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Trying To Figure Out What's Wrong With Me
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6 posts in this topic

Starting about three months ago, I've had diarrhea almost daily. Sometimes every day. I get horrible lower cramps before each episode. Sometimes I even get the cramping before doing a normal bowel movement. I went gluten free, and paleo, for a few months and I felt great. But this was before all of my symptoms started. As soon as I stopped the diet, which was almost immediately, I went back to eating whatever I wanted. This is when I started getting the horrible diarrhea.

 

Is there a gold standard test that I could ask for from my GI doctor? I also have bleeding sometimes . I believe that's due to some hemorrhoids that I was diagnosed with a few years ago. Not sure if I should get another colonsoscopy because of the bleeding, or not. Just wish I knew what was going on. I'm scared for my health. It's so uncomfortable. Any suggestions? Does this sound like a wheat allergy?

 

Thanks,

C.A.

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Hi Herman.

 

If you wish to get tested for Celiac, this link will provide the information of the tests that are needed for diagnosis.

 

http://celiacdisease.about.com/od/diagnosingceliacdisease/a/Celiac-Blood-Tests.htm

 

This is usually followed up with an endoscope procedure to look for damage.  Your doctor can also test you for a wheat allergy.

 

It is impossible to know if your symptoms are related to gluten ingestion or a wheat allergy without further testing.

 

Colleen

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Yes it sounds like Celiac to me. But going on Gluten for weeks and being tested would be the best thing. Good luck to you!! 

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First of all, any number of health problems (and medications and viruses and food intolerances) will cause diarrhea and GERD, so I would not leap to celiac right away, Herman.

 

Celiac is NOT a wheat allergy.

Celiac is an autoimmune disease of the small intestine that can cause a myriad of

 symptoms and it is diagnosed by blood tests and/or endoscopy with a biopsy.

 

A colonoscopy examines the large intestine. 

It  is not used to diagnose celiac.

or a wheat allergy (those tests are done by an allergist and have nothing to do with celiac disease)

 

You could have diarrhea and hemorrhoids because of any number of reasons.

While thyroid disease and GERD are associated with gluten intolerance and celiac, they are not necessarily an indicator of celiac.

(I know many people --some in my family--with thyroid disease and/or GERD

 and they are not celiacs)

 

Start from the beginning and do as Colleen suggests, have a celiac panel done.

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Thank you everyone for taking the time to respond. I'll get the proper testing done and go from there. Although I know that I've some type of celiac panels done a few yrs ago. They were negetive. Whatever is going on is really putting a damper on my life right now. Very hard. Thanks again.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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