Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will Catscan Show Celiac?


Susan555

Recommended Posts

Susan555 Rookie

Hi everyone! I'm new to this site but I've been doing a lot of reading the past few days. There's great info on here. I have had abdominal problems my entire life. The problems worsened the past 10 years. I am a 30 year old woman and the past two years of my life have been almost unbarrible with the constant pain I am in. I can't eat anything without doubling over in pain. It got to the point that I stopped eating because it hurt so bad. I went down to 80lbs. I am now back to 100lbs. My doctors has recently suggested that I have celiac because of something found in my bloodtests. For years I was told I had IBS and I knew it had to be more than just IBS. This problem and excrusiating pain has effected my entire life. It's held me back from working, from doing the important and special things with my kids, from going places, to my marriage falling apart because my husband was sick and tired of me being sick all the time and the doctors telling me there was nothing wrong with me. This disease has stopped me from living my life and I want my life back now!

My question is, will a catscan confirm that I have celiac? I am having one done this month. I am schedualed for a colonoscopy and endoscopy in July because the doctor wants biopsies of my large and small intestines. I am scared to death to have those tests done. I've already postponed them once. How bad are those tests? I was also wondering, how long does it usally take to be symtom free after starting a gluten-free diet? I have been gluten-free about 9 days now and really haven't seen any results.

Thank you all so much for listening to me. Any replies would be greatly appriciated. I don't feel so alone now. Susan :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kerri124 Apprentice

I don't think you can determine if you have Celiac by a Catscan. I could be wrong though. I have been gluten-free for 4 weeks and haven't had any major improvements. I am beginning to think I have other intolerances/allergies to foods. I'm going to talk to my dr tomorrow.

Guest jhmom

HI Susan, I am sorry to hear of your health problems but it sounds like the doctors are on top of things and checking everything!

I too had a CT scan and it does not show Celiac. The Colonoscopy doesn't either (I don't think) but I am sure because of your symptoms and weight loss your doc wants to check your entire GI tract. The Endoscopy will show if there is any "villi damage" in the small intestines. The tests are not bad if you are sedated, when you wake up you should not remember anything and should not be in any pain. The worse thing is the

lovegrov Collaborator

Sorry, but the CT cannot show celiac. You must have the endoscopy with biopsy.

Both the endoscopy and colonoscopy are a breeze. The colonoscopy prep the night before isn't a barrel of laughs, but for people who have suffered through years of diarrhea and worse, it's not so bad. For the actual procedure you will be sedated and also given an amnesiac. I remember nothing at all about either one. I was groggy for part of the day because of the sedation but I didn't even have a sore throat (or a sore anything else).

I'll repeat that you must continue eating gluten for this test to be accurate.

good luck

Guest gillian502

Don't worry about the endoscopy or the colonoscopy. I spent months worrying myself sick about them, and they are nothing! Everyone says the prep for the colonoscopy is so awful, well, for me it wasn't. Can't explain it, maybe I just got lucky for once! It helps to have a bowel movement early in the day before you drink the prep stuff, that way there's not much left to give if you know what I mean. I was not in the bathroom every 2 minutes like everyone said I would be. It was maybe 3 times an hour, very briefly, for about 3 hours. That was it. A breeze, completely.

As for the CT Scan, it can show additional problems but not Celiac. The endoscopy will show that. The colonoscopy is there to show Inflammatory Bowel Diseases such as Crohn's and Colitis (just found out myself I have that one, too.) There is no pain with any of these procedures, and they're worth having. Good luck!

debmidge Rising Star

Susan:

Wish you much good luck! You're story mirrors my husband's in that it took doctors many, many years to get the diagnosis correct. They kept saying IBS just until late 2003. He too was too sick to work or travel or attend social engagements. Undiagosed celiac disease is debilitating and creates its own stress.

Keep you chin up and stay positive. Keep gluten free forever - no cheating. You should have relief soon and will feel better than you had in a long time.

Best wishes,

debmidge

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    2. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,412
    • Most Online (within 30 mins)
      7,748

    Susan Marble
    Newest Member
    Susan Marble
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.