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I Want New Villi

Sambucca

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Sambucca Newbie
Sambucca
Posted

Hi Everyone, I'm new here *waves* I self diagnosed about 3 months ago. I have been gluten free (strict) for 3 months. I am also taking some nutritional supplements and finding that I cannot absorb them. I basically get bad diarrhea...I am just taking small doses and trying to work my way up but have seen really no improvement in 3 months. I know it will take time for my villi to heal, but I'm just wondering how long? I guess I hoped I would have seen improvement by now. Can anyone share any stories about how long it took their stomach's to heal? I am 29 years old. Thanks, and I look forward to getting to know you all and the support here :)

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ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. Have you made sure the supplements and any other meds you take are gluten free?  Did your doctor rule out any other issues before you decided to go gluten free? What are you typically eating? Whole unprocessed foods cooked at home are safest. Are you living with gluten eaters? If you are living with them are you making sure you are doing all you need to do to protect yourself from cross contamination? It can take a while to heal but you should have noticed some improvement in the D by now. Many of us also need to drop dairy until we heal and it might not be a bad idea to drop soy also.

Sambucca Newbie
Sambucca
Posted
  • Author

Hi,
I'm doing this under the advice of a naturopathic Dr. Yes the supplements are gluten free. It's actually the supplements "causing the diarrhea" not cause they are bad supplements but because I cannot absorb them properly yet. I'm eating whole foods prepared at home. Eggs, roast chicken, sweet potato, salad, etc. I'm already dairy free and soy free. My whole household is gluten free so cross contamination shouldn't be an issue.

Sambucca Newbie
Sambucca
Posted
  • Author

I maybe worded this wrong. Sorry. I shouldn't say I haven't noticed "anything". I have noticed improvements in my overal health. I've lost 25lbs since going gluten free 3 months ago and my skin is much nicer. I had an itchy flaky rash on my scalp that's gone. I just haven't noticed my ability to absorb nutrients get better yet, is what I meant.

mushroom Proficient
mushroom
Posted

Is one of your supplements a digestive enzyme?  Often a big reason we are not absorbing our food is that we have temporarily lost the ability of the pancreas to make enough enzymes to break it down.  Many of us find that taking a digestive enzyme with each meal helps enormously.  This should also help you break down and absorb your supplements.

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      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
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      Test interpretations

      By Dr. Gunn · Posted

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      Test interpretations

      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Test interpretations

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      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
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