Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medications And Personal Care Products For Asymptomatic Child?


Minette

Recommended Posts

Minette Contributor

I've been dragging my feet on dealing with possible non-food sources of gluten. My daughter had chronic mild stomachaches, which have mostly cleared up since going gluten-free, and she has never had a noticeable gluten reaction since then.

 

Because she doesn't react (or at least not in a way we can clearly see), it's hard to know how careful we need to be. Do I need to worry about things like Children's Tylenol/Advil, shampoo, sunscreen, etc.? I know the official answer is "call the manufacturer," but did you really do that for every product your child uses? Is there a way to know which ones to be suspicious of?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Yes you should be cautious, probably more so since your daughter does not show obvious signs of a reaction.

 

If you are just starting out, I would recommend Gluten Free Shopping Guides such as Triumph Gluten Free Shopping Guide or Cecelia's Gluten Free Shopping Guide.  Both can be found here at the Gluten Free Mall.  They are published annually and they will get you started on safe products.  But, please note that products can change their ingredients without notice, so do not depend on any listing for any extended period of time.

 

Open Original Shared Link

stanleymonkey Explorer

You may find when she is prescribed something a pharmacy finds it easier to identify gluten-free name brands than generic.

nvsmom Community Regular

Do I need to worry about things like Children's Tylenol/Advil, shampoo, sunscreen, etc.? I know the official answer is "call the manufacturer," but did you really do that for every product your child uses? Is there a way to know which ones to be suspicious of?

 If there is a chance it will end up in her mouth, then yes, you should check it all. Advil and Tylenol is being consumed and should be checked (but I believe they are fine).  Kids often get shampoos in their mouths so I would check that, and that goes for lotions that are on her hands or face too.

 

It is accepted that gluten does not get into our skin, but our skin is our largest organ so I am careful about what I put on it because it does absorb some things otherwise there would be no such thing as medicated lotions.  I don't think gluten gets through - it is such a large molecule, but I am not positive without a doubt.

kareng Grand Master

This list is helpful. It can't include every drug that is gluten free.

Open Original Shared Link

target has started labeling some of the Target brand medications as gluten-free.

Takala Enthusiast

I do it for myself, and of course if I had a child I would do it for them, as well.  The goal is to minimize the total exposure to gluten so that the total amount that gets by anyway does not trigger a reaction which causes internal damage, even if you cannot see it.  Many of the common, otc drugs are putting "gluten free" on the labels, like the generic store brand of ibuprofen we have right now. That's my bottle and my spouse is to stay out of it, (not that I take it much)  but he went ahead and purchased his own - gluten free.   Shampoos are easy once you find a brand you like, Dove, Dr. Bronners, Alafia, Garnier, etc, (or you can sometimes find a body wash that is gluten free, to use as a shampoo)  you just need to keep track if the label changes from one bottle to the next, and by using a search, "gluten free shampoos" you can find something available quickly.  Conditioners are more of challenge as they tend to load up a lot of them with either wheat germ oil, or oats (oats sativa can be cross contaminated, and some celiacs react to gluten-free oats anyway).  These conditioners are designed to leave a residue in the hair anyway, it's oil and difficult to remove, and they get spread all over the place with a towel, plus the shower spray is spreading it to the mucous membranes, so it is a mystery to me why anyone would deliberately take a bath in a liquid wheat product.   Pure apple cider vinegar mixed with water, 1 part vinegar to 7 parts water, makes a fantastic hair rinse/detangler.  A little bit of shea butter or coconut oil (tiny amounts, like about the size of a pea) can then be used, if you have dry or curly hair.    Sunscreen, the last three bottles I bought have had "gluten free" status, 2 of them it's right on the label.   Try a health food store if you are having problems with a regular store, but there should be something in the discount stores also with regular brands (as of last year, 2012, Banana Boat's sunscreen was gluten-free, but I don't know their current status on this year's  product).   In an emergency, you can also use just plain coconut oil as a sunscreen for a short period of time, it has a natural SPF of something like 4 or 6, or mix plain coconut oil with plain zinc oxide cream. (baby stuff tends to be good about listing the possible allergens right on the label)

 

Don't forget toothpaste and lip gloss need to be gluten-free, as well. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to wellthatsfun's topic in Gluten-Free Recipes & Cooking Tips
      1

      heaps of hope!

    2. - Scott Adams replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fruits & Veggies

    3. - Scott Adams replied to yellowstone's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Cold/flu or gluten poisoning?

    4. - Scott Adams replied to hjayne19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Screening

    5. - Scott Adams replied to Jmartes71's topic in Related Issues & Disorders
      2

      New issue

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,090
    • Most Online (within 30 mins)
      7,748

    LVanderbeck12
    Newest Member
    LVanderbeck12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
    • Scott Adams
      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate or histamine intolerance. The instant burning, heart palpitations, and anxiety you describe are classic systemic reactions to food chemicals, not typical celiac reactions. It makes perfect sense that your body rejected these foods from birth; the gagging was likely a neurological reflex to a perceived toxin. Now that your gut has healed, you're feeling the inflammatory response internally instead. The path forward involves targeted elimination: try cooking fruits and vegetables (which often breaks down the problematic proteins/chemicals), focus on low-histamine and low-salicylate options (e.g., peeled pears, zucchini), and consider working with an allergist or dietitian specializing in food chemical intolerances. 
    • Scott Adams
      Your satiation is challenging and a common dilemma for those with celiac disease or non-celiac gluten sensitivity: distinguishing between a routine viral illness and a reaction to gluten exposure. The overlap in symptoms—fatigue, malaise, body aches, and general inflammation—makes it nearly impossible to tell them apart in the moment, especially with a hypersensitive system. This ambiguity is a significant source of anxiety. The key differentiator often lies in the symptom pattern and accompanying signs: gluten reactions frequently include distinct digestive upset (bloating, diarrhea), neurological symptoms like "brain fog," or a specific rash (dermatitis herpetiformis), and they persist without the respiratory symptoms (runny nose, sore throat) typical of a cold. Tracking your symptoms meticulously after any exposure and during illnesses can help identify your personal patterns. Ultimately, your experience underscores the reality that for a sensitive body, any immune stressor—be it gluten or a virus—can trigger a severe and similar inflammatory cascade, making vigilant management of your diet all the more critical. Have you had a blood panel done for celiac disease? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Your situation highlights a difficult but critical crossroads in celiac diagnosis. While your positive blood test (a high TTG-IgA of 66.6) and dramatic improvement on a gluten-free diet strongly point to celiac disease, the gastroenterologist is following the formal protocol which requires an endoscopy/biopsy for official confirmation. This confirmation is important for your lifelong medical record, can rule out other issues, and is often needed for family screening eligibility. The conflicting advice from your doctors creates understandable anxiety. The challenge, of course, is the "gluten challenge"—reintroducing gluten for 4-6 weeks to make the biopsy accurate. Since your symptoms resolved, this will likely make you feel unwell again. You must weigh the short-term hardship against the long-term certainty of a concrete diagnosis. A key discussion to have with your GI doctor is whether, given your clear serology and clinical response, would be getting a diagnosis without the biopsy.
    • Scott Adams
      Your experience of being medically dismissed for decades, despite a clear celiac diagnosis since 1994, is unacceptable. It is a tragic common thread in our community that the systemic failure to understand celiac disease leads to a cascade of other diagnoses—like SIBO, IBS, depression, and now the investigation of MS or meningioma—while the core autoimmune condition is neglected. The constant, severe flu-like symptoms and new neurological concerns are absolutely valid and warrant serious investigation for connections to celiac-related autoimmunity or complications like refractory disease. It is enraging that you must fight so hard to be heard. While I don't have a medical answer about MS or meningioma links, your instinct is correct: relentless symptoms require a specialist who understands celiac disease beyond the gut. Regarding the California proclamation, it is a symbolic advocacy effort; reaching out to the women mentioned may provide supportive community, but your advocacy with your local representative is the most direct action. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.