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deb_rn

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About deb_rn

  • Rank
    Community Member
  • Birthday March 2

Profile Information

  • Gender
    Female
  • Interests
    Cooking, wine making, sewing, crafting, gardening, Martha Stewart and Betty Crocker rolled into one!
  • Location
    Berlin, WI

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  1. After almost 4 yrs gluten-free, I still have severe abdominal bloating, pain all over and spots of increased inflammation periodically. We are soy free, dairy free and gluten free in our house. Husband's lifelong IBS got dramatically better when he went gluten-free with me and then dairy, chocolate, coffee and soy free eventually. I have Sjogren's disease as well... which is so much more than just dry mouth and eyes.... at least in my case. When you have 1 autoimmune disease it's pretty common to have at least 1 more. We just have to keep being detectives to figure it all out. Doctor's don't believe all the symptoms we present with and can't put all of it together often. Decreasing pain is the name of the game, ultimately. Keep Pluggin' along! Debbie
  2. I love to bake as well. My recipes are as good or better than the non-gluten ones, so no one ever complains about eating MY food. Flour in the air will continue to fall on the counter, food sitting out, etc for some time. I wouldn't have it in my house.... period! The more you heal, the more sensitive you become to that "little bit of gluten". I found the most amazing recipe for hush puppies recently! And the leftovers froze well, so I can have them on hand for a quick meal add on anytime! I have a huge binder of gluten-free recipes! The internet is my friend! Debbie
  3. It was never tempting for me. It bothered the people sitting near me while I ate my own food more than it did me! Get a gluten-free candy bar from the vending machine... that takes the edge off! Debbie
  4. I don't envy you eating gluten AT ALL! I didn't do the biopsy as I didn't want to go through the pain. I'm due for my 10yr colonoscopy next year and thought about it... but I don't have a Dr. that would be able to diagnose anything else anyway, so I'm not going to eat gluten. I have played around with my diet a bit and know there is more than just a gluten problem. I react so oddly to so many drugs, that I know I have some weird condition... besides my Sjogren's that gives me fits often! I've found so many wonderful gluten-free recipes that I'm not missing anything! Eating out is the only real source of dread! So hard to travel with others. They want to eat places I know I can only eat a plain salad with lemon and oil... and hope they didn't take the croutons off before they gave it to me! Fortunately that isn't a common occurence and we cook better than most restaurants anyway! Debbie
  5. Here is my absolute favorite! Carol Fenster's Sorghum Flour Blend 1 1/2c. sorghum flour 1 1/2c. potato starch 1c. tapioca flour/starch This bakes up beautifully! I have used it 1:1 in old recipes with the standard addition of Xanthan gum too. Debbie
  6. Some of the symptoms mentioned are also related to Sjogren's Disease. It often goes hand in hand with Gluten Sensitivity. I was diagnosed with it some years ago, but realized I'd had it in college. I guess it's common to have more than one autoimmune disease. My Sjogren's gives me many weird symptoms! The mouth sores, inflammation of gums, phantom pains, stiff tendons/muscles, plantar fasciitis, etc.. The Gluten Sensitivity came later... or at least later is when I figured it out! Brain fog... ugh! Drives you nuts! Debbie
  7. There are also conditions that happen after having your gall bladder out some years later. I've seen it in many patients over the years. Ask your Dr. about Cholestyramine. I've seen it help many people. Debbie
  8. When you are drinking, is it beer? It's got gluten in it, unless specially made and labelled as gluten-free. Some people react to the gluten/wheat in alcohol too. I take my own food when going to other people's houses. ALWAYS! If I go visit the grandchildren for a few days, I cook and take all necessary ingredients. When eating out, I don't just pick something on the menu that LOOKS safe, I specify what I need and what they need to leave out. If it comes out wrong, I send it back. I WILL NOT suffer needlessly! There are plenty of ways to accidently get glutened, but I eliminate as much as I can. Just not worth the pain! Debbie
  9. The Pillsbury Funfetti type gluten-free cake mix is excellent! No one notices it isn't regular when I put my special buttercreme frosting on it. Making them into cupcakes would make them more portable. Are you serving a whole meal, or just cocktail type foods? There is something called Cowboy Caviar that is really good with beans, corn, onion, and a vinegar type dressing over it. It would be served w/ tortilla chips or crackers. It's substantial with the protein from the beans. I usually like to make potato salad for a crowd. It's always gluten-free when the right mayo is used. Cocktail meatballs would be nice. Just use gluten-free bread crumbs for the binder. I've seen cute cucumber hors d'oeuvres and stuffed mushrooms/cherry tomatoes too. Check out Pinterest or google Gluten Free cocktail party for other ideas! Good Luck! Debbie
  10. I bake almost everything myself as well. I've gone through a lot of not-so-good recipes too. Trial and error is what it takes. There is almost nothing I can't make as good as before going gluten-free now. I make my own "mixes" for many things like biscuits, all purpose flour, cookies, muffins... Each takes a little different mixture of flours. My bread is VERY good and no one even suspects it's gluten-free. You just can't give up! I've always cooked from scratch and it wasn't a hard transition to go gluten-free for me. I buy a lot of the individual flours online for the best prices and variety, since I live in a small town. It does get easier with time, but cooking from scratch really gives you the most variety and best flavor. Debbie
  11. If you read up on Sjogren's... it's far more than dry mouth and eyes! I have regular bouts of pleuracy, muscle aches, neuropathies in various places, abnormal fingernails, pain in joints that travels around, inflammation of gums, throat and hard palate, peeling skin, dry lips, thinning hair, plantar fasciitis, bad breath... the list goes on and on! I had hoped my symptoms would get better after I went gluten-free 2.5yrs ago... but they didn't really. There is a very high corrolation between Sjogren's and Gluten Sensitivity. When you have 1 Autoimmune Disease, you can count on more that will rear their ugly heads eventually! So many Doctors really don't have a clue about any of it. You just have to do your own research and put it all together! We're just trying to live a semi-normal life here! Most people don't get how hard that is each day! Keep on plugging away at it! Debbie
  12. I was diagnosed w/ Sjogren's before I found out I was Gluten Sensitive. I was advised by my Eye Dr. to take 5,000 mg of Fish Oil daily... it helps with a lot of things! I did the Restasis for a few years... gave up on it. I no longer really saw benefit. Some days I feel like I'm looking through vaseline... I'm missing the liquid part of the tears and have only the oily part. My mouth will randomly break out in various sores, my joints will inflame and my Plantar Fasciitis will act up. All inflammation related! Life gets interesting! Debbie
  13. I don't have a definitive diagnosis as my initial blood test was negative... but after doing elimination over 2 yrs ago, I'm not going to purposely poison myself to prove anything to anybody! I couldn't force myself to eat enough gluten for long enough to prove the point! Your body told you how to start... so keep up with it. You may find more sensitivities as well. Sometimes your damaged gut reacts to things that will be safe for you later on after you heal. Healing can take many months, so don't give up! Gluten is not a food group that has something you will be missing if you avoid it! Everyone would be better off without it. Some of us are just more sensitive than others! Take heart and get your support from these wonderful people! Debbie
  14. My initial blood test was negative, but I felt better off gluten, so I diagnosed myself and got on with life. I didn't need any more convincing after I started to heal. When you are sick of being sick... it's time to take charge! I'll never go back to eating gluten. It's a way of life that's easy to get used to and better for my health in the long run. Autoimmunity is a broad category and one system affects the next. My pain decreased a bit when I went gluten-free. I have Sjogren's too. All diseases start with the gut... what it lets in and what it excludes. Letting in large particles (leaky gut) that are seen as invaders, or keeping out the micronutrients needed for optimal health can have an effect on many bodily functions. Our bodies have the ability to heal themselves, given the right nutrition. Eating whole, natural food is better for everyone! Not just the Gluten Sensitive. Debbie
  15. It seems once you heal, even a little, you react more violently after glutening. I am very careful and rarely eat out. Still, I have unexplained abdominal pain periodically. Sugar is another culprit as it feeds so many organisms. A temporary yeast overgrowth can make you feel miserable too. I've noted a correlation in my chronic pain levels when consuming too much sugar (in any form). I try to limit my starch (potato, rice, pasta) to 1 small serving daily and my body seems happier with that. Eating healthy is getting tough in our "grab-as-you-go" society! Debbie