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Let's Get On Oprah!

CeliacMe

By CeliacMe
in Publications & Publicity

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CeliacMe Rookie
CeliacMe
Posted

Hey all:

I just read another post, stating that someone had emailed Oprah, but no response. I have emailed her also, about a month ago. We need to keep emailing her about doing a show about Celiac in order to reach those who are sick and not knowing why. I suffered for 15 years with symptoms, many you have suffered just as long or longer. I wouldn't wish the suffering that we had on anyone. We can reach more and educate people about it. Please email Oprah. I have also gone to the extent of joining her message board, I am gonna start Celiac-postings ASAP!

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FaithInScienceToo Contributor
FaithInScienceToo
Posted

LOL...the Oprah Show once wanted me to be on the show...for family issues...They called me after I e-mailed my personal story to them....but, I wouldn't agree to asking my Mom to be on to show...and I also thought it would kill my Dad to have his alcoholism history aired...

Anyway...

Perhaps one of her producers personally knows of celiac disease, or of someone close with it, and might take a personal interest in it if our e-mails are mentioned in a meeting about potential show topics?

I imagine, though, that Oprah would be MOST interested in the overall idea of 'dangerous grains' AND in dairy protein problems that so many people have...

The reason I think this is because Oprah is so very much into maintaining her own health, and so she, herself, would want to know about the potential problems with common foods.

So...I think 'our' best bet might be to ask for a show about the dangers of common foods, and to ask to have Celiac Disease be a highlighted part of the show...with info and links about it put onto her web site.

OK...so, I will e-mail the show, also. It's a good plan to flood her 'show ideas' address with this....

I haven't read the other post about this yet, but here is the link you'll need to e-mail the show about this idea:

Open Original Shared Link

Gina

FaithInScienceToo Contributor
FaithInScienceToo
Posted

I just sent my e-mail to the show.

Hopefully, they will find that having a show about this topic can help many people who suffer needlessly.

Gina

Guest barbara3675
Guest barbara3675
Posted

Not waiting until my initial comes up, sent an email to the show just now. We can do this......we should email soon and often and stay on top of it letting everyone know if she does decide to do the show. Barbara

Rikki Tikki Explorer
Rikki Tikki
Posted

I just emailed Oprah and asked her to do a show about celiac disease. I remember Kaiti tried last year, maybe we will have better luck this time :D

Jnkmnky Collaborator
Jnkmnky
Posted

You could further your chances of success by emailing the authors of Dangerous Grains and ask them to pester Oprah. Also, the guy who runs this web site, Scott Adams could write and offer to be a guest speaker on the subject. I think the more reputable people who have accountability on the issue would be more persuasive.

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    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Iam · Posted

      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
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      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By bobadigilatis · Posted

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
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      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
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