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JodiC

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Everything posted by JodiC

  1. JodiC
    Welcome. Find something that has been a constant feeling for you. For instance, my grandmother always commented on my dark circles under my eyes. After going gluten free they are gone. Now when I see the circles I know I have been glutened. Also acid reflux is worse. You will start to notice the difference.
  2. JodiC
    I take Prevacid for the reflux and hate the fact that I even have to. Did anyone else's voice change due to inflammation of the vocal chords? This is also caused by acid going up the back of the esophogas instead of the front. Had to pay yet another doc for that answer. Doing the gluten challenge caused my stomach to have peptic apperaring erosions, delayed...
  3. JodiC
    Lister - I too had to transfer with my job due to celiac. I worked in a nursing home and had to feed the residents. My doctor told me that I wasn't even supposed to be cutting their food or handling it. They wouldn't allow me to wear gloves while handling the food because they thought it would look bad. After all this is their home. Even at home...
  4. JodiC

    ARCHIVED Fibromyalgia?

    JodiC replied to a topic in Related Issues & Disorders

    I too have fibromyalgia and wasn't sleeping. My doc put me on amitriptylin 10 mg 1 hour before bed. What a godsend!!!!!!!!!! I am able to sleep through the night and the pain is so minimal that I can get through the day. I am even going back to work. This drug is also an antidepressant, but is very affordable. It also works on some of my digestive...
  5. JodiC
    I just looked in my medical book regarding vitamin K supplemation. It says: "It is only needed in small amounts. It is used mainly for blood clotting but also for kidney function and bone metabolism. Requires some dietary fat for absorption. Bacteria living in the intestines produce about half the bod's needs, the rest comes from diet. Good food sources...
  6. JodiC
    Hang in there. All the testing and doctors can be very overwhelming. You can keep the costs down by being knowlegable about the disease. Do research!!!!!!! Read everything you can. Print it out and take it with you to the appointments. When you go to see the doc be specific about the tests you want run. Explain that money is an issue and you cannot...
  7. JodiC
    I don't know if this is true or not and can't remember where I read it. I heard that after a certain age Celiac will go dormant and than will show up again around puberty. I had my kids tested at ages 4 and 5 and they were all negative despite having symptoms. Someone told me (or I read it) that I should wait and retest them around puberty. Any advice...
  8. JodiC
    I had very long and painful periods also before diagnosis. Unfortuately, we didn't diagnose in time and I ended up with cervical dysplasia (stage 3) and then Endometriosis. I ended up with a complete hystorectomy at 27 and menopause. Celiac is the cause for all of these problems so if you are not clearing up on the diet I would definately check with your...
  9. JodiC
    I just found out I had mono at some point in my life though I can't remember when. I think I had symptoms my whole life but only showed up when I was with grandparents and dad. My mom was an atkins fan and never cooked anything out of a box. I remember as a child wishing we could go to McDonalds, now I'm glad we didn't. Ended up with anemia at 12 and...
  10. JodiC

    ARCHIVED Mayo Clinic Celiac Center

    JodiC replied to Eric's topic in Doctors

    I went back because I started having new ab pain. I was also extremely tired despite being gluten free. My family doc was stumped and through the research I was doing found out about Dr. Murray and had her refer me. I too had heart trouble... turned out to be low potassium. Now I have a abnormal T wave that needs to be explained. My advice is to find...
  11. JodiC
    You have to also make sure that you are not using any shampoos, soaps or make-up with gluten. Alot of those products have gluten in them. Me and my kids will still break out if I am not careful.
  12. JodiC
    Thank you so much!!!
  13. JodiC

    ARCHIVED Candida

    JodiC replied to a topic in Related Issues & Disorders

    If you can find a Shaklee distributor I highly recommend the Optiflora supplement. These will definitely rid you of the extra yeast.
  14. JodiC
    Depending where you live you could try a biofeedback machine. These will tell you what you are allergic or intolerant to. You could also contact YORK INDUSTRIES (out of New York). They do a blood test for all the major allergens. Sometimes other conditions can cause your symptoms like endometriosis. This is what finally alerted my doctor and me to start...
  15. JodiC
    I too had this pain. Turned out to be my liver. Because of celiac our bodies organs respond differently to gluten. Some people's livers will send off extra enzymes to deal with the "toxic" problem. My levels were only slightly elevated but is something my GI is monitoring closely. I am actually due for blood tests next month to see if they have come...
  16. JodiC
    I'm pretty new to these message boards and was wondering how do I know if someone has answered a question I have asked. If you can help it would really be appreciated.
  17. JodiC
    What Kraft cheeses contain gluten? I had called them and they claimed that tey don't and it would be listed on the label. I have Kraft American singles here and cannot see which ingredient is gluten? How can you tell? Thanks for the advice.
  18. JodiC

    ARCHIVED Mayo Clinic Celiac Center

    JodiC replied to Eric's topic in Doctors

    YES, this man is wonderful. When I first saw him he ordered tests that no one else had thought of. In a matter of 4 days I had seen so many specialists it was hard to keep track of. By the end of my stay there I knew exactly what I was dealing with. Celiac (which we did end up doing a challenge for - still positive), Sjogren's, Fibromyalgia, ostiopenia...
  19. JodiC
    I just did a 3 month gluten challenge (doctor ordered). It almost shut down my intestines, so it is not worth it. Not to mention the fact that now I have to remove the gluten from my system all over again. This is a disease that needs to get the recognition of the medical community so that research can be funded and a cure can be found. The fact that...
  20. JodiC
    There's a Celiac dictionary!!!!!! Where do you get them???
  21. JodiC
    I am fairly new also. I was diagnosed 1 year ago (Feb). The Celiac.com ingredient lists are great. They have helped me with shopping and chosing the right products. Even after a year I still find myself doing things without thinking so you have to be on your toes constantly. I always knew there was something going on with my health and was thrilled to...
  22. JodiC
    Not that I know of except maybe DNA testing. Is there some question to whether or not you are Celiac? I went through that after symptoms returned. I did a 3 month challenge and have even more damage. Be careful of that one.
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