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I Want New Villi

Sambucca

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Sambucca Newbie
Sambucca
Posted

Hi Everyone, I'm new here *waves* I self diagnosed about 3 months ago. I have been gluten free (strict) for 3 months. I am also taking some nutritional supplements and finding that I cannot absorb them. I basically get bad diarrhea...I am just taking small doses and trying to work my way up but have seen really no improvement in 3 months. I know it will take time for my villi to heal, but I'm just wondering how long? I guess I hoped I would have seen improvement by now. Can anyone share any stories about how long it took their stomach's to heal? I am 29 years old. Thanks, and I look forward to getting to know you all and the support here :)

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ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. Have you made sure the supplements and any other meds you take are gluten free?  Did your doctor rule out any other issues before you decided to go gluten free? What are you typically eating? Whole unprocessed foods cooked at home are safest. Are you living with gluten eaters? If you are living with them are you making sure you are doing all you need to do to protect yourself from cross contamination? It can take a while to heal but you should have noticed some improvement in the D by now. Many of us also need to drop dairy until we heal and it might not be a bad idea to drop soy also.

Sambucca Newbie
Sambucca
Posted
  • Author

Hi,
I'm doing this under the advice of a naturopathic Dr. Yes the supplements are gluten free. It's actually the supplements "causing the diarrhea" not cause they are bad supplements but because I cannot absorb them properly yet. I'm eating whole foods prepared at home. Eggs, roast chicken, sweet potato, salad, etc. I'm already dairy free and soy free. My whole household is gluten free so cross contamination shouldn't be an issue.

Sambucca Newbie
Sambucca
Posted
  • Author

I maybe worded this wrong. Sorry. I shouldn't say I haven't noticed "anything". I have noticed improvements in my overal health. I've lost 25lbs since going gluten free 3 months ago and my skin is much nicer. I had an itchy flaky rash on my scalp that's gone. I just haven't noticed my ability to absorb nutrients get better yet, is what I meant.

mushroom Proficient
mushroom
Posted

Is one of your supplements a digestive enzyme?  Often a big reason we are not absorbing our food is that we have temporarily lost the ability of the pancreas to make enough enzymes to break it down.  Many of us find that taking a digestive enzyme with each meal helps enormously.  This should also help you break down and absorb your supplements.

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    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

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