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Anyone Else Have Lupus?
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Started by jesimae,

2 posts in this topic

Posted

Hey guys! A year after being diagnosed with Celiac (3 years ago), I was diagnosed with lupus. Most of the time I can tell which one is bothering me by my symptoms (and I usually automatically know when I've been glutened).

 

For the last 6 days I have been exhausted, diarrhea, headaches, dizziness, facial rash, vomiting, body aches, and hot flashes. I have not eaten anything questionable. At first, I just thought I inadvertently glutened myself, but it just keeps dragging on...

 

I wonder if this is indeed the Celiac or if it's Lupus. If it's Lupus I prob need to get a steroid. The prob with that is oral steroids KILL my GI tract. I am miserable, and my butt is killing me!

 

Just wanted to know from someone who has both, how you know which is which? Steroids or no? ANA? Sed Rate? Should I go to my PCP? GI doc? Rheumy? I have to get better. We are buying a new house, and I need to get busy! Also, should I ask for an IV to get some fluids?

 

Thank you much!

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Posted

If you think you may be seriously dehydrated go to the ER since it is the weekend and your doctor is likely not available. You could start with your PCP on Monday. When you call ask to speak to a nurse if possible and tell her what is going on. She can then talk to your doctor and either schedule you there or advise you see a specialist.  

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Go To Topic Listing Celiac Disease - Coping With

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    • squirmingitch
      Stool Testing

      By squirmingitch · Posted

      Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
    • kkgirl
      i think after 6 years of being told i was intolerant its celiac

      By kkgirl · Posted

      I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
    • ironictruth
      other food allergy testing

      By ironictruth · Posted

      Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • squirmingitch
      Overwhelmed and unable to accept

      By squirmingitch · Posted

      Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • egs1707
      Overwhelmed and unable to accept

      By egs1707 · Posted

      Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.

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