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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About deb_rn

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    New Community Member
  • Birthday March 02

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  • Gender Female
  • Interests Cooking, wine making, sewing, crafting, gardening, Martha Stewart and Betty Crocker rolled into one!
  • Location Berlin, WI
  1. I was diagnosed w/ Sjogren's before I found out I was Gluten Sensitive. I was advised by my Eye Dr. to take 5,000 mg of Fish Oil daily... it helps with a lot of things! I did the Restasis for a few years... gave up on it. I no longer really saw benefit. Some days I feel like I'm looking through vaseline... I'm missing the liquid part of the tears and have only the oily part. My mouth will randomly break out in various sores, my joints will inflame and my Plantar Fasciitis will act up. All inflammation related! Life gets interesting! Debbie
  2. I don't have a definitive diagnosis as my initial blood test was negative... but after doing elimination over 2 yrs ago, I'm not going to purposely poison myself to prove anything to anybody! I couldn't force myself to eat enough gluten for long enough to prove the point! Your body told you how to start... so keep up with it. You may find more sensitivities as well. Sometimes your damaged gut reacts to things that will be safe for you later on after you heal. Healing can take many months, so don't give up! Gluten is not a food group that has something you will be missing if you avoid it! Everyone would be better off without it. Some of us are just more sensitive than others! Take heart and get your support from these wonderful people! Debbie
  3. My initial blood test was negative, but I felt better off gluten, so I diagnosed myself and got on with life. I didn't need any more convincing after I started to heal. When you are sick of being sick... it's time to take charge! I'll never go back to eating gluten. It's a way of life that's easy to get used to and better for my health in the long run. Autoimmunity is a broad category and one system affects the next. My pain decreased a bit when I went gluten-free. I have Sjogren's too. All diseases start with the gut... what it lets in and what it excludes. Letting in large particles (leaky gut) that are seen as invaders, or keeping out the micronutrients needed for optimal health can have an effect on many bodily functions. Our bodies have the ability to heal themselves, given the right nutrition. Eating whole, natural food is better for everyone! Not just the Gluten Sensitive. Debbie
  4. Vommitting

    It seems once you heal, even a little, you react more violently after glutening. I am very careful and rarely eat out. Still, I have unexplained abdominal pain periodically. Sugar is another culprit as it feeds so many organisms. A temporary yeast overgrowth can make you feel miserable too. I've noted a correlation in my chronic pain levels when consuming too much sugar (in any form). I try to limit my starch (potato, rice, pasta) to 1 small serving daily and my body seems happier with that. Eating healthy is getting tough in our "grab-as-you-go" society! Debbie
  5. Does it get any easier?

    My husband went gluten free with me. I would say we CAN eat 90% of what we used to eat, but then we have a garden and rarely went out to eat anyway. Looking at the Paleo posts helped me too. I have recipies that are as good or better than before! Almost anything can be duplicated. Google is your friend! We just take our own salads when going to someone else's house. We make them aware of our limitations and tell them we will bring our own food for safety. Not eating donuts at work is a blessing, not a curse! Keep some soup in the cupboard for quick food. Individually wrapped fish in the freezer is a time saver too. Nut butters and gluten-free crackers are good to keep handy as well. By the way, after going Gluten Free... husband realized his severe IBS of 65 yrs all but disappeared! He's now lactose and soy free as well. It's all good. Do your homework before going out to eat to find out which restaurants have what you can eat. Travelling is the biggest hassel. We usually travel by car and take much of our own food with us to visit relatives. I offer to cook so I can control what is going in the food. Keep at it, it gets easier! Debbie
  6. We don't eat soy because of the way it is raised with ridiculous amounts of Rouond-up and it's virtually ALL GMO! Soy messes with your hormones. For men it can cause the breasts to enlarge.... for women, it can interfere with the natural hormones regulatory functions. It has been altered so much, that it is no longer fit for human consumption! Animals are fed a lot of it too... I try not to add any in as I'm getting it as a by-product of the meat I eat. Debbie
  7. My husband and I are both Gluten Intolerant. I was the only 1 tested and it was negative. I declined further testing as I understand there are several tests and the best ones are sent away to a special lab... that wasn't going to happen! I didn't need further confirmation after going gluten-free for a few months. When we go to people's house to eat, I explain WHAT to cook and what NOT to add. You can always have baked chicken, veggies and a baked potato.... simple. If there is a group, we ALWAYS just bring our own food and tell the host that we will be doing that. It is NEVER OK to compromise your health to make someone else feel comfortable!! That bite of gluten can affect your gut for several months! NOT worth it! Constantly challenging your system keeps it in a state of inflammation. When I have company, they can't tell it's all gluten free! It's just good, wholesome food! You could switch the whole family and they wouldn't even know! Get back on track and heal your mind, body and soul! You'll be happier for it! Best of Luck! Debbie
  8. I sent you a private message. You can get through this with help... and the right recipes! Debbie
  9. I wasn't positive in the initial test, didn't opt for further testing. I also have Sjogren's disease. It is VERY common to have both! THAT is where my years of mouth sores come from, I believe. I feel the same way about Fibromyalgia... to me it means you didn't care enough to dig to the bottom to find the root cause! I'm going to have a whole "syndrome" named after me some day! I have so many weird things wrong that don't fit into a category and don't show up on blood tests! It wears you down after 58 yrs, though! Debbie
  10. I won't have further testing, no matter the results of my blood tests. I know how I felt when I went off gluten for a few days, and I won't go back... even if I have false negative tests. My Dr said there would be no reason for the biopsy if symptoms decreased with diet change! I don't need "convincing" or someone to take a biopsy every yr to see if I'm better! The diet change is still up to YOU and if YOU don't need further convincing, then it may not be worth it! Good Luck! Debbie
  11. Hmmm I have terrible left wrist pain too... I was sent to a Rheumatologist years ago too... no RA. Amazing how this is all starting to come together! I'm expecting to feel better than I have in YEARS!! I've had back injections, knee and plantar injections! I've had restless leg syndrome... the list goes on. I used to tell people, "someday, they'll name a syndrome after me".... because I had so many weird, seemingly disconnected issues!! TA DA!! It had a name all along! Debbie
  12. My results aren't back yet, but I KNOW what I have to do. I talked to my Dr about the upcoming results and asked if a biopsy was necessary, since my little trial really told me I don't tolerate gluten. He said that negative results are common, so if I felt better without gluten, then I didn't tolerate it! I am anxious to see what the results are, though! Good Luck! Debbie
  13. OH my.... I feel so bad for you! Looks like you've gotten some great advice! I have felt "not well" for many years... but couldn't put my finger on it until this summer when the symptoms suddenly escalated! I see my primary Dr today to see if he wants to test me. No matter what the test says... I did my own mini test last week and it's gluten sensitivity... at the VERY least! I'm a nurse and will fight through this to get my life back! Now I read that my depression, insomnia, weight gain, brain fog and other things could be a result! I'm thrilled to at least have SOME idea of how to feel better... if not completely healed! I pray you are guided to the right source to figure out your symptoms and get more complete relief! Good Luck. Debbie
  14. I see my Dr today. I felt so much better when I was off gluten. I know I have to keep eating it until I'm blood tested, at least! The thought of putting that in my mouth makes me not want to eat!! Which is saying a LOT for me! I don't care if I get a diagnosis or not, but IF he wants to test me, then I have to continue to eat it. Now I realize what my "mystery illness" has been all these years! Until recently, it was a minor annoyance! The brain fog has been killing me lately. I'm hoping my Insomnia will get better too! I'm not afraid of the diagnosis.... instead very happy to know why I have felt the way I do for so long! I have gained weight, which isn't the norm, but my body doesn't really react normally to ANYTHING anyway! I see this as a chance to feel great and a challenge for my cooking skills. Husband and I can both cook, so we will just slightly modify what we do. We have a garden and that helps! Good Luck to you! Debbie
  15. I also didn't see that she had been formally "diagnosed". That is the process I start tomorrow. My "self test" was pretty conclusive in a few short days! It could be other intolerances as well, not JUST gluten! I have Sjogren's Disease as well and have some swallow issues from time to time, not like yours though. You really must see a Dr to get a full work up. Debbie "the nurse"