Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Family History Of Mental Health And Epilepsy
0

5 posts in this topic

Ok, quick overview of myself and my family...

My sister has epilepsy, my brother has down syndrome, my mother has digestive issues, thyroid disease, has had a miscarriage and has mood swings, her mother (my grandmother) has schizophrenia and chronic depression and debilitating arthritis and her brother (my great uncle) has parkinsons.

All of these can be linked to celiac/GI correct?

 

Now for my symptoms-

I have medication controlled epilepsy, regular pain in my shoulder, hip, knees and wrists and occasionally unexplained upper abdominal pain, heartburn, mild eczema on the back of my arms, constantly battling with cold sores/fever blisters (when I did not just have a cold or fever) and acne, occasional digestive issues(foul odor, inconsistancy), bloating and bad pms symptoms/ irregular cycles and the WORST sugar cravings.

The eczema didn't start until this past year, I've had knee pain since I was 17 from volleyball injuries and knee surgury. I also wasn't eating regularly until this year, I was on a medication called topamax which drastically reduced my appitite, I probably wasn't eating enough of anything to have a problem.

 

With this kind of family history how likely is it that my mother's side of the family is a carrier of celiac or GI?

 

I went on the ketogenic diet (high fat mod. protein, low carbs) last week  to see if it may be an alternative to dropping off of my last epilepsy medication, within 4 days my joint pain completely disapperared, acne started clearing up, eczema disappeared, I felt normal. Over this past weekend I skimped on my diet and had wheat twice- a bite of danish and a flour tortilla, By Tuesday my eczema was back, acne on my face, knee pain. I initally thought it was because it also follows along the guidelines of an anti-inflammitory diet, but after running across article after article about celiac and gluten intolerance and these same symptoms I started wondering if that could be it.

I'm back on the keto diet as I just feel better overall when I'm on it.

 

Thoughts, questions, comments?

I'll be perusing the forum for answers but for those knowledgeable and experienced I'd LOVE to hear from you!

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

One I out 10 people with Down syndrome are celiac.. I hope ur brother has been tested for celiac or is gluten free....

0

Share this post


Link to post
Share on other sites

if ur skin rash came on after eating wheat, it sure point to something ....do u have any photograph of ur skin rash ... Maybe u can post it if u have....

0

Share this post


Link to post
Share on other sites

No one in my family has been tested for celiac, I'd like to get tested but can't bring myself to go back to gluten, I feel 100% better while off of it which makes me very unwilling to go back... I may have to do it so my family will take this a little more seriously seeing as my mom has had symptoms for years,

 

I don't have any pictures but here is a picture from the internet that resembles what it usually looks like, most areas were in circles on the back of my arms, it would look more severe the more I scratched it.

I also have a spot on my upper arm that's lighter in pigmint when I've been in the sun.

iStock_000018576096XSmall.jpg

 

 

 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined