirely and it took them fourteen years to find it. What should happen with the intestines is that sometime during the development stage inside the mother, the intestines...
  12. celiac3270
    Oh, shoot--I'm sorry. I forgot about additional allergies: dairy, soy, yeast, eggs, etc. If it's the milk chocolate, I bet it has dairy in it. Let me check: Modified whey, soybean oil....I don't even need to go any further than that. There's the dairy (whey) and the soy...sorry! I should have looked before I posted that.
  13. celiac3270
    I can't think of any appropriate prayers (I'm not terribly religious...just spiritual, perhaps, so I don't know many "official prayers"), and don't have any poems. What I can say, though, is that we'll be thinking about you and many of us have been through at least one, in some cases, both of these tests--and we survived. We'll be thinking hard for you...
  14. celiac3270
    Hershey's will list all gluten on the label and the following I know are gluten-free: Butterfinger, Snickers, Milky Way Midnight (NOT regular), Reese's PB Cups, Tootsie Rolls, Tootsie Pops, Charm Blow Pops, M&Ms, Skittles, Starburst, Jolly Ranchers......... Heinz Ketchup is gluten-free. There are extensive product lists at Delphi Forums and there...
  15. celiac3270
    It is very unlikely that you have refractory sprue. Doctors will often throw around that term when your antibodies aren't going down, but it's so rare. Usually you're consuming some hidden gluten and that's throwing it off....go through everything: toothpastes, foods, possible sources of contamination...maybe go back to just fruits, veggies, potatoes, etc...
  16. celiac3270
    It sounds like you have the right attitude. I live in New York City where I know I could find support groups where you meet with people in person, but I love this site and this is the best support group I've found! I agree with you 100%, too about educating yourself about celiac--that's the attitude everyone should have when starting this diet . If...
  17. celiac3270
    I agree--there's no way I would intentionally eat gluten at this point--even for the sake of other celiacs who may be hoping for a cure. I'm skeptical--we've heard things like this in years past that never ended up working. Besides which, we're better off not eating all the food we were before. Additionally, Dr. Green, in a radio segment awhile ago...
  18. celiac3270
    For hot chocolate, also, the Swiss Miss milk chocolate packet is gluten-free.
  19. celiac3270
    I drink Lipton--the regular teabag (decaf or regular) is gluten-free.
  20. celiac3270
    Yes--the forum stats are at the bottom of the main page. You'll notice, though, if you go to "members", which is near to the "search", "help", and "view new posts" options--that most of the members don't have any posts--or have 1-5-- -- and tend to just read the threads.........so there aren't more than a couple hundred members who are actually posting...
  21. celiac3270
    Cool Whip is made by Kraft, though, so any gluten must be clearly listed on the label. Of course, once the spoon goes from the strawberry shortcake back into the container, it's contaminatd. You should keep separate jars/containers of everything: peanut butter, jelly, butter, etc. unless you can be 100% sure that you don't double dip with gluten containing...
  22. celiac3270
    In food in the US, maltodextrin is always okay. In prescriptions/medication, it is questionable. Outside the US, there are no guarantees.
  23. celiac3270
    I know....so soon if it actually worked. Two sad things, though: We'd be relying on a pill when we could feel fine through dietary restriction and no drugs. Boards such as this one, though not becoming obsolete, would be less popular, since people could just pop pills....and we wouldn't make all the friends that we have on here
  24. celiac3270
    I know this was joked about before , but apparently, eating gluten-free is the new fad: Open Original Shared Link
  25. celiac3270
    Another possibilitiy for that miracle pill--for celiac and diabetes: Open Original Shared Link
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