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Anyone Else Have Lupus?


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Posted 30 August 2013 - 05:27 PM

Hey guys! A year after being diagnosed with Celiac (3 years ago), I was diagnosed with lupus. Most of the time I can tell which one is bothering me by my symptoms (and I usually automatically know when I've been glutened).


For the last 6 days I have been exhausted, diarrhea, headaches, dizziness, facial rash, vomiting, body aches, and hot flashes. I have not eaten anything questionable. At first, I just thought I inadvertently glutened myself, but it just keeps dragging on...


I wonder if this is indeed the Celiac or if it's Lupus. If it's Lupus I prob need to get a steroid. The prob with that is oral steroids KILL my GI tract. I am miserable, and my butt is killing me!


Just wanted to know from someone who has both, how you know which is which? Steroids or no? ANA? Sed Rate? Should I go to my PCP? GI doc? Rheumy? I have to get better. We are buying a new house, and I need to get busy! Also, should I ask for an IV to get some fluids?


Thank you much!

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Dx: Celiac Disease, Epilepsy
Meds: Depakote, Celexa, Prilosec, Levsin, Zofran, Meclizine

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Posted 31 August 2013 - 04:06 AM

If you think you may be seriously dehydrated go to the ER since it is the weekend and your doctor is likely not available. You could start with your PCP on Monday. When you call ask to speak to a nurse if possible and tell her what is going on. She can then talk to your doctor and either schedule you there or advise you see a specialist.  

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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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