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Anyone Else Doubt That They'd Be Diagnosed?
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Started by taynichaf,

3 posts in this topic

Posted

I'm just waiting for my test results and I really hope they cone out positive..mainly because it would be proof to the people that called me a hypochondriac! So how did you all feel while waiting for a diagnoses???

And please...PLEASE pray that my test will be positive!..it would change EVERYTHING..

Thank you so much :)

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Posted

Ackkk .... you said you would be eating gluten for 6 weeks first! 

How long has been your gluten challenge? How much bread did you eat?

 

 

I did a single tTG test after a month of going back on gluten: negative.

 

Then it was 5 months of eating from 2 up to 10 slices as I got closer to the planned test date in April.

 

And I was exactly in your shoes, waiting and hoping to have a positive test result on my panel that would explain my fibromyalgia and childhood-teen heath problems.

Then I got the negative results and I was quite disappointed.

 

Monday I went and did the old style AGA blood test in case it can help detect gluten sensitivity.

 

I'm starting to accept that maybe I don't have Celiac eventhough I was better when I first went gluten free.

Another test I did in January said I was wheat intolerant.

There are several proteins in the wheat so maybe another is affecting me.

 

I don't know if I should pray for you to have Celiac.

I too wanted that diagnosis as I don't want to be taking pills for whatever I have as I believe the answer is in nutrition.

I will pray that you have the correct diagnosis to your medical issues.

What ever it is,  I think eating the right foods for you is the right way to go.

 

 

I'm seeing the gastroenterologist tomorrow morning.

I've been waiting months to see him.

I have alot of notes and questions so I hope he's the patient type.

I hope he will agree to do an endoscopy at a future time.

 

So pray for me please. Tell God the prayer is from taynichaf, and I'll tell Him it's for me so it goes to the right place.

And I'll pray for your correct diagnosis.

 

 

PS: it's better to be a hypochondriac now to find out what's wrong  then all your life wondering what is wrong.

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Posted

I'm still doing the challenge! It's just, when I went to the doc she asked if I wanted to be tested now or if I wanted to wait..and I couldn't resist ha,I want to know ASAP! Ha.

Ah! I feel so bad that you've been eating gluten for so long :( I reaally hope that you can get an endoscopy to see what's going on!

I'll pray that all goes well for you! And I hope I have celiac..it sounds bad but I just want a diagnosis...

<3

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Go To Topic Listing Celiac Disease - Pre-Diagnosis, Testing & Symptoms

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      Mental Trauma

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      Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • ch88
      Mental Trauma

      By ch88 · Posted

      Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       

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