Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain / Bone Inflammation

StormyWen

Recommended Posts

StormyWen Rookie
StormyWen
Posted

I have been eating gluten free for 8 days to try to figure out if being gluten free could help with the joint pain and bone inflammation I have in the front and back of my pelvis.  My PCP told me that a diet change would not help and that I should just go to a doctor she has recommended and get cortisone injections.....which I will do anything to avoid.

 

My brother is gluten intolerant (never did medical testing) and gets acid reflux and SEVERE joint pain all over if he eats any bit of gluten.  He has always told me to try going gluten free to see if it helps me with my acid reflux and migraine headaches but I never took his advice until now.  I also just started taking anti-anxiety medication at the beginning of this year and read that anxiety could be a symptom of gluten intolerance.

 

Here's my questions:

     1)  How long should I wait until I stop taking my acid reflux medication as a test to see if the gluten free diet has elimated the acid reflux?  Normally if I miss one dose I notice it so it wouldn't take more than a day or two to find out.....I just wasn't sure how long the gluten will be hanging around in my body.

 

     2)  Can gluten intolerance cause actual bone inflammation or hardening of the joints?  These are the things that are showing up on my most recent x-ray.

 

Thanks,

    Wendy

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jhol Enthusiast
jhol
Posted

hi,

 

i can only answer one of your questions- about acid reflux. this was the only thing the docs found when i had my celiac tests. theres nothing wrong but reflux- heres 2 prescriptions for it. i just thought im not getting into taking medicines for this and that!!! - i went gluten and dairy free the next day (with a few mistakes). ive only had one problem with reflux since,when i ate strawberry smoothie.

 

everybodys different and i dont know what type of medication it is but if your still taking it how would you know if the diet has helped ?

 

gluten can cause joint pain- its one of my symptoms. sometimes you find you have to give up somthing else as well- in my case it was dairy, and nightshade vegetables(potatoes,tomatoes,peppers and aubergines) and my newest one soya!

 

hope you have some success in sorting out your problems, welcome to the forum. im sure others will have more answers for you.

janpell Apprentice
janpell
Posted

If you don't get results I would do a full elimination diet with a strict food journal. Going gluten free isn't enough for me to keep my joint pain/arthritis at bay. I have many more intolerances to deal with but I am slowly introducing more and more into my diet (over time) and it is going very well. It all depends on how much damage you have going on (I'm guessing).  Fresh tomatoes are the worst offender for my joints.

StormyWen Rookie
StormyWen
Posted
  • Author

everybodys different and i dont know what type of medication it is but if your still taking it how would you know if the diet has helped ?

I've been taking omeprazole for more years than I can remember.  If I don't take my daily dose I will have heartburn or acid reflux during that 24 hour period.  So my theory is that if I stop taking it once the gluten is out of my system that I should know pretty quickly if the diet change has helped....but I'm definetely not an expert!

 

I also think that the food log is a great idea that I'm going to try.  If I can get off of my prescription medications just from changing my diet I'm all for it.

mushroom Proficient
mushroom
Posted

The gluten goes out of your system pretty much right away; it's the autoantibodies your body has made to fight it that take a little longer to clear.  Even so, as jhol says, the only way to know is to try it. ;)

 

I had arthritic bony protrusions on my fingers when I first quit eating gluten.  My joints have remodeled over the years since, and no more little knobby bits now :D  and they move freely.  Still a little bit chubby though :rolleyes:  along with my toes.

  • 2 weeks later...
Sassbo Newbie
Sassbo
Posted

I am newly gluten free (first of 2013) and found out by doing the JJVirgin elimination diet.  (the perils of watching PBS during the holidays... found her there) I have been on Celebrex for 4 years for arthitis in my hands and hips.  It was to the point that I was limping and was impacting my activities.  Guess what?  Now that I'm gluten free, I stopped taking the Celebrex and I'm absolutely fine!  If I get "glutened" my joints get a bit achy....

 

Hope that helps...

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

The gastroenterologist I saw last week said there is no link between Celiac and fibromyalgia  (joint pain, body pain etc)

 

I don' t agree with him.

Sigh... why did I waste my time seeing that doctor.

 

Sassbo, that is encouraging. I believe it's all food related.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dozey Apprentice
Dozey
Posted

Hi stormy wren, I'm afraid I don't know enough to help with your questions, but just wanted to say that long term use of acid reflux medication can interfere with vit B12 absorbtion, which can lead to a deficiency. You might want to check that out.

Jo

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    3. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    4. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    5. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748
    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.