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I Want New Villi

Sambucca

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Sambucca Newbie
Sambucca
Posted

Hi Everyone, I'm new here *waves* I self diagnosed about 3 months ago. I have been gluten free (strict) for 3 months. I am also taking some nutritional supplements and finding that I cannot absorb them. I basically get bad diarrhea...I am just taking small doses and trying to work my way up but have seen really no improvement in 3 months. I know it will take time for my villi to heal, but I'm just wondering how long? I guess I hoped I would have seen improvement by now. Can anyone share any stories about how long it took their stomach's to heal? I am 29 years old. Thanks, and I look forward to getting to know you all and the support here :)

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ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. Have you made sure the supplements and any other meds you take are gluten free?  Did your doctor rule out any other issues before you decided to go gluten free? What are you typically eating? Whole unprocessed foods cooked at home are safest. Are you living with gluten eaters? If you are living with them are you making sure you are doing all you need to do to protect yourself from cross contamination? It can take a while to heal but you should have noticed some improvement in the D by now. Many of us also need to drop dairy until we heal and it might not be a bad idea to drop soy also.

Sambucca Newbie
Sambucca
Posted
  • Author

Hi,
I'm doing this under the advice of a naturopathic Dr. Yes the supplements are gluten free. It's actually the supplements "causing the diarrhea" not cause they are bad supplements but because I cannot absorb them properly yet. I'm eating whole foods prepared at home. Eggs, roast chicken, sweet potato, salad, etc. I'm already dairy free and soy free. My whole household is gluten free so cross contamination shouldn't be an issue.

Sambucca Newbie
Sambucca
Posted
  • Author

I maybe worded this wrong. Sorry. I shouldn't say I haven't noticed "anything". I have noticed improvements in my overal health. I've lost 25lbs since going gluten free 3 months ago and my skin is much nicer. I had an itchy flaky rash on my scalp that's gone. I just haven't noticed my ability to absorb nutrients get better yet, is what I meant.

mushroom Proficient
mushroom
Posted

Is one of your supplements a digestive enzyme?  Often a big reason we are not absorbing our food is that we have temporarily lost the ability of the pancreas to make enough enzymes to break it down.  Many of us find that taking a digestive enzyme with each meal helps enormously.  This should also help you break down and absorb your supplements.

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    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Test interpretations

      By trents · Posted

      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Need advice for some relief!

      By suek54 · Posted

      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      Test interpretations

      By MicG · Posted

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
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