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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can Anyone Help Me Diagnose What I've Got?
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3 posts in this topic

Dear All

 

I don't know if I have celiac disease, gluten intolerance (is it the same as wheat intolerance?), or just irritable bowel syndrome, but all I know is that I feel worse and worse after eating.  I'm at the stage now that I can hardly have a meal without getting at least mild stomach cramps afterwards.  That's my worst problem, but I have many of the other symptoms too, which apparently are typical  of people with these intolerances, e.g. bloating (this is also a big problem for me - I often have to burp repeatedly after meals), alternating between constipation and diarrhea, having to make stools often, mucus in the stool and skin problems.  Regarding the latter,  I don't know if I have ecezma or psoarosis but I get itchy skin and I have to moisturise quite a lot.  Before I moisturised so much, the problem was worse and sometimes I used to bleed.

 

My problems have been getting worse recently since I have been eating more wheat-based products, especially bread.  I have always eaten quite a lot of cereals and pasta anyway.  My friend thought that it could be wheat intolerance, but I'm not sure and a bit bamboozled by all the stuff on the web.

 

I have been eating a high-fibre diet for quite a long time because until my friend made his suggestion I thought I had IBS.  Wheat intolerance may explain why my health never seems to get better (in fact, if anything, it gets worse) despite this diet.

 

I live in China and I have to say that getting help with these types of issues from doctors is easier said than done.  That's why I joined this forum and am posting this message.

 

Thank you for any help in determing if I'm on the right track in my thinking above and your suggestions about self-diagnosis and diet - I'm in pain!

 

Best

 

 

Womble

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Hello Womble,

 

The only diagnosis I've received so far is wheat intolerance as my Celiac panel appears normal.

 

If you can't get Celiac blood tests where you are I recommend cutting out wheat and gluten and dairy-milk as a test.

 

Good luck.

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    • 3 months gluten-free still feeling cramps
      Glad to help!   Never stop advocating for your health.  Be patient (that's the really hard part), but it is possible to feel well and recover from celiac disease.  Of course, you'll always have to avoid gluten as if it were rat poisoning, but there are worst things to worry about!    It is nice to have a resource like Celiac.com.  It is anonymous, so you don't have to be embarrassed about asking what you may think are dumb questions.   Hang in there!  
    • Ghirardelli Chocolate Chips
      Well, that is just wheat. Their bars/squares might be wheat free, as well, but the culprit there is barley.    Also I just got this reply: For legal reasons the information that has been provided is the only information we are authorized to provide you with.  To reiterate, our products are not certified as being gluten free. FDA requires products to be tested to confirm that gluten level is below 20ppm. Currently, Ghirardelli products have not been tested to this requirement and therefore, we do not make any gluten free claims for our products. Sincerely,  Ghirardelli Consumer Services
    • Ghirardelli Chocolate Chips
      They seem to be good about saying things may contain wheat when their products are made on shared equipment, for example their ground chocolate which I no longer use.   This is the reply I got a year ago (March 2015) when asking about their 60% cacao chips. "Dear Consumer, There is no wheat in our 60% chips and no wheat in our chips facility, as such, no wheat is run on the same line as any of our chips. Sincerely, Consumer Affairs Response Team"  
    • 3 months gluten-free still feeling cramps
      Thank you so much for the info, I did replace all my cooking wares and I did just recently stop dairy (about 3 weeks ago). I guess I have to keep it going, thank you once again, this give me more courage to continue my quest in feeling better.
    • Ghirardelli Chocolate Chips
      Hey guys,  I emailed Ghirardelli to ask about their updated allergen information because I had heard that people stopped recommending most of their products. I was specifically asking about their chocolate chips because my understanding is that they are free of gluten and not made on the same lines as that one bar/square that contains barley. This is what I received back:
      "Thank you for contacting Ghirardelli Chocolate Company.  We appreciate your interest in finding out about the ingredients in our products and your interest in a gluten free product.

      At this time we do not offer any "gluten free" products, but appreciate your interest in seeing whether Ghirardelli offers one.  Our products are not certified as being gluten free. FDA requires products to be tested to confirm that gluten level is below 20ppm. Currently, Ghirardelli products have not been tested to this requirement and therefore, we do not make any gluten free claims for our products. Please reference the ingredient information, on our packaging for any Ghirardelli product that you are interested in, to determine if it is suitable for you.

      Please know you are a valued consumer and we do appreciate your interest in our products.

      Sincerely,

      Consumer Affairs Response Team"   I asked them to please clarify - are your products testing over 20ppm? Or you don't test them at all? I also asked about the lines that the chocolate chips are made on because the ingredients do not indicated any problems. The customer service rep sent me the exact same message back with one of the lines underlined. I emailed again, and they don't seem to want to disclose any more information.   Has anyone else had any luck talking with them lately? Insights on the chocolate chips?
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