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rinne

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Everything posted by rinne

  1. rinne
    I know my liver is stressed too Rachel and yes I think the Lyme can really do a number on them but I also think that our livers can regenerate themselves and with treatment we will recover to a great extent. Julie, I am sorry you are feeling so weepy, sad songs are good for that though and sometimes I rent a really sad movie when...
  2. rinne
    Rachel, that is an incredible post and should in some variation be in the very beginning of your book. You have articulated so well what I was trying to get at with "it takes energy to hope". I would like to see you sue that Doctor big time, look at the cost to your health and your finances his refusal to test you for Lyme cost you. It just occurred to...
  3. rinne
    Not so Happy Girl I am so sorry to hear how wretched he made you feel. I wish you could see my doctor or Rachel's or any doctor who would listen and respect you. I suspect we have all had similar experiences which doesn't make it any easier but at least you know you are not alone in all of this. Sending you hugs.
  4. rinne
    From the same article Rachel posted: There is a war between those who say there is Lyme and those who say there isn't and the battleground is territory you have to travel if you want answers. I think it is smart to know and to understand why Igenex is the lab of choice. Thanks for the link.
  5. rinne
    MMMMmmmmmmmm Lyme. Sisters. Rachel, I drank three glasses of white wine last Friday night, got a little tipsy and too talkative, had fun and was a little achy and hungover from it and I won't do it again until Christmas but even now I can get away with it. You will for sure be able to indulge again, you'll just know that you'll...
  6. rinne
    ### Post when you can, rest well. I'm sorry you didn't find any help, I know that each time I hope I have found someone that can help me and then been disappointed I have been exhausted by the process. It takes energy just to hope. These days I find I have little patience with those who think they know more about my body than I and I am prepared to...
  7. rinne
    I suspect my sweetie knows me better than I know myself and that some version of T.V. will be returning. In the meantime I have managed to get this huge T.V. out of our tiny bedroom and it is not living in our main living room either which means that if it returns it will be some tiny thing. The story behind the T.V. is that twenty years ago when...
  8. rinne
    Evie, I am so sorry to hear that, what a struggle it all is sometimes, I do hope that the medications will help and that you are feeling better soon. Andrea, yes, you are right I really do need to sleep and I am off to do that right now. Thanks.
  9. rinne
    Hi Judy, nice to see you so bright this morning. I'm not. I had the bright idea that we should get rid of the T.V. and after twenty years of living with one I didn't want my sweetie agreed to if he could get a T.V. card for his portable. So that is what we did and that has been fine but I am feeling wretched this morning, overdid the peanut butter...
  10. rinne
    I'm very grateful for your persistence Rachel, it really helped me trust my own sense that something else was going on that no diet change would fix, even though diet changes helped. I see now that many things I did were not helpful because I didn't understand in the beginning that self-moderating my diet, health store supplements, chiropractic work...
  11. rinne
    Thanks Rachel, I'll check it out. Yup, that was me and I'm still chuckling at my own wit. Carla, I think that I have had Lyme for a very long time but that I was doing okay until I was bitten by the tick in 2003, I think that tipped me toward ill health. Prior to that I followed a mostly organic and unprocessed diet and was doing perhaps...
  12. rinne
    Hi Lyza and welcome. It is really great to hear how motivated you are to understand your health and to take care of yourself. I've heard IBS referred to as "I Be Stupid" as in the doctor is stupid but I wouldn't suggest that. I've just been through two years of hell trying to figure out what was/is wrong with me and like you I came up with gluten...
  13. rinne
    Hi, sorry you are having such a miserable time. I can relate. I went gluten free at the beginning of May and dairy free at the beginning of June and I saw about a 50% improvement in my symptoms and then I had dreadful pain up my spine and after that went away a pain that wrapped itself around my torso and seemed more in the tissue than the organs began...
  14. rinne
    Push away Happy Girl, you might just have joined the pushy women club. I'm sorry you're feeling sick, I hope it doesn't last too long. I'm already having sympathy nausea pains just reading about what you will have to do to get tested. No, Laughing Lyme Ladies Lunching becoming the Lyme Green Laughing Lunatic Hat Ladies is too funny. ...
  15. rinne
    Thanks Mom, I am glad for your concern, I think you need more sleep too, seems to me I've seen you up late. I've seen different antibiotics listed for treating Lyme but it seems like they all make people sick and sometimes people are on them for months and years and end up with Candida problems equal to the Lyme problems. I think we have to move past...
  16. rinne
    I am wondering if the Salt/Vitamin C is causing you to herx which would be an indication of die off of the bacteria, D can be part of it. The skin itching also sounds like symptoms of herxing. That doesn't mean that it is Lyme for sure but for me the herxing that went with the salt/c was an indication. A friend with Lyme for the past 13 years and I spent...
  17. rinne
    It looks like Samento is a form of Cat's Claw, Hoffman sent me home with it and with Noni and instructions to continue with the salt/c and that he would let me know when to start taking them. I am impatient but the protocol is to do the salt and Vitamin c first. Open Original Shared Link If you do a search there is more information on the Klinghardt...
  18. rinne
    Me too, it feels good to be able to say I know what is wrong with me. I am curious to know if you have heard about Rifing machines, a new friend lent me one and I've been reading the manual but haven't started yet. I've been reading along, I am always glad to hear how everyone is doing. I've been feeling kind of tired this week.
  19. rinne
    Hi Melissa and welcome. I knew for years I had problems with wheat and would generally avoid it but when I did eat it the first few times were okay and then the C and bloating and kick back in and I would remember that I couldn't get away with it. Sorry, I can't help you with the bread substitutes, I can't tolerate them too well either.
  20. rinne
    Initially I thought I was a Celiac and only a Celiac because when I first became ill I learned that I have a sister with Celiac and since then a brother has been diagnosed with Celiac also. I now know that I am wheat intolerant and most likely Celiac but I also have Lyme Disease, diagnosed recently, and there is a real overlap of symptoms between the two...
  21. rinne
    Julie, I am sorry that you suffered such an assault on your health doing something that I am assuming you loved. I wish you could find someone who understands how to help you. It makes sense to me that medication works but I am concerned that the danger to that is then we are treating only the symptoms and not the cause and if it...
  22. rinne
    Premature post but couldn't resist: Sounds like you want to Rachel the treatment. Me too. I envy you your doctors close by I don't know what I am going to do once I have a treatment plan. Oh, yesterday someone lent me a Rifing machine, have you heard of Royal Raymond Rife? Rifing machines are used to treat Lyme and Cancer and all...
  23. rinne
    Thank you Richard, that was very cute. I'm partial to tough love. Rachel, I hope today is a better day. I can relate, now that I understand how long this has been affecting me I am able to also acknowledge that I have forgotten what it feels like to be well. Brain fog has set in and I am off to do the New York Times Crossword, it is my secret...
  24. rinne
    I think the negative states associated with stress and anxiety reinforce illness. I also think we can become addicted to those states because the intensity of those states gives us a feeling of energy. I feel like I have retrieved a memory of the initial infection that was underneath the symptoms of anxiety and emotionality, that memory is of sheer...
  25. rinne
    It makes sense to me, I've been in the same kind of space. Evie, I received your birthday wishes on my birthday thank you. Now, total indulgence in strawberry ice cream, very bad birthday girl. Julie, see where your cheese has led me.
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