Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will Catscan Show Celiac?


Susan555

Recommended Posts

Susan555 Rookie

Hi everyone! I'm new to this site but I've been doing a lot of reading the past few days. There's great info on here. I have had abdominal problems my entire life. The problems worsened the past 10 years. I am a 30 year old woman and the past two years of my life have been almost unbarrible with the constant pain I am in. I can't eat anything without doubling over in pain. It got to the point that I stopped eating because it hurt so bad. I went down to 80lbs. I am now back to 100lbs. My doctors has recently suggested that I have celiac because of something found in my bloodtests. For years I was told I had IBS and I knew it had to be more than just IBS. This problem and excrusiating pain has effected my entire life. It's held me back from working, from doing the important and special things with my kids, from going places, to my marriage falling apart because my husband was sick and tired of me being sick all the time and the doctors telling me there was nothing wrong with me. This disease has stopped me from living my life and I want my life back now!

My question is, will a catscan confirm that I have celiac? I am having one done this month. I am schedualed for a colonoscopy and endoscopy in July because the doctor wants biopsies of my large and small intestines. I am scared to death to have those tests done. I've already postponed them once. How bad are those tests? I was also wondering, how long does it usally take to be symtom free after starting a gluten-free diet? I have been gluten-free about 9 days now and really haven't seen any results.

Thank you all so much for listening to me. Any replies would be greatly appriciated. I don't feel so alone now. Susan :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kerri124 Apprentice

I don't think you can determine if you have Celiac by a Catscan. I could be wrong though. I have been gluten-free for 4 weeks and haven't had any major improvements. I am beginning to think I have other intolerances/allergies to foods. I'm going to talk to my dr tomorrow.

Guest jhmom

HI Susan, I am sorry to hear of your health problems but it sounds like the doctors are on top of things and checking everything!

I too had a CT scan and it does not show Celiac. The Colonoscopy doesn't either (I don't think) but I am sure because of your symptoms and weight loss your doc wants to check your entire GI tract. The Endoscopy will show if there is any "villi damage" in the small intestines. The tests are not bad if you are sedated, when you wake up you should not remember anything and should not be in any pain. The worse thing is the

lovegrov Collaborator

Sorry, but the CT cannot show celiac. You must have the endoscopy with biopsy.

Both the endoscopy and colonoscopy are a breeze. The colonoscopy prep the night before isn't a barrel of laughs, but for people who have suffered through years of diarrhea and worse, it's not so bad. For the actual procedure you will be sedated and also given an amnesiac. I remember nothing at all about either one. I was groggy for part of the day because of the sedation but I didn't even have a sore throat (or a sore anything else).

I'll repeat that you must continue eating gluten for this test to be accurate.

good luck

Guest gillian502

Don't worry about the endoscopy or the colonoscopy. I spent months worrying myself sick about them, and they are nothing! Everyone says the prep for the colonoscopy is so awful, well, for me it wasn't. Can't explain it, maybe I just got lucky for once! It helps to have a bowel movement early in the day before you drink the prep stuff, that way there's not much left to give if you know what I mean. I was not in the bathroom every 2 minutes like everyone said I would be. It was maybe 3 times an hour, very briefly, for about 3 hours. That was it. A breeze, completely.

As for the CT Scan, it can show additional problems but not Celiac. The endoscopy will show that. The colonoscopy is there to show Inflammatory Bowel Diseases such as Crohn's and Colitis (just found out myself I have that one, too.) There is no pain with any of these procedures, and they're worth having. Good luck!

debmidge Rising Star

Susan:

Wish you much good luck! You're story mirrors my husband's in that it took doctors many, many years to get the diagnosis correct. They kept saying IBS just until late 2003. He too was too sick to work or travel or attend social engagements. Undiagosed celiac disease is debilitating and creates its own stress.

Keep you chin up and stay positive. Keep gluten free forever - no cheating. You should have relief soon and will feel better than you had in a long time.

Best wishes,

debmidge

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      3

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    2. - Scott Adams replied to colinukcoeliac's topic in Gluten-Free Restaurants
      3

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    3. - Scott Adams replied to Colleen H's topic in Coping with Celiac Disease
      4

      Barilla gluten free pasta

    4. - knitty kitty commented on Scott Adams's article in Latest Research
      2

      Do Severe Symptoms at Celiac Diagnosis Predict Long-Term Health? (+Video)

    5. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,477
    • Most Online (within 30 mins)
      7,748

    Matt Johnston
    Newest Member
    Matt Johnston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the the celiac.com community @colinukcoeliac! I am in the USA but I don't think it is any different here in my experience. In some large cities there are dedicated gluten free restaurants where only gluten free ingredients are found. However, there are a growing number of mainstream eatery chains that advertise gluten free menu items but they are likely cooked and prepared along with gluten containing foods. They are just not set up to offer a dedicated gluten free cooking, preparation and handling environment. There simply isn't space for it and it would not be cost effective. And I think you probably realize that restaurants operate on a thin margin of profit. As the food industry has become more aware of celiac disease and the issue of cross contamination I have noticed that some eateries that used to offer "gluten free" menu items not have changed their terminology to "low gluten" to reflect the possibility of cross contamination.  I would have to say that I appreciate the openness and honesty of the response you got from your email inquiry. It also needs to be said that the degree of cross contamination happening in that eatery may still allow the food they advertise as gluten free to meet the regulatory standards of gluten free advertising which, in the USA is not more than 20ppm of gluten. And that is acceptable for most celiacs and those who are gluten sensitive. Perhaps you might suggest to the eatery that they add a disclaimer about cross contamination to the menu itself.
    • Scott Adams
      This is a very common source of frustration within the celiac community. Many restaurants, including large chain restaurants, now offer a "gluten-free" menu, or mark items on their menu as gluten-free. Some of them then include a standard CYA disclaimer like what you experienced--that they can't guarantee your food will be gluten-free. Should they even bother at all? This is a good question, and if they can't actually deliver gluten-free food, should they even be legally allowed to make any claims around it?  Personally I view a gluten-free menu as a basic guide that can help me order, but I still explain that I really have celiac disease and need my food to be gluten-free. Then I take some AN-PEP enzymes when my food arrives just in case there may be contamination. So far this has worked for me, and for others here. It is frustrating that ordering off a gluten-free menu doesn't mean it's actually safe, however, I do feel somewhat thankful that it does at least signal an awareness on their part, and an attempt to provide safe food. For legal reasons they likely need to add the disclaimer, but it may also be necessary because on a busy night, who knows what could happen?
    • Scott Adams
      That is a very old study that concludes "Hypothetically, maize prolamins could be harmful for a very limited subgroup of CD patients", and I've not seen any substantive studies that support the idea that corn would be a risk for celiacs, although some people with celiac disease could have a separate intolerance to it, just like those without celiac disease might have corn intolerance.
    • knitty kitty
      @cristiana,  It's the same here, doctors check just Vitamin D and B12 routinely.  The blood tests for other B vitamins are so inaccurate, or expensive and time consuming, doctors tend to gloss over their importance.   B vitamins are water soluble and easily excreted in urine.  Some people need to be careful with Pyridoxine B6 because they can store it longer than most due to genetics.  A symptom of Pyridoxine B6 deficiency is peripheral neuropathy.  Taking Pyridoxine B6 will relieve the neuropathy, but excess Pyridoxine can also cause peripheral neuropathy.  So, if neuropathy symptoms return, stop taking the Pyridoxine and it will resolve quickly as the excess Pyridoxine is used.  But the body still needs the other B vitamins, so taking them separately without Pyridoxine can be an option.   If one is low in Vitamin D, one may also be low in the other fat soluble vitamins, A, E, and K.  Vitamin K is important to bone and circulatory  health.  Vitamin A helps improve the health of the intestine, eyes, skin and other mucus membranes.  Vitamin E helps our immune system stay healthy.   Important minerals, iron, magnesium and calcium, as well as a dozen or so trace minerals are important, too.  They need the B vitamins to be utilized, too.   Our gluten free diets can be low in B vitamins.  Our absorption can be affected for many years while we're healing.  Supplementing with B vitamins boosts our absorption and helps our bodies and our brains function at optimal levels.   Hope this helps!
    • Wheatwacked
      Welcome to the forum @colinukcoeliac. Letting them know that they lost a customer because they could not satisfy cross contamination needs may incline them to fix that problem.  It was good of tnem to alert you.  The more they know...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.