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JodiC

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Everything posted by JodiC

  1. JodiC
    I don't know if this is in the right forum but here goes........ I find it interesting that so many people are being diagnosed with Celiac and or other food intolerances. Obviously, the manufactuers of food and products have the ability to alter their ingredients. Just look at Kraft foods. The majority of their foods are gluten free without comprimising...
  2. JodiC
    Hi, I also have had a hysterectomy due to endo. I've discussed this with my doctors and they agree that these conditions are linked to Celiac. Not that everyone has celiac but if you do then the problems can be more severe and effect more systems. Had I been diagnosed with Celiac ages ago I probably would still have my uterus and ovaries. I would...
  3. JodiC
    Hi, I'm sure this has been asked already but I don't get on too often. What is the deal with Wheat Starch in foods? Is it safe for us or not? I noticed that alot of previously safe food have now added this but do not claim the wheat in the allergen label.
  4. JodiC
    I too have demyelinization and "tia" looking lesions. After being sick my whole life (I am 31) I was finally diagnosed 1 year after having a MRI. First they thought I had MS and I spent about 8 months thinking that. Then an internal med doctor suggested testing for Celiac. I thought he was nuts, but turned out he knew what to look for. Never stop demanding...
  5. JodiC
    I have the same problems. I have had all the tests run for vitamins, hormones, etc. Weight is the only thing I cannot seem to get a grip on. There has got to be a reason for all of this. It would be great if an answer was found. Does anyone else have elevated cholesteral levels also. Mine were great until I went gluten-free. I follow the diet and know...
  6. JodiC
    Thanks!!! I will try that.
  7. JodiC
    I emailed the Mayo also because I doctor there in the Celiac Clinic with Dr J Murray. He told me to stay away from as many gluten containing products as possible. I wonder if he was one of the specialists consulted for this answer?
  8. JodiC
    Just to let you know... Until the intestines are healing you probably won't gain weight. I can tell you from personal experience that the weight will come back and then some. As the villi come back more and more nutrients will be absorbed along with carbs and fat. It can take up to 2 years for the intestines to fully heal depending on the amount of damage...
  9. JodiC
    What do you guys use for the stuffing. We tried it with tapioca bread, baked in oven etc etc. I thought it was horrible. Is there a premade bread to use for making stuffing? thanks!
  10. JodiC
    Try taking acidophilis, bifidus, and lactobillis. Available at Wal-mart or any health food store. I know you tested negative for celiac so you should be using your time to find out what is really going on. Many diseases and symptoms can look like celiac. You really need to look at the whole picture.
  11. JodiC
    I know this is the one of the worst diagnosis ever. Just as you get one thing working right another shuts down. Your symptoms sound like extreme vitamin defenciencies to me. Since you have been gluten free for only 2 months you could not possible be gaining the nutrients you need yet. I hate to say it but it may take up to a year or more for your digestion...
  12. JodiC

    ARCHIVED Chest Pain

    JodiC replied to a topic in Related Issues & Disorders

    I definately agree with getting an EKG and cardiac labs done. If that turns out okay you may want to get your vitamin levels checked. D, C, and thiamin can cause atypical chest pain also. If these levels are low then your heart is working way to hard giving you syptoms of angina. Hope this helps.
  13. JodiC
    I too struggled with this until my internal med dr checked my vitamin D levels (all of them) and my vitamin C level. Both were dangerously low. I was prescribed 50000 units of D3 for 8 weeks. and 2000 of C. Felt much better. Now I know when I start getting the same feeling in my legs and arms to up my vitamin D and C. Especially now that it is winter...
  14. JodiC
    I just spoke with the Mayo Clinic (I doctor with Murray) and they are doing the trials right now. In fact this is the 2nd phase of trials they are doing. I am not able to do the trial because I only quit smoking a week ago and you have to be quit for 6months or longer. Also your BMI must be between 18.5 and 38, no alcohol for 48 hours before the tests...
  15. JodiC
    I think I eat enough fat? I am having problems with gallbladder and pancreas and have noticed bms are very different than when I get glutened. Like I said I eat alot of veggies and lean meats so maybe I am not eating enough. Though the fact I haven't lost anymore weight is frustrating. Also like I said I have been taking daily vitamins all along so was...
  16. JodiC
    I am going to be going in this week for iron inffusions. I was really hoping they would work and I would feel alittle better. I wonder if there isn't some bleeding going on somewhere in your body that is causing this. What is the rest of your bloodwork like? I am dealing with extremely low levels of iron, D and C (scurvy).
  17. JodiC
    All of this is happening despite having healed intentines. My last biopsy came back okay according to the GI dr. I am already taking a vita D supplement although now it is prescription and at very high doses. Taking vitamins will affect the results because if you need them you need them. I was taking all the necessary vitamins and am still showing up...
  18. JodiC
    Well I went and had my levels checked on some common vitamins. (Internal Medicine Dr ordered these) Vitamin D - severely low (muscle/bone pain, weight gain, fatigue etc) 50000 IU per wk over 8wks Iron (all levels) - severely low (fatigue, pain, weakness, near fainting etc) will get iron inffusions IV Vitamin C - severely low (rare) (heart problems...
  19. JodiC
    Hi and welcome, I would have your doctor check the following levels - Vitamin D Vitamin B (all of them) Vitamin C Iron Folate Phosphorous Calcium Due to the fact you were diagnosed later in life severe malabsorption would cause your body to not be able to get these from your diet. Vita D deficiency can cause slow weight gain and all the symptoms...
  20. JodiC
    Thank you for your replies. It completely breaks my heart to see them suffering so much. I didn't want to take them gluten free in case it could actually trigger the disease. I don't know if this is true but as a mother I worry. I know what to do for myself but am unsure when it comes to my kids. Maybe it's more of wishful thinking that they don't have...
  21. JodiC
    I have Celiac (diagnosed finally in 2005 after years of illness) and am wondering how to tell if your child has it? I can't remember back when I was his age what kind of symptoms I was having. My twin boys seem to be plagued lately with headaches and vomiting. In one of the boys, the headache comes on very fast, causes him to vomit uncontrollably and then...
  22. JodiC
    You may have already gone to S'toon but I think the price range is around 150.00 or less. I don't know for sure. The lady that does it is Karen. My mom was very happy with the results and feels 90% better since doing it.
  23. JodiC
    Endometriosis can also cause some strange symptoms. Also in Saskatoon there is a Biofeedback clinic that can help identify intolerance to all kinds of food. It is right next to Mom's Bulk on 22nd (I think). My mom went and did that and found out what foods she should stay away from. The cost is also very reasonable. When we come up on vacation this...
  24. JodiC
    I think that once you are not reacting to gluten anymore you start to notice the damage it was actually doing to you.
  25. JodiC
    I too have occasionally eaten cheetos at work. And then the next day felt glutened. I am so sick of companies that don't realize the damage they are doing. (or don't care). You think they are safe, get sick, go to dr (who says you must be ingesting gluten somewhere), and go home with no answers, only to find out you have been ingesting gluten. How do...
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