Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain / Bone Inflammation

StormyWen

Recommended Posts

StormyWen Rookie
StormyWen
Posted

I have been eating gluten free for 8 days to try to figure out if being gluten free could help with the joint pain and bone inflammation I have in the front and back of my pelvis.  My PCP told me that a diet change would not help and that I should just go to a doctor she has recommended and get cortisone injections.....which I will do anything to avoid.

 

My brother is gluten intolerant (never did medical testing) and gets acid reflux and SEVERE joint pain all over if he eats any bit of gluten.  He has always told me to try going gluten free to see if it helps me with my acid reflux and migraine headaches but I never took his advice until now.  I also just started taking anti-anxiety medication at the beginning of this year and read that anxiety could be a symptom of gluten intolerance.

 

Here's my questions:

     1)  How long should I wait until I stop taking my acid reflux medication as a test to see if the gluten free diet has elimated the acid reflux?  Normally if I miss one dose I notice it so it wouldn't take more than a day or two to find out.....I just wasn't sure how long the gluten will be hanging around in my body.

 

     2)  Can gluten intolerance cause actual bone inflammation or hardening of the joints?  These are the things that are showing up on my most recent x-ray.

 

Thanks,

    Wendy

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jhol Enthusiast
jhol
Posted

hi,

 

i can only answer one of your questions- about acid reflux. this was the only thing the docs found when i had my celiac tests. theres nothing wrong but reflux- heres 2 prescriptions for it. i just thought im not getting into taking medicines for this and that!!! - i went gluten and dairy free the next day (with a few mistakes). ive only had one problem with reflux since,when i ate strawberry smoothie.

 

everybodys different and i dont know what type of medication it is but if your still taking it how would you know if the diet has helped ?

 

gluten can cause joint pain- its one of my symptoms. sometimes you find you have to give up somthing else as well- in my case it was dairy, and nightshade vegetables(potatoes,tomatoes,peppers and aubergines) and my newest one soya!

 

hope you have some success in sorting out your problems, welcome to the forum. im sure others will have more answers for you.

janpell Apprentice
janpell
Posted

If you don't get results I would do a full elimination diet with a strict food journal. Going gluten free isn't enough for me to keep my joint pain/arthritis at bay. I have many more intolerances to deal with but I am slowly introducing more and more into my diet (over time) and it is going very well. It all depends on how much damage you have going on (I'm guessing).  Fresh tomatoes are the worst offender for my joints.

StormyWen Rookie
StormyWen
Posted
  • Author

everybodys different and i dont know what type of medication it is but if your still taking it how would you know if the diet has helped ?

I've been taking omeprazole for more years than I can remember.  If I don't take my daily dose I will have heartburn or acid reflux during that 24 hour period.  So my theory is that if I stop taking it once the gluten is out of my system that I should know pretty quickly if the diet change has helped....but I'm definetely not an expert!

 

I also think that the food log is a great idea that I'm going to try.  If I can get off of my prescription medications just from changing my diet I'm all for it.

mushroom Proficient
mushroom
Posted

The gluten goes out of your system pretty much right away; it's the autoantibodies your body has made to fight it that take a little longer to clear.  Even so, as jhol says, the only way to know is to try it. ;)

 

I had arthritic bony protrusions on my fingers when I first quit eating gluten.  My joints have remodeled over the years since, and no more little knobby bits now :D  and they move freely.  Still a little bit chubby though :rolleyes:  along with my toes.

  • 2 weeks later...
Sassbo Newbie
Sassbo
Posted

I am newly gluten free (first of 2013) and found out by doing the JJVirgin elimination diet.  (the perils of watching PBS during the holidays... found her there) I have been on Celebrex for 4 years for arthitis in my hands and hips.  It was to the point that I was limping and was impacting my activities.  Guess what?  Now that I'm gluten free, I stopped taking the Celebrex and I'm absolutely fine!  If I get "glutened" my joints get a bit achy....

 

Hope that helps...

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

The gastroenterologist I saw last week said there is no link between Celiac and fibromyalgia  (joint pain, body pain etc)

 

I don' t agree with him.

Sigh... why did I waste my time seeing that doctor.

 

Sassbo, that is encouraging. I believe it's all food related.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dozey Apprentice
Dozey
Posted

Hi stormy wren, I'm afraid I don't know enough to help with your questions, but just wanted to say that long term use of acid reflux medication can interfere with vit B12 absorbtion, which can lead to a deficiency. You might want to check that out.

Jo

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sc'Que?
      - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      1

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

      @Daura Damm: Can we get a gluten-free Imperial Oatmeal Stout, please? Please?!?
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    4. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    5. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748
    PatientOne
    Newest Member
    PatientOne
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.