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Family History Of Mental Health And Epilepsy
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5 posts in this topic

Ok, quick overview of myself and my family...

My sister has epilepsy, my brother has down syndrome, my mother has digestive issues, thyroid disease, has had a miscarriage and has mood swings, her mother (my grandmother) has schizophrenia and chronic depression and debilitating arthritis and her brother (my great uncle) has parkinsons.

All of these can be linked to celiac/GI correct?

 

Now for my symptoms-

I have medication controlled epilepsy, regular pain in my shoulder, hip, knees and wrists and occasionally unexplained upper abdominal pain, heartburn, mild eczema on the back of my arms, constantly battling with cold sores/fever blisters (when I did not just have a cold or fever) and acne, occasional digestive issues(foul odor, inconsistancy), bloating and bad pms symptoms/ irregular cycles and the WORST sugar cravings.

The eczema didn't start until this past year, I've had knee pain since I was 17 from volleyball injuries and knee surgury. I also wasn't eating regularly until this year, I was on a medication called topamax which drastically reduced my appitite, I probably wasn't eating enough of anything to have a problem.

 

With this kind of family history how likely is it that my mother's side of the family is a carrier of celiac or GI?

 

I went on the ketogenic diet (high fat mod. protein, low carbs) last week  to see if it may be an alternative to dropping off of my last epilepsy medication, within 4 days my joint pain completely disapperared, acne started clearing up, eczema disappeared, I felt normal. Over this past weekend I skimped on my diet and had wheat twice- a bite of danish and a flour tortilla, By Tuesday my eczema was back, acne on my face, knee pain. I initally thought it was because it also follows along the guidelines of an anti-inflammitory diet, but after running across article after article about celiac and gluten intolerance and these same symptoms I started wondering if that could be it.

I'm back on the keto diet as I just feel better overall when I'm on it.

 

Thoughts, questions, comments?

I'll be perusing the forum for answers but for those knowledgeable and experienced I'd LOVE to hear from you!

 

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One I out 10 people with Down syndrome are celiac.. I hope ur brother has been tested for celiac or is gluten free....

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if ur skin rash came on after eating wheat, it sure point to something ....do u have any photograph of ur skin rash ... Maybe u can post it if u have....

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No one in my family has been tested for celiac, I'd like to get tested but can't bring myself to go back to gluten, I feel 100% better while off of it which makes me very unwilling to go back... I may have to do it so my family will take this a little more seriously seeing as my mom has had symptoms for years,

 

I don't have any pictures but here is a picture from the internet that resembles what it usually looks like, most areas were in circles on the back of my arms, it would look more severe the more I scratched it.

I also have a spot on my upper arm that's lighter in pigmint when I've been in the sun.

iStock_000018576096XSmall.jpg

 

 

 

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    • That's great to hear you are feeling better Nightsky.  I really think when our GI systems are in distress already that it doesn't take much to set off symptoms.  Once I eliminated the other foods that cause me symptoms that helped a lot too.  And added some extra vitamin D to my diet and selenium. Many of us have developed reactions to other foods besides gluten and need to avoid them to keep symptoms at bay.  For me nightshades, carrots, soy, dairy, and celery all cause symptoms.  It took me awhile to figure out all those food culprits, but it made a big difference getting them out of my diet. But we are all individuals, and our bodies react individually.  So you may or may not have additional food intolerances develop. Celiac is one of those life journey things and we learn as we go.  Just keep the bottle of aspirin handy!
    • I know that Lea & Perrins Worcestershire Sauce  in the US is gluten free, I also know that in Canada it is NOT. This is a very reliable site: http://www.glutenfreedietitian.com/vinegar/ But it is in the US. I'm agast that the Irish Celiac Society says malt vinegar is gluten free.  I wouldn't use it. No sense taking any chance at all.
    • You should never have cut out gluten until you had the biopsy done. It's much worse to have to go back on after you've been off gluten for a while. There's no way I could ever do the gluten challenge after being off gluten for even a month because my reactions got so dramatically worse.  Stress definately can trigger celiac- before I was diagnosed - it got the worst after surgery and after a stressful time planning my daughters wedding. 
    • Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training.  Since that probably won't happen, I suggest you find a new doctor.  He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing.  The testing for celiac disease depends on the immune reaction being active.  Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically.  The University of Chicago celiac disease center recommends: ******************************************** http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy.  That may cause worse symptoms than before when you were eating gluten.  So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area?  They exist in many parts of the USA and world.  They can be a good place to get a knowledgeable doctor recommendation.  There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
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