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I'm Too Hot Or Too Cold, Chills, Never In Between Today!

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#1 learning2cope


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Posted 03 April 2013 - 05:58 PM

Ok, I've not been yet diagnosed with anything relating to celiac but I have my doc appt on Friday and will request the specific blood tests to be done. Today I can't seem to get to a normal feeling temperature. I have my legs covered up and my feet are sweating (too hot!!) but if I put my fan on I'm way too cold! I get chills and goose bumps all over if I have my fan on. I can't get comfortable and I don't know why. I did check my temperature and it's perfectly normal today (which is odd since for over a year I've had eleveated temperature in the evenings/nighttime). I'm bloated feeling and always a little gassy. I just ate ice cream about a half hour or so ago and as I type this I'm starting to get nauseated and it feels now like I'm getting more bloated which is causing the nausea. I had a sandwich about an hour or so ago (wheat bread). This is happening more and more day by day I've noticed. I tend to always eat wheat with any meal, and have for many years.


I have what I truly believe is DH instead of palmoplantar pustular psoriasis. (mostly same symptoms but poss caused by celiac). I've already posted a lot of my health problems in other threads I've recently started but I need to know if this temperature things is normal?! I cannot sleep without a fan directly on my head and body, otherwise I wake up soaked in sweat, even a nap during the day. Been like that for about 2 years. But today the temperature thing is out of control. My arms are cold with goose bumps but my main upper body and head feels too warm like I want the fan on. My legs are chilly and frozen yet they are too warm and my feet are sweating. Yuck! I don't know if this is somehow a new manifestation of gluten intolerance.. I tried searching this forum for "hot and cold" but the search was fruitless. I feel like I'm going to go insane! If I cover up my arms, i immediately get too hot yet my arms still feel cold. Is this considered a "neurological" symptom?

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#2 GFinDC


    A little farting never hurt anybody... :-).

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Posted 03 April 2013 - 08:47 PM



try searching for "night sweats". there are some threads about them.  Maybe something in one of them will help.

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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#3 GottaSki


    "The past is the past...I've got places to be."

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Posted 03 April 2013 - 09:50 PM

For years pre-diagnosis -- the only way I could describe the crazy temperature fluctuations I felt was that I had a broken thermostat -- I'm tired now -- but will re-read your post and try to give a more detailed answer in the morning.

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Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS


ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

#4 jhol


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Posted 04 April 2013 - 01:27 AM

the only way i know ive eaten "the wrong thing" is because i go absolutely freezing cold, get the chills, thankfully since ive gone gluten free i dont get the bloating any more. i hate getting wrapped up though because then im too hot!! it happened last night when i had some popcorn - think it was the soya!!!


it could be a gluten symptom or could be a thyroid problem -although they do tend to go hand in hand, id mention this to your doctor when you go and get them to check it out.

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#5 cavernio


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Posted 04 April 2013 - 02:45 AM

I don't know why this is, but I definitely experienced similar things to what you are, just not to such an extreme. Being gluten free I've experienced far fewer of these episodes. Notably, dairy seems a likely culprit for these reactions in me too.


What you have sounds worse than how I was though. I would described it as feeling like I was getting the flu, mildly icky all over, and getting randomly hot and cold, but of course the thermometer always showed my body temp was fine even though I felt like it wasn't.


Since I felt like it was flu-like in nature, and since finding out I have celiac disease, I've assumed it was a more or less regular bodily reaction to the bombardment of antibodies being produced. It's how your immune system reacts to illnesses that usually makes you feel sick, not the illness itself, (at least until an illness starts to cause serious damage.)


In any case, you say you eat wheat with every meal, but that's normal. And you're getting it from more sources than you probably think. For instance, your ice cream probably has wheat in it or enough traces of wheat to make you sick too, ignoring the dairy.

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diagnosed Jan 2012, bloodwork only
June 2012 positive visual of celiac disease from gastroscopy

#6 learning2cope


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Posted 04 April 2013 - 12:34 PM

I ended up falling asleep and when I woke up about 2 hours later all that crazy temperature fluctuations were gone. So, I'm not sure what happened. I was so relieved when I woke up and realized it was gone. i wonder if it was from lack of sleep from the previous 2 days. I really didn't get much quality sleep during those days, had insomnia pretty bad. If I did fall asleep, I woke up very often during the time i was sleeping. But I had never experienced that kind of reaction to lack of sleep before. Thank you all for your replies. :)

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