cristiana
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cristiana reacted to a post in a topic:
Struggling to get into a good pattern
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cristiana reacted to a post in a topic:
Struggling to get into a good pattern
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knitty kitty reacted to a post in a topic:
Struggling to get into a good pattern
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knitty kitty reacted to a post in a topic:
Struggling to get into a good pattern
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I think going back to your GI isn't a bad idea - my visits to the GI did not stop following my diagnosis as I had annoying issues on and off for some time. Thankfully he is a fantastic GI, with a great sense of humour, so it wasn't a chore to see him again although I'd rather not have had to, obviously! But I needed my mind to be put at rest as my symptoms... -
I struggled for a long time. My TTG levels took an age to come down. I even gave pure gluten free oats a miss, it took 8 years before I could tolerate them. Removing dairy temporarily from my diet was hugely helpful. Check your utensils and the oven you use are scrupulously clean, and don't open roast or bake food uncovered in an oven shared with gluten...
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cristiana reacted to a post in a topic:
Struggling to get into a good pattern
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cristiana reacted to a post in a topic:
UK Visitors: Award Winning Flapjackery in the West Country (and Chichester, West Sussex)
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knitty kitty reacted to a post in a topic:
Cartilage and rib pain.
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Luke warm bath (deep) with a handful of Epsom salts, and bath for about 20 minutes. Be careful getting out of the bathtub, the magnesium (Epsom salts) can make you feel a bit woozy. I've suffered from costochondritis, might be what you have? I find rest very helpful, and avoid any foods that bloat you as this can put added pressure on the ribcage.
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Scott Adams reacted to a post in a topic:
Refractory Coeliac Disease research to reduce anxiety
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Flapjack is as British as Fish & Chips! Oats, butter, sugar, golden syrup... yum. I have just returned from Fowey in Cornwall having discovered they have a branch of this amazing, award winning flapjack shop in the town. I would thoroughly recommend that all coeliacs visiting Cornwall and Devon, who can tolerate pure oats, to drop in and buy one buy...
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@MelissaClinPsyD See above.🙂
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cristiana reacted to a post in a topic:
Canker sores
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Scott Adams reacted to a post in a topic:
Chest pain from celiac
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cristiana reacted to a post in a topic:
Doctors and Celiac.com
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My chest pain has been caused by costochondritis, as well as times when iron supplements has given me such bad bloating it has put pressure on my back and chest, and reflux can do the same. Also, along the lines of Wheatwacked's suggestion above, is it possible you had an injury to your chest/ribs way back that is being set off by either some sort of...
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cristiana reacted to a post in a topic:
Chest pain from celiac
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Zuma888 reacted to a post in a topic:
My Adult daughter is blaming me for her "possible" Celiac disease.
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cristiana reacted to a post in a topic:
confirmed via biopsy, quite depressed
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Scott Adams reacted to a post in a topic:
Worried about being isolated
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Thanks for sharing that film, @trents. I am not sure how I missed that film as I see it is a few years old, but it is very good. I think you should be fine if you take your own packed lunch and eat it from your own lunchbox etc. Might be worth doing a lunchtime recce to see how cramped the room is before making a decision - for all you know, there...
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- feeling anxious
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cristiana reacted to a post in a topic:
Worried about being isolated
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knitty kitty reacted to a post in a topic:
4 Years and very little progress
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confirmed via biopsy, quite depressed
cristiana replied to wellthatsfun's topic in Coping with Celiac Disease
We've definitely all had such thoughts. But as Scott says, it does get easier with time. I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes. I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone... -
Agreed, and I can't remember exactly and haven't got time to check, but I think my blood didn't normalise for eight years! For years I read this forum thinking why can't I get my numbers down - everyone else manages to. But my gastroenterologist didn't seem to worry about it, which makes me think he either thought I wasn't complying to the diet, or he'd...
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Hello there @maylynn I'm a slow healer from the UK. I sympathise. Despite three endoscopies which showed nothing wrong, I frequently suffered from a very sore stomach, bloating, feeling queasy. For some time I was taking the wrong iron supplement (Floradix instead of Floravital - the former has gluten in it, but the latter none). But...
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Ectopic heartbeats - any relation to digestive issues?
cristiana replied to cristiana's topic in Related Issues & Disorders
Very interesting, @Idnam. When I was experiencing this problem at its worse, I found high carb meals like lots of rice or too many cookies were a trigger. -
Does anyone here also have Afib
cristiana replied to Jhona's topic in Introduce Yourself / Share Stuff
Really interesting, Kitty, thank you. -
Hi @Redlima My anxiety hit before diagnosis, and in fact it was anxiety which led me to see a doctor who put me on the road of various blood tests which revealed iron deficiency, raised globulin levels and borderline B12. At first my GP suspected a type of cancer, and didn't really know what else to make of it until about six months down the road when...
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@OlafAndvarafors I just wanted to reassure you that I had these same issues for a while before and after diagnosis but they did settle. I think the deficiencies and anxiety that are very common in undiagnosed/newly diagnosed coeliacs are a perfect mix for twitching! I cannot say exactly how long you will experience this but my feeling that once you are...
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@TempCloud How are you doing? I hope you aren't reacting too badly? I would most likely react like Trents. That said, I have read accounts of some coeliacs not showing any symptoms after glutening, after a long break from eating gluten. But should that happen to you, unfortunately it should not be interpreted as the 'green light' to go back...
