BRUMI1968

You reminded me of what I'd say about paleo. I think I very much benefit from not eating most grains - and no beans and no refined sugar. I went over a month w/o a drop of sugar a couple weeks ago; then we had some guests and they brought gluten-free pastries they had bought special in Vancouver, so I felt compelled to eat them. Now I'm weaning off sugar again; it happens so quickly - the hook.

But the no beans has helped tremendously with gas. The no grains has helped as well, with bloat and with gas. I can't do dairy either, without bloat and gas and C, so it works well for me, this diet. I do eat millet bread almost every day - and I'm glad I have that for calories, because I'm a bit light right now, and any downspiral in weight freaks me out.

Anyway, I think giving paleo a try is well worth while.

I tried it an conceptually like it. But too many nuts bug me. Also, I had a hard time keeping on weight. When winter rolled around, i added potato and millet bread to keep warm/fat.

If you have weight to lose, I think it's an awesome healthy diet. Expensive, though, it can be. Especially if you get organic.

Good luck.

The food coop in PTownsend lists it's allergens - in the deli part. They also often have raw food choices there, which are really good. You should not have a problem if you go to the co=op. It's right off the main drag. In the summer, they often have grilled salmon, though I don't know if it's gluten-free. Have fun.

I used to live in Port Townsend. There is some gluten free stuff at the co-op there. Does P.A. have a food co-op or natural foods store? I see on the web a "Good To Go" natural foods store, as well as "Country Air Natural Foods". I don't know if either is good, but often healthfood stores have stocks of gluten free stuff. They would also be likely to order things in for you.

Also, I think there is a support group:

Port Angeles - Resource:

Contact: Joe Clemens

P.O. Box 3201

Port Angeles, WA 98362-0342

Tel: (360) 417-0307

I got that off another page, so am unsure it is still the case.

Good luck. The peninsula is beautiful. Hopefully you'll get out to the coast and do some of those amazing day hikes with the huge rock sculptures on the beach.

Welcome to WAshington!

p.s. I live in Bellingham now, close to the Canadian border.

INteresting. Malabsorption of nutrients needed to avoid muscle cramping maybe? Not sure. Anyway, glad you got diagnosed, and can start eating right. Good luck to you.

Hey all. anyone get glutened from Lundberg Rice Chips? i ate the mustard flavored ones.

Yeah. Based on the fact that I still feel terrible (sleepy, stupid, stomach, bowels), I'm thinking it must've been gluten. I'm going with the salmon burger dinner or the Lundberg Rice chips - both of which claimed to be gluten-free, but who knows for sure.

It's just extra irritating because eating seems to exacerbate my feeling icky, and I'm wasting away, and hungry. So what to eat for dinner? I'm thinking of going with something I'm just stone cold used to, like eggs and hash browns. I don't have any good "fall back" foods, even rice seems to bug me sometimes.

meimak - good luck to you.

I wonder why we have to pee so much when we have D -- doesn't that seem backward?

Same bacon as always: beelers gluten free. The one possible gluten source was the day before: Lundberg Rice Chips, which are supposed to be gluten free, but I've heard on here otherwise.

Gluten would explain the extreme fatigue and weird brains...I just wonder what the difference is between pancreas related problems/D, and gluten ones. Could it be the fat/bacon? Or did I get glutened?

Okay...so when I was camping the other day (and shortly after eating a huge amount of bacon fat), I had to run to the lovely pit toilet and deposit some terrible poop, that I can only assume was fluffy, like the last time I had a bacon reaction -- based on the smell and the feel (you can't really look into a pit toilet to gauge the damage).

So today (3 days later?), my poop is like that again, only slightly less vigorously so. Fluffy looking. Amazingly smelly. Floating - to the point where it is hard to flush down. Not really formed, more like blobbed loosely together.

It's unlikely, though not impossible that I was glutened. I'd had rice chips mustard flavor on the way to the camp (the day previous to the poop), and tonight I had tortilla chips I'm not sure about...it almost seems more fat related or something, though today I did not eat much fat (well, some coconut oil maybe).

Any ideas?

p.s. was a C celiac sufferer, not D, so it's all new to me.

p.p.s. the water where I was camping was questionable, but I don't think I drank any of it until after the episode at the camp.

Ditto on the raised feet. Squatting is the natural posture for pooping. i sometimes move our magazine rack to in front of the toilet and put my feet on it. Not only does it help with C, it also helps get all the poop out, instead of leaving some in there for next time.

I've been taking one 500 mg. tablet of Turmeric each morning and night (2/day) for several months now and I can promise you I haven't turned orange (my hubby would have said something, I'm sure of it :-)

Sorry, I meant eating the actual spice, not pills. I wasn't very clear. I eat turmeric pills as well.

I just want to add something as well. Although my story differs in symptoms (keep the bloat, but reverse the D), I went undiagnosed for 35 years (diagnosed at 37) and now have been gluten free for more than a year, as has my whole family in support (in the house, anyway).

A couple months ago, I noticed that I had started doing more things I hadn't done before: camping, rock climbing, fishing, tennis, etc. I started to feel differently about my body -- no longer a mysterious enemy that might attack at any time, I now had understanding AND way less attacks.

The camping thing was a big step for me, not having liked camping as a child. I have done alright with it. I just went with my fly fishing class on a three-day camping trip to Hozomeen Mountain, Skagit River, and Ross Lake ("Hozomeen, Hozomeen, the most beautiful mountain I've ever seen" - Jack Kerouac). I got terrible D day two (not from gluten, but from too fatty a breakfast I think), so stayed in my tent, but I refused to go home, and stuck it out, catching a nice rainbow trout the next day.

I haven't mastered any of this stuff. I can just say that there is a profound change in the way your body works with you, the way you view your body, the way you use your body, as you get more and more well. I can even communicate more clearly now with others.

The way I look at it is this. I tried all my life to seek comfort, becuase I was terribly uncomfortable all the time. Now that I am not uncomfortable all the time, I am able to abandon my comfort zone, and seek out other sorts of pleasure/experience with my physical body, and with my communications with others -- I can take more risks on both spheres, because I'm not feeling weak and disconnected. When I came home from rock climbing for the first time bruised to the nines on both knees, they were like victory wounds.

Good luck.

This really depends on the breed. If your dog can handle running, it's probably really good for them. But if they have short legs, short noses (hence, trouble breathing), or short stamina, not such a good idea. For example, a lot of people hurt their dogs taking them mountain biking. Only a few breeds can handle that much exercise at once. Running, though, should work for most dogs. Plus, if you're female, it's much safer.

Good luck

Can you tell us the milligrams of tumeric and how much you take? I am wondering if you can just use the spice preparation instead of pills.

I believe you would have difficulty getting enough turmeric to have effect. It is an anti-inflammatory, once in the system, as effective as asprin. That is probably part of why it works for C. (I had never tried it for C.)

Plus, it is very orange. You might turn orange if you ate a lot of it, I don't know.

A great gluten-free nice chocolate is DAGOBA. It's a bit pricey, but is gluten free. I think some Hersheys might also be gluten-free - but I only eat Dagoba, since it only has all natural ingredients, uses fair trade chocolate, and is, I think, organic.

Good luck. It's nice to hear you care so much and want to be helpful.

Why is he getting the blood tests for celiac disease done now? If he has been diagnosed with DH, he automatically has a firm celiac disease diagnosis. The blood test may not be positive, since people with DH often don't have destroyed villi, because it affects their skin more than their intestines.

He goes to a clinic that requires this nonsense...I'm with you about the blood test. Thanks for reminding me about the iodized salt - I know he eats that. I'll get him to the non-iodized sea salt asap. Thanks.

Okay. My step dad, who has given me nothing but grief about my weird celiac-eating habits (bringing my own cutting board to their house), has been diagnosed with DH. (Never mind my not very nice yet nonetheless slight feeling that karma has been exacted.)

He's getting blood tested for Celiac on Thursday.

Any advice I can give him on starting the gluten-free diet? He does not like to buy expensive food, and has never been into health food, so "organic" hippie stuff (like I eat) probably won't fly too well with him.

Please advise.

Also, his rash is going full boar -- so besides the diet, any advice on his skin?

Thanks, all!

WOW! Looks like a catfish. Looks heavy too.

Did you also see him/her move the fish so that it aligned with his/her body for better flying? I love that ospreys do that; have never seen it up close. Congrats to you!!!!

-Sherri

Thank you! I'm so green, I don't know much...but every time I practice that chord I like so well, I feel, well, unsatisfied. So thanks a ton!

Ow...my fingers hurt!

Okay...my man and I just bought guitars. I found this chord I really like: A major 7th. But it sounds like it's leading to something -- you know, like some sort of resolution should be played right after it. WHAT IS THAT RESOLUTION? Help! (I need some music theory to go with my very sore fingers).

p.s. just for curiosity sake - I bought an acoustic; he bought electric. Neither of us play a lick, so it's been fun getting started together.

Also, what's with guitar music free online? I printed out "Knockin on Heaven's Door" and as a singer, I can guarantee those aren't the chords that he's singing in front of. Is it some kind of cruel joke?

I have stunning enamel, and have only one cavity in 39 years. But so does my grandmother. We don't have such great gums, though.

I have pretty weak legs too, but part of that is because my torso and my legs don't get along, thanks to a crazy pelvis. I just started physical therapy, so hopefully it will get better.

Maybe try pilates to strengthen the whole body, to see if you get the top and bottom working together to take some of the pressure off your leg muscles.

-Sherri

You are not crazy. We don't have llamas - but we live in suburbia. We hope to get one or two or three when we move to Montana and have sheep or goats. Good luck to you!

Meat rollups are good. and BLT salad is pretty good.

as to replacement bread, I like the Millet Bread by Food For Life. My DH likes it too, more than regular bread. BUT everyone has their preferences in the gluten-free bread zone.

I find that I shouldn't eat too much bread anyway, but BLT's - that's mine too. Yum. I just had one yesterday.

I think it's possible the dairy thing depends if your casein reactive, or lactose reactive. I don't eat dairy at all - no cheese, butter, milk, or anything with dairy in it. That said, I will cheat on that once or a twice a year in a fine restaurant - my reactions are different from gluten - more cumulative than instantaneous.

There is a large debate about the healthfulness of soy products. W/O going into that (happy to give my opinion if you'd like it, though), lots of people are allergic. The highest allergen foods are: wheat, soy, dairy, corn. Those are the tops. Lots of folks with Celiac have secondary food allergies thanks to having a leaky gut for plenty of years. I don't eat any of those things.

In ways, going dairy free is easier than gluten-free, because so many folks are lactose intolerant. That said, it's hard to do both. If your problem is lactose, it's possible that you would regain the ability to eat dairy once your villi are happy again. If it's casein, not so much. It really depends on the person. I've been gluten free for a bit over a year, and tried dairy again. It still constipates the life right out of me, so I guess I fall into the forever dairy-free camp.

As to figuring out which issues YOU have, I'd say doing an elimination diet, or getting allergy tested. Allergy testing is helpful, but some folks have reactions to food w/o being allergic. I'm fine with walnuts, for example, on paper. When I eat them, though, or walnut butter, I get a very focused pain in my lower intestine. It's really just trial and error and it takes a while to get it right. I find the hardest thing is that when you're having a hard time, you might have to go all the way to just white rice and yams or something, to even out, then add things back to find the culprit. Someone else knows better than I how to do the elimination diet.

-Sherri