Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Let's Get On Oprah!


CeliacMe

Recommended Posts

CeliacMe Rookie

Hey all:

I just read another post, stating that someone had emailed Oprah, but no response. I have emailed her also, about a month ago. We need to keep emailing her about doing a show about Celiac in order to reach those who are sick and not knowing why. I suffered for 15 years with symptoms, many you have suffered just as long or longer. I wouldn't wish the suffering that we had on anyone. We can reach more and educate people about it. Please email Oprah. I have also gone to the extent of joining her message board, I am gonna start Celiac-postings ASAP!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FaithInScienceToo Contributor

LOL...the Oprah Show once wanted me to be on the show...for family issues...They called me after I e-mailed my personal story to them....but, I wouldn't agree to asking my Mom to be on to show...and I also thought it would kill my Dad to have his alcoholism history aired...

Anyway...

Perhaps one of her producers personally knows of celiac disease, or of someone close with it, and might take a personal interest in it if our e-mails are mentioned in a meeting about potential show topics?

I imagine, though, that Oprah would be MOST interested in the overall idea of 'dangerous grains' AND in dairy protein problems that so many people have...

The reason I think this is because Oprah is so very much into maintaining her own health, and so she, herself, would want to know about the potential problems with common foods.

So...I think 'our' best bet might be to ask for a show about the dangers of common foods, and to ask to have Celiac Disease be a highlighted part of the show...with info and links about it put onto her web site.

OK...so, I will e-mail the show, also. It's a good plan to flood her 'show ideas' address with this....

I haven't read the other post about this yet, but here is the link you'll need to e-mail the show about this idea:

Open Original Shared Link

Gina

FaithInScienceToo Contributor

I just sent my e-mail to the show.

Hopefully, they will find that having a show about this topic can help many people who suffer needlessly.

Gina

Guest barbara3675

Not waiting until my initial comes up, sent an email to the show just now. We can do this......we should email soon and often and stay on top of it letting everyone know if she does decide to do the show. Barbara

Rikki Tikki Explorer

I just emailed Oprah and asked her to do a show about celiac disease. I remember Kaiti tried last year, maybe we will have better luck this time :D

Jnkmnky Collaborator

You could further your chances of success by emailing the authors of Dangerous Grains and ask them to pester Oprah. Also, the guy who runs this web site, Scott Adams could write and offer to be a guest speaker on the subject. I think the more reputable people who have accountability on the issue would be more persuasive.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Books about celiac

    2. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

    3. - Scott Adams replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

    4. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Pain in the right side of abdomen

    5. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      31

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,468
    • Most Online (within 30 mins)
      7,748

    Jlgep
    Newest Member
    Jlgep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      Hmm, I think you mean the Gluten Intolerance Group®?  Their website is not gig.net.  Maybe it was at one point?  I am new to all of this, but did find their website here:  https://gluten.org/ Kind Regards, Known1
    • knitty kitty
      @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten.  Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8.  Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification.  Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/
    • Scott Adams
      I just want to mention that corn and wheat do both contain storage proteins (corn has zein, wheat has gliadin and other gluten proteins), and there are some small similarities in certain amino acid sequences. However, those similarities are not considered medically equivalent, and corn proteins do not trigger the autoimmune response of celiac disease in the vast majority of people with celiac. Celiac disease specifically involves an immune reaction to gluten peptides found in wheat, barley, and rye. Corn is classified as gluten-free because its proteins do not activate that same immune pathway in most individuals. Although corn intolerance is very real, the explanation about the proteins being the same is oversimplified to the point where it's not accurate.
    • knitty kitty
      @Heatherisle, Newly diagnosed people often suffer from nutritional deficiencies.  Thiamine B1 stores can be depleted within a few weeks.  Thiamine deficiency can be localized in the gastrointestinal tract causing Gastrointestinal Beriberi.  It is under diagnosed by doctors!  Dysfunction of the gallbladder can be seen in Gastrointestinal Beriberi.   Have your daughter mention the possibility of Gastrointestinal Beriberi to her dietician!  Gastrointestinal Beriberi will be improved with high dose Thiamine administration, orally or by IV.  It's important to have thiamine deficiency corrected as quickly as possible to prevent life threatening health problems and risk permanent damage.   I had Gastrointestinal Beriberi but my doctors did not recognize it.  I had diarrhea.  I had my gallbladder removed (gallbladder attack).  Still had diarrhea.  My thiamine deficiency progressed to Wernickes Encephalopathy.  My doctors diagnosed me as "depressed".   I corrected the thiamine deficiency at home with over the counter Thiamine Hydrochloride tablets.  I'm very thankful I studied Nutrition.   See if the symptoms match:  Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Gastrointestinal Beriberi Presenting With Chronic Diarrhea: A Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC12794365/
    • knitty kitty
      Thiamine and other B vitamins are available without a prescription, but it's always best to discuss supplementing with your doctor and dietician.   I take Thiamine Hydrochloride, Benfotiamine, and Thiamine TTFD.  (Avoid Thiamine Mononitrate because it's not well absorbed or used by brain f bodies.)  Benfotiamine especially helps heal the gastrointestinal tract.  Thiamine TTFD is great for improving brain function and mood.  They all work to improve everything, but Thiamine TTFD through the blood brain barrier the easiest, so the brain starts working to control everything better. Every form of Thiamine needs magnesium to make enzymes.  I like Magnesium Threonate which enters the brain more easily than other forms.  Low magnesium contributes to anxiety and depression.  The eight B vitamins all work together, so a B Complex is a good idea.  Don't worry if it already has thiamine in it.  The B vitamins are water soluble and easily excreted.   I get mine online.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.