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Let's Get On Oprah!

CeliacMe

By CeliacMe
in Publications & Publicity

Recommended Posts

CeliacMe Rookie
CeliacMe
Posted

Hey all:

I just read another post, stating that someone had emailed Oprah, but no response. I have emailed her also, about a month ago. We need to keep emailing her about doing a show about Celiac in order to reach those who are sick and not knowing why. I suffered for 15 years with symptoms, many you have suffered just as long or longer. I wouldn't wish the suffering that we had on anyone. We can reach more and educate people about it. Please email Oprah. I have also gone to the extent of joining her message board, I am gonna start Celiac-postings ASAP!

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FaithInScienceToo Contributor
FaithInScienceToo
Posted

LOL...the Oprah Show once wanted me to be on the show...for family issues...They called me after I e-mailed my personal story to them....but, I wouldn't agree to asking my Mom to be on to show...and I also thought it would kill my Dad to have his alcoholism history aired...

Anyway...

Perhaps one of her producers personally knows of celiac disease, or of someone close with it, and might take a personal interest in it if our e-mails are mentioned in a meeting about potential show topics?

I imagine, though, that Oprah would be MOST interested in the overall idea of 'dangerous grains' AND in dairy protein problems that so many people have...

The reason I think this is because Oprah is so very much into maintaining her own health, and so she, herself, would want to know about the potential problems with common foods.

So...I think 'our' best bet might be to ask for a show about the dangers of common foods, and to ask to have Celiac Disease be a highlighted part of the show...with info and links about it put onto her web site.

OK...so, I will e-mail the show, also. It's a good plan to flood her 'show ideas' address with this....

I haven't read the other post about this yet, but here is the link you'll need to e-mail the show about this idea:

Open Original Shared Link

Gina

FaithInScienceToo Contributor
FaithInScienceToo
Posted

I just sent my e-mail to the show.

Hopefully, they will find that having a show about this topic can help many people who suffer needlessly.

Gina

Guest barbara3675
Guest barbara3675
Posted

Not waiting until my initial comes up, sent an email to the show just now. We can do this......we should email soon and often and stay on top of it letting everyone know if she does decide to do the show. Barbara

Rikki Tikki Explorer
Rikki Tikki
Posted

I just emailed Oprah and asked her to do a show about celiac disease. I remember Kaiti tried last year, maybe we will have better luck this time :D

Jnkmnky Collaborator
Jnkmnky
Posted

You could further your chances of success by emailing the authors of Dangerous Grains and ask them to pester Oprah. Also, the guy who runs this web site, Scott Adams could write and offer to be a guest speaker on the subject. I think the more reputable people who have accountability on the issue would be more persuasive.

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    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
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    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

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      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
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