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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About deb_rn

  • Rank
    New Community Member
  • Birthday March 02

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  • Gender Female
  • Interests Cooking, wine making, sewing, crafting, gardening, Martha Stewart and Betty Crocker rolled into one!
  • Location Berlin, WI
  1. I wasn't positive in the initial test, didn't opt for further testing.  I also have Sjogren's disease.  It is  VERY  common to have both!  THAT  is where my years of mouth sores come from, I believe.  I feel the same way about Fibromyalgia... to me it means you didn't care enough to dig to the bottom to find the root cause!  I'm going to have a whole "syndrome" named after me some day!  I have so many weird things wrong that don't fit into a category and don't show up on blood tests!  It wears you down after 58 yrs, though!   Debbie
  2. I won't have further testing, no matter the results of my blood tests.  I know how I felt when I went off gluten for a few days, and I won't go back... even if I have false negative tests.  My Dr said there would be no reason for the biopsy if symptoms decreased with diet change!  I don't need "convincing" or someone to take a biopsy every yr to see if I'm better!  The diet change is still up to YOU  and if YOU don't need further convincing, then it may not be worth it! Good Luck! Debbie  
  3. Hmmm  I have terrible left wrist pain too... I was sent to a Rheumatologist years ago too... no RA.  Amazing how this is all starting to come together!  I'm expecting to feel better than I have in  YEARS!!  I've had back injections, knee and plantar injections!  I've had restless leg syndrome... the list goes on.  I used to tell people, "someday, they'll name a syndrome after me".... because I had so many weird, seemingly disconnected issues!!  TA  DA!!  It had a name all along!   Debbie
  4. My results aren't back yet, but I  KNOW  what I have to do.  I talked to my Dr about the upcoming results and asked if a biopsy was necessary, since my little trial really told me I don't tolerate gluten.  He said that negative results are common, so if I felt better without gluten, then I didn't tolerate it!  I am anxious to see what the results are, though!   Good Luck! Debbie
  5. OH my.... I feel so bad for you!  Looks like you've gotten some great advice! I have felt "not well" for many years... but couldn't put my finger on it until this summer when the symptoms suddenly escalated! I see my primary Dr today to see if he wants to test me.  No matter what the test says... I did my own mini test last week and it's gluten sensitivity... at the  VERY least!  I'm a nurse and will fight through this to get my life back!  Now I read that my depression, insomnia, weight gain, brain fog and other things could be a result!  I'm thrilled to at least have  SOME  idea of how to feel better... if not completely healed! I pray you are guided to the right source to figure out your symptoms and get more complete relief!   Good Luck. Debbie
  6. I see my Dr today.  I felt so much better when I was off gluten.  I know I have to keep eating it until I'm blood tested, at least!  The thought of putting that in my mouth makes me not want to eat!!  Which is saying a LOT for me!  I don't care if I get a diagnosis or not, but IF he wants to test me, then I have to continue to eat it.  Now I realize what my "mystery illness" has been all these years!  Until recently, it was a minor annoyance!  The brain fog has been killing me lately.  I'm hoping my Insomnia will get better too!  I'm not afraid of the diagnosis.... instead very happy to know why I have felt the way I do for so long!  I have gained weight, which isn't the norm, but my body doesn't really react normally to ANYTHING anyway!  I see this as a chance to feel great and a challenge for my cooking skills.  Husband and I can both cook, so we will just slightly modify what we do.  We have a garden and that helps!   Good Luck to you!   Debbie
  7. I also didn't see that she had been formally "diagnosed".  That is the process I start tomorrow.  My "self test" was pretty conclusive in a few short days!  It could be other intolerances as well, not JUST gluten!  I have Sjogren's Disease as well and have some swallow issues from time to time, not like yours though.  You really must see a Dr to get a full work up.   Debbie "the nurse"
  8. I got some cranberry almond granola-type bars from walmart that are A-mazing!   Debbie
  9. I don't see the Newbie 101.... where do I find that thread?
  10. I'm Always Tired.

    I am going to the Dr tomorrow to see about a diagnosis.  I have had insomnia for  YEARS!  I got so bloated last week that I finally did a little "elimination test" of my own... BINGO!  I felt better after 12 hrs off gluten!  I've been reading like crazy and eliminating things from my diet.  I'm a nurse, so I have to have myself half diagnosed before posing symptoms to a Dr!!  I'm hoping a lot of my "mysterious" physical problems will subside.  On the plus side, I lost 4.2# in 1 week without trying!  I had gained weight very suddenly about 6 yrs ago.  Looking forward to a definitive diagnosis and cleaning the gluten out of my house, if need be!   Debbie