Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Boy Scouts / Girl Scouts Camping


Rosiesallergies

Recommended Posts

Rosiesallergies Rookie

Does anyone have Celiac kids in Boy Scouts or Girl Scouts? How do you handle camping and big events? What do you bring with you to make food prep easier and safe? Do you try to have the whole troop have safe gluten-free food? How much detail do you give when you explain you child's food issues with the kids and parents?

My child is a Celiac and is careful about being gluten-free. However, she doesn't want to explain the details of Celiac disease with everyone especially kids/parents who will just be rude or insensitive.

Thanks for your help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Christine0125 Contributor

My daughter is a girl scout.  For S'mores, I send her own graham crackers.  For burgers & dogs, I send a bun and usually there are chips/fruits/veggies she can eat but I usually have an extra stash just in case.  We had a planned overnight this past summer at her summer day camp and although it got cancelled due to a widespread stomach virus, I contacted the staff ahead of time to find out what was on the dinner menu.  I had planned to send her with a similar meal.  We were lucky that this camp had a kitchen in the main shelter so it could be refrigerated and microwaved.  I so want her to do a full week sleep-away camp one of these years because I have such fond memories of it as a kid but that SCARES me food wise. 

 

BTW... our troop doesn't sell cookies until the winter but my friend's daughter is selling now and they have a gluten-free chocolate chip cookie as a pilot program.  YAY!  I'm hoping we have the same. 

Mizzo Enthusiast

Ahhh Girl scouts :  the parent volunteer run program 

 

I have had mixed responses with this. Our passed troop leader did little to nothing to accommodate a  gluten-free or mostly gluten-free environment for the troop mtgs or day events. New leaders this year so we will see.

 

On the camping events and overnighters we have had really exceptional  help in insuring a safe food environment. We got lucky the day camp had a nurse with a Ceiiac child  and the overnighter food events was run by a woman with gluten intolerance who actually brought her own pots pans etc.. in for herself and the kids.

 

It really is how the leaders receive and react. You have no control over it. On one daycamp BBQ event  I sent  everything except drink and bagged chips. It included Hot dogs wrapped in foil , bun ,sides , a smores baggie with her own toasting stick  etc...      on another overnighter event i sent a smore's pack and a backup snack bag.       Situation's vary depending on the volunteers.

 

Call and speak to whoever is in charge in advance.

cyclinglady Grand Master

Great suggestions.  I agree, it's all about the volunteers.  We have a scout who is allergic to peanuts/nuts/milk and some vegetarians.  We have accommodated them all since they were Brownies (Cadettes now).  My daughter does not have celiac disease but  I do.  I attended campouts/jamborees and I would worry about the dish cleaning procedure too.  Your daughter should always be first in line to use the dunk bag system.  She should always be served first if she is sharing any safe food and you should go over food prep procedures with your leader.  

 

If I were you, I'd attend the camping trips for a while.  Talk to your leader about taking a Volunteer Essentials class and become a scout.  You may or may not need to take a camping class (at least one of the adults in the class should take this).  

 

It's fun and our troop loves to camp.  I used to go all the time, but have backed away (the girls can do so much more at the Cadette level).  I have not camped with the troop since my dx, but prior to that I had to bring my own food due to my food allergies.   We do bring snacks to meetings always it's peanut/nut/meat and dairy free.  And when it's our turn, we make it gluten-free too!   

 

Like the others have said, it's up to the volunteers.  Hopefully, they really believe in the Girl Scout Promise and Law!  If push comes to shove, start your own troop or find another.  It's a great way to meet different girls from different schools.  

  • 2 weeks later...
Fourmonkeysjumping Rookie

We have a fantastic leader who does everything she can to make things safe. It helped so much when another boy in our scout den was diagnosed. They have each other and just knowing another kid who has it is so great for both of them. His mother and I make gluten-free snacks and work to keep them safe. We have a sleepover at a museum next month and I just called and talked to them and they are allowing us to bring our own dinner and giving us access to their kitchen to put it in the fridge and heat it in the microwave. My son went to scout can't (day camp) this summer and whenever they had food relatd things, they called me and we came up with substitutes. They also bought gluten-free snacks for him if they bought snacks for the campers.

In all honesty, we have been so so so lucky in our lives with the people we have come into contact with.

:)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.