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cristiana

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cristiana last won the day on June 21

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  1. Not a scientific reply, but I thought I'd just chime in to reply the first part of your question: how long? Before I started to have gastric symptoms, I weighed about 66 kilos, and in the course of the following months, I seem to recall I lost about 6 kilos. From memory the last 2 or 3 kilos dropped off even when I was beginning to eat gluten free, from...
  2. Update - my Active B12 is 36. Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal. I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great,...
  3. Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test? I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests. My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals...
  4. Hello @lehum Greetings from the UK. Another struggler here - and I'm a Moderator on this forum, and have been extremely strict about my diet! My antibodies took years to come down to normal levels. Very annoying particularly when had friends who seemed to be the miracle turnaround celiacs that one reads about (although, of course, I am happy for them...
  5. @knitty kitty I saw my consultant yesterday. He is not worried about my high MCHC levels, he said he was more interested in my MCV levels and they are fine.. The Holocolobim test apparently is going to take time to come back - the report says 17th October which I think isn't actually the true date, I think it's just a random date thrown out by...
  6. Hi @knitty kitty Thank you, Kitty, and lovely to hear from you as well as trents on this one, I do appreciate your knowledgeable replies. Haemoglobin A1C and HBA1c have both come back as normal, so I think I am OK there - although I'll freely admit that I love sweet things and if they ever design a test which shows consumption of carbs over time...
  7. Hi Trents Good to hear from you and thanks for your prompt response. As far as I know I don't have any other autoimmune diseases but this elevated MCHC which has been in the background for some years now makes me wonder if I have something that has hitherto gone under the radar. I do wonder about B12 anemia. When I was diagnosed with coeliac...
  8. Hello All I've just received some puzzling blood results. My blood results have always been a bit odd since my coeliac diagnosis - a few things out of range, but the only thing my consultant has ever wondered about is whether I am developing a condition called Polycythemia, as my hemaglobin can be a little high at times. He did mention last time I...
  9. Thank you for the update @Rejoicephd it is good to know that you may have some answers. Keep up the good work with your diet, and do let us know if you do get a firm diagnosis. I took so long to feel better and for my TTG levels to normalise, but got there in the end, so also bear in mind it does take longer for some of us.
  10. Hi there @MCAyr I have a small umbilical hernia which came about during my second pregnancy. I can just about see it, and feel it, when I stand or sit, but it is far less noticeable when I lie down. I always know when I am putting on weight because I can get pain and burning near the site, funnily enough not on the hernia itself but either side! ...
  11. Well, this is interesting. I am based in the UK and it just so happens that I've been eating a lot more oats recently, gluten-free of course, and I'm beginning to feel quite nauseous, I have an unsettled stomach and quite a few aches and pains. In three weeks I have my coeliac review - if my TTG levels are higher than last year, maybe that will be why...
  12. Great advice from @trents. A couple of other tips. Firstly, always try to have a good stock of gluten-free alternatives in the house so you aren't tempted to give in when there is nothing else available. Secondly, as you will have noticed, gluten-free bread does taste quite different from regular bread. But I think it was my GP who said...
  13. The early days are often tricky for the newly diagnosed. There were times I thought I'd never feel better, but it just takes some people longer than others. Hang on in there, and keep posting with any questions as they occur or if you need any encouragement.
  14. Great to have another UK person on the forum! Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana
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