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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Help Needed, Testing Question
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3 posts in this topic

I have been suffering for 7 months with a severe itching/rash issue. I saw my dermatologist beginning 6 months ago. She has not been able to figure out what my issue is. 2 months ago, I began to attempt an elimination diet based on a book I picked up. I noticed improvement after 2 weeks or so. Basically, by playing with my diet, I have come to the conclusion that I am allergic to flour or perhaps celiac. If I don't eat it, I am fine. If I eat flour, within 4 hours, I begin to itch all over my body. I went to see my family doctor today to request that he order the testing for celiac for me. He told me I have to be eating wheat for at least a few straight days for the test to have proper results. I left there determined to get myself back on a diet including wheat. I had bread with dinner and now I can not sleep from all the itching. How can I possibly eat it for several days? I am already miserable!!

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Welcome janmar63,   

 

Go chat with the ladies in the  Dermatitis Herpetiformis section.

 

They are very knowledgeable. 

 

http://www.celiac.com/gluten-free/forum/26-dermatitis-herpetiformis/

 

 

................................................................................................................

 

Added:

 

The quick on and off skin response sounds like a wheat allergy.

 

You might want to be refered to an allergist to be tested to see if you have a wheat allergy

as this would be easier to confirm or eliminate than Dermatitis Herpetiformis testing. 

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For blood testing, you need to be consuming 1-4 gluten servings (ie. slices of bread) daily for 4-12 weeks, 2 slices of bread / day for 6 or more weeks seems pretty common. If you are already eating bread pretty steadily, you don't need to add on more time, but if you eat "gluten light" or have gone without gluten for a length of time, you should probably do this gluten challenge for a while.

 

If you have dh at the moment, you might want to see if you can get a skin biopsy (taken from beside the rash I believe). if you get a positive biopsy, it could save you some time and some discomfort if you have to keep eating it.

 

I agree with Marcus that a wheat allergy could be a factor too.

 

I hope you figure it out soon.  Best wishes.

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    • Second Panel has come back...advice?
      Update!  I went to my follow up with my gastro. He's hesitant to diagnose celiac without an endo, but said he will redo the blood work after I'm several months gluten free. My DGP IGA should drop after being gluten free, right? This could confirm the suspicion? I know the TTG levels drop, but want to be sure the DGP also drops on the diet.  Thanks! I've already replaced all kitchen equipment and pantry/fridge items. Early on I didn't realize the potential for cross contamination in restaurants. Now I do, so eating out has been put on halt for a bit. 
    • does your diet have to be like a perfection?
      Yes.  You have to be 100% gluten abstinent when you have Celiac Disorder.  It gets easier to be gluten abstinent, not because you get used to it but because of the negative effects that ingesting gluten causes when you accidentally eat something with gluten.  Nothing tastes good enough to go through a glutening.  As your system heals it will become less tolerant of your occasional lapses into gluten consumption--accidental or otherwise. You have to take this seriously.  You get used to it and there are some wonderful gluten-free options out there.  But you can't go back to gluten and stay healthy.  It just doesn't work that way. Good luck.
    • does your diet have to be like a perfection?
      I  think you need to watch where you get your medical info!    Of course you can't introduce gluten back in. And  of course you have to be strictly gluten-free and not intentionally eat gluten.   "The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve. The gluten-free diet requires a completely new approach to eating. You have to be extremely careful about what you buy for lunch at school or work, eat at cocktail parties, or grab from the refrigerator for a midnight snack. Eating out and traveling can be challenging as you learn to scrutinize menus for foods with gluten, question the waiter or chef about possible hidden sources of gluten, and search for safe options at airports or on the road. However, with practice, identifying potential sources of gluten becomes second nature and you’ll learn to recognize which foods are safe and which are off limits." http://www.cureceliacdisease.org/living-with-celiac/guide/treatment    
    • does your diet have to be like a perfection?
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    • does your diet have to be like a perfection?
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