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Feeling Worse In The Evening

2 posts in this topic

After about a year of recovery where I certainly made a few mistakes with CC I was really feeling great, back to my old self. Whatever it was this time though really got me good. So I am three weeks into recovering from my first severe glutening. It is taking forever and I hate this feeling. I would like to at least come away from this setback a little smarter.

So here goes; I always noticed that I would feel worse at the end of the day. What I don't know is why. I started thinking that perhaps the combination of the malabsorption and the fact that I struggle to eat when feeling bad leave me low on nutrients and by the end of the day my body is spent. Then I started thinking that this could also explain why I will start feeling better and then regress. Since when I am feeling terrible it is all I can do to get to work and back as soon as I have a good day, I start playing catch up and get all of the housework, yard work, etc. done. Does anyone else experience this type of thing in their recovery?

I have also decided to step up my nutritional supplements. I was taking Prilosec, Align, and a chewable multivitamin that states gluten free. I am now going to try the Celiact Multivitamin I found here at the Gluten Free Mall. The Celiact contains probiotics so I am thinking I can drop the Align as well as the Multivitamin. That will help the wallet, besides I am not sure how much probiotics are too much.


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You have an AI disease. Most of us don't realize the stress it can put on our bodies. We don't all experience the effects the same way.

I have two AI diseases. Maybe three, depending on your pov.

As my doctor put it, one is enough for your adrenals to be challenged. will always need support. It's the nature of the disease.

I fought the adrenal thing for months. Refused to believe it, that I needed supplaments. Well, guess what - they keep me going along with a great diet and exercise. Diet alone won't do it, neither will exercise alone or just supplaments. It takes all three.

I am on adrenal cortex, dhea, chromium, and now I'm supposed to eat Brazil nuts for selenium (thyroid). That's in addition to multivitamin, d, iron. And occasionally, antihistimines when seasonal allergies kick my butt.

I think of stamina like a paycheck. I only get so much and I have to budget. Can't spend too much in one day, one week, etc. Supplaments put more money in the bank and help me stretch it.


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    • It is best not to try and do this on your own. Talk to your allergist. Not all will deal with food intolerances but if yours doesn't find one who will.  Mine had me fill out a very detailed diet questionaire and tested for true allergies before he gave me my starting point. I will admit I wasn't real happy with my starting point since none of my usual foods were on it. He said that I was most likely to react to foods I ate the most so most of the 5 I either rarely ate or didn't really like. The prescribed starting point he formulated was designed to make sure I had adaquate nutrition and enough calories.   It took about 2 weeks before a lot of my tummy issues resolved and I was then able to start adding foods in one at a time for a week before moving on to the next.  He said food intolerance reactions can take up to a week to show up so I had to be sure it was a full week between food additions. I did have to call three offices before I found a doctor who could do the formulation of the diet but this guy truely saved my life. Out of all the doctors I had seen, including specialists in big hospitals, he was the one responsible for finally realizing I was celiac. He of course referred me back to my clueless GI doctor who confirmed the diagnosis by almost killing me with a gluten challenge. I should note that some of my intolerance (not gluten of course) did resolve after I had healed. Even dairy which I hadn't been able to have for years! I hope you can get some answers and are able to heal soon.
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    • Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
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