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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Will Cooking My Own gluten-free Food In My Friend's Kitchen Make Me Sick?
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5 posts in this topic

My friend invited me over for breakfast, but completely forgot about my diet and was making French Toast. No matter, I brought gluten-free pancake mix and breakfast sausages. Is making my own gluten free food in a french toast environment enough to make me sick? We did share a spatula that was supposedly washed, but maybe it was just rinsed. I wasn't paying attention at the moment.

 

Alternatively, is my gluten-free food making me sick? Seems like I do better not eating things labeled "gluten free".

 

Background: Lactose intolerant at 19. Thought I had leaky gut in my 20's. MD told me I had IBS in my 30's. Had a mysterious problem swallowing this past summer, and pain in my ear. New MD said, I had an ear infection, and my throat was fine. I was also having reflux. Ten days and minus six pounds later. My MD didn't have an answer. I suggested Celiac. My IGA panel was normal, so no scope was warranted. I was on a low gluten diet at the time, mostly because bread and past was making me gag. I have Vit D deficiency (new that) and border line low Iron (MCV). MD suggested a gluten-free diet. I avoided all grains at first, just because I was too sick to cook. I felt great, Eczema went away, Keritosis Pilars got smooth, no digestive symptoms. I ate raw broccoli, carrots and cauliflower for days and didn't have any noticeable gas.  Imagine that! Early on, I ate a handful of goldfish crackers at work by mistake. It seemed like a score, such a giant bag. I grabbed a cup to snack on them later at my desk. Two hours after consumption, I thought I was going to explode. After the following three days of bloat, I felt like I had been kicked in the stomach.

 

Not sure where to go from here. The diet is a challenge to learn. 

 

Advice? Thoughts? Comments?

 

 

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Did you say something about eating Goldfish crackers?  Were they the gluten-free ones?   You don't say when that happened or how long you have been actually gluten-free.  I think that if you are still accidentally eating gluten, it is too soon to worry about super sensitivity.  Why not give the regular gluten-free diet a proper try first?  Or, if you wish, do just produce and unprocessed meat first for quick healing and then try adding some of those gluten-free processed items.  You need to give the diet time.  If you are gluten intolerant, you need time to heal.  You also need time to learn the diet and stop making mistakes.  I hope you feel better.

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yes, if the surface its contaminated.

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Did you say something about eating Goldfish crackers?  Were they the gluten-free ones?   You don't say when that happened or how long you have been actually gluten-free.  I think that if you are still accidentally eating gluten, it is too soon to worry about super sensitivity.  Why not give the regular gluten-free diet a proper try first?  Or, if you wish, do just produce and unprocessed meat first for quick healing and then try adding some of those gluten-free processed items.  You need to give the diet time.  If you are gluten intolerant, you need time to heal.  You also need time to learn the diet and stop making mistakes.  I hope you feel better.

What is the regular gluten-free diet?  Is that the one that the nutritionist gives you? 

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What is the regular gluten-free diet?  Is that the one that the nutritionist gives you? 

 

This is a bit old, but I believe she just meant that this person needs to be gluten-free & not accidentally eating gluten for a while before they worry that they are "super sensitive".  

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