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Need Clarification -- I'm New To This

tiredofdoctors

By tiredofdoctors
in Dermatitis Herpetiformis

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tiredofdoctors Enthusiast
tiredofdoctors
Posted

I have been reading everyone's discussions with regard to psoriasis and DH. Are there places where DH is more common? Are there places where psoriasis is more common? I have been diagnosed with Sebo-psoriasis (definitely seborrhea, but not quite psoriasis), but the bumps I have on my face and scalp sound like what you guys are describing as DH. Blistery-looking, bleeding, etc. The dermatologist I went to just gave me 5 different prescriptions to put on it (mostly cortisone topicals). It made it less red, but didn't really make it go away. Since I've started gluten-free, they're not as bad -- can you still get them biopsied???

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jenvan Collaborator
jenvan
Posted

I don't have DH, but I do have psoriasis. It is common to be in the scalp or start there. It is often found on the same spot--both sides of the body. It can start out as red and then grow into a larger spot with thick white flakes--some people describe them at oatmealish...

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    • trents
      EMA Result

      By trents · Posted

      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      Violent reaction to gluten after going gluten-free?

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • Scott Adams
      Seeking advice on potential gluten challenge

      By Scott Adams · Posted

      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      Violent reaction to gluten after going gluten-free?

      By Greymo · Posted

      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      EMA Result

      By trents · Posted

      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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