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Let's Get On Oprah!


CeliacMe

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CeliacMe Rookie

Hey all:

I just read another post, stating that someone had emailed Oprah, but no response. I have emailed her also, about a month ago. We need to keep emailing her about doing a show about Celiac in order to reach those who are sick and not knowing why. I suffered for 15 years with symptoms, many you have suffered just as long or longer. I wouldn't wish the suffering that we had on anyone. We can reach more and educate people about it. Please email Oprah. I have also gone to the extent of joining her message board, I am gonna start Celiac-postings ASAP!


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FaithInScienceToo Contributor

LOL...the Oprah Show once wanted me to be on the show...for family issues...They called me after I e-mailed my personal story to them....but, I wouldn't agree to asking my Mom to be on to show...and I also thought it would kill my Dad to have his alcoholism history aired...

Anyway...

Perhaps one of her producers personally knows of celiac disease, or of someone close with it, and might take a personal interest in it if our e-mails are mentioned in a meeting about potential show topics?

I imagine, though, that Oprah would be MOST interested in the overall idea of 'dangerous grains' AND in dairy protein problems that so many people have...

The reason I think this is because Oprah is so very much into maintaining her own health, and so she, herself, would want to know about the potential problems with common foods.

So...I think 'our' best bet might be to ask for a show about the dangers of common foods, and to ask to have Celiac Disease be a highlighted part of the show...with info and links about it put onto her web site.

OK...so, I will e-mail the show, also. It's a good plan to flood her 'show ideas' address with this....

I haven't read the other post about this yet, but here is the link you'll need to e-mail the show about this idea:

Open Original Shared Link

Gina

FaithInScienceToo Contributor

I just sent my e-mail to the show.

Hopefully, they will find that having a show about this topic can help many people who suffer needlessly.

Gina

Guest barbara3675

Not waiting until my initial comes up, sent an email to the show just now. We can do this......we should email soon and often and stay on top of it letting everyone know if she does decide to do the show. Barbara

Rikki Tikki Explorer

I just emailed Oprah and asked her to do a show about celiac disease. I remember Kaiti tried last year, maybe we will have better luck this time :D

Jnkmnky Collaborator

You could further your chances of success by emailing the authors of Dangerous Grains and ask them to pester Oprah. Also, the guy who runs this web site, Scott Adams could write and offer to be a guest speaker on the subject. I think the more reputable people who have accountability on the issue would be more persuasive.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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