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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Exact Details Of Endocscopic Biopsy
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3 posts in this topic

Hi all, I hope you can help me in a hurry. It's been so long since I went through my biopsy that I cannot recall the appropriate methodology for the endoscopy. My mom is having an endoscopy for another reason but had bloodwork done last week that indicated that it might be prudent to check for celiac disease/villi damage. Anyhow I am fairly confident that her GI is not too knowledgable in this area and she won't switch her procedure at this point to someone in the area who is more knowledgable with celiac disease, but she is willing to have her GI pull the biopsy for celiac disease. So now I need to give her very specific information as to what to give to him re: what needs to be done for a proper biopsy. Even if he knows what to do, if nothing else, it will help to educate her. For some reason despite my surfing and net abilities I can't seem to pull this information off the net. Can anyone help me out here? She needs to call him ASAP and so any input would be appreicated.

It's great to finally join y'all. I'm a newbie here.

Thanks so much!

Andrea

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I don't think I have all the details you need but I DO know that he needs to take something 8-10 samples from various areas of the small bowel. Damage can be spotty and if you take just 2 or 3 samples you can miss it. If he doesn't know what he's looking for he needs to let somebody with more expertise read the slides.

richard

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One thing they need to do when they take the biopsies (and most doctors don't do this) is to look at the tissue samples on the cellular level. I think it is called a celiac disease-3 stain. They can then count the number of lymphocytes (anything over 20 is conscidered celiac disease). This would only need to be done in the absence of visible damage to the villi, but it needs to be specially requested by the doctor or the lab won't do it.

I found this out too late, and since I had no visible damage I do not have the diagnosis. I will NOT do another gluten challenge (the first one was horrible) and so I will have to wait until they accept Enterolab in the mainstream medical field.

God bless,

Mariann

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