Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will Catscan Show Celiac?


Susan555

Recommended Posts

Susan555 Rookie

Hi everyone! I'm new to this site but I've been doing a lot of reading the past few days. There's great info on here. I have had abdominal problems my entire life. The problems worsened the past 10 years. I am a 30 year old woman and the past two years of my life have been almost unbarrible with the constant pain I am in. I can't eat anything without doubling over in pain. It got to the point that I stopped eating because it hurt so bad. I went down to 80lbs. I am now back to 100lbs. My doctors has recently suggested that I have celiac because of something found in my bloodtests. For years I was told I had IBS and I knew it had to be more than just IBS. This problem and excrusiating pain has effected my entire life. It's held me back from working, from doing the important and special things with my kids, from going places, to my marriage falling apart because my husband was sick and tired of me being sick all the time and the doctors telling me there was nothing wrong with me. This disease has stopped me from living my life and I want my life back now!

My question is, will a catscan confirm that I have celiac? I am having one done this month. I am schedualed for a colonoscopy and endoscopy in July because the doctor wants biopsies of my large and small intestines. I am scared to death to have those tests done. I've already postponed them once. How bad are those tests? I was also wondering, how long does it usally take to be symtom free after starting a gluten-free diet? I have been gluten-free about 9 days now and really haven't seen any results.

Thank you all so much for listening to me. Any replies would be greatly appriciated. I don't feel so alone now. Susan :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kerri124 Apprentice

I don't think you can determine if you have Celiac by a Catscan. I could be wrong though. I have been gluten-free for 4 weeks and haven't had any major improvements. I am beginning to think I have other intolerances/allergies to foods. I'm going to talk to my dr tomorrow.

Guest jhmom

HI Susan, I am sorry to hear of your health problems but it sounds like the doctors are on top of things and checking everything!

I too had a CT scan and it does not show Celiac. The Colonoscopy doesn't either (I don't think) but I am sure because of your symptoms and weight loss your doc wants to check your entire GI tract. The Endoscopy will show if there is any "villi damage" in the small intestines. The tests are not bad if you are sedated, when you wake up you should not remember anything and should not be in any pain. The worse thing is the

lovegrov Collaborator

Sorry, but the CT cannot show celiac. You must have the endoscopy with biopsy.

Both the endoscopy and colonoscopy are a breeze. The colonoscopy prep the night before isn't a barrel of laughs, but for people who have suffered through years of diarrhea and worse, it's not so bad. For the actual procedure you will be sedated and also given an amnesiac. I remember nothing at all about either one. I was groggy for part of the day because of the sedation but I didn't even have a sore throat (or a sore anything else).

I'll repeat that you must continue eating gluten for this test to be accurate.

good luck

Guest gillian502

Don't worry about the endoscopy or the colonoscopy. I spent months worrying myself sick about them, and they are nothing! Everyone says the prep for the colonoscopy is so awful, well, for me it wasn't. Can't explain it, maybe I just got lucky for once! It helps to have a bowel movement early in the day before you drink the prep stuff, that way there's not much left to give if you know what I mean. I was not in the bathroom every 2 minutes like everyone said I would be. It was maybe 3 times an hour, very briefly, for about 3 hours. That was it. A breeze, completely.

As for the CT Scan, it can show additional problems but not Celiac. The endoscopy will show that. The colonoscopy is there to show Inflammatory Bowel Diseases such as Crohn's and Colitis (just found out myself I have that one, too.) There is no pain with any of these procedures, and they're worth having. Good luck!

debmidge Rising Star

Susan:

Wish you much good luck! You're story mirrors my husband's in that it took doctors many, many years to get the diagnosis correct. They kept saying IBS just until late 2003. He too was too sick to work or travel or attend social engagements. Undiagosed celiac disease is debilitating and creates its own stress.

Keep you chin up and stay positive. Keep gluten free forever - no cheating. You should have relief soon and will feel better than you had in a long time.

Best wishes,

debmidge

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Olenaideole's topic in Gluten-Free Foods, Products, Shopping & Medications
      18

      What apps or tech tools help you manage celiac disease?

    2. - Florence Lillian replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      51

      Supplements for those Diagnosed with Celiac Disease

    3. - Scott Adams commented on Jefferson Adams's article in Summer 2022 Issue
      5

      Once Promising Celiac Drug Larazotide Looks Doomed After Disappointing Phase 3 Trial

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,420
    • Most Online (within 30 mins)
      7,748

    Debra Bundgaard
    Newest Member
    Debra Bundgaard
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      The comments requested are very limited in scope, and I don't think this shotgun approach would be helpful, but that is just my 2 cents, for what it's worth.
    • Florence Lillian
      Hi all: Scott, I am glad you listed all your supplements, etc, many new to Celiac will be floundering as I was when diagnosed in 1979.  After much trial and error, the following supplements are now a daily MUST HAVE for me.  We have to keep in mind, too much can be just as damaging as too little. Further, I have found that 'brands' of supplements vary hugely! I tend to go with the newer ones as I find they 'digest' better, and digestion is HUGE with many of us. In hopes my input may help someone through the jungle of supplements:  I buy from Amazon. I take Naka Cal/Mag Marine Algae with Vit D.  Explanation here re/ Algae: I do not take anything with fish oil. I can't swallow large capsules so I chew them...a bit 'fishy' tasting but not bad. I was using a top brand but one day it tasted like...rotten, strong, yucky fish taste. I switched to Algae, I also have a 'thing' about farmed fish full of anti-biotics but don't get me started on that...I digress. I take extra D3, Celiacs need this.. I get the one from Sports Research, great company in U.S.A.  I also take B complex from 'Thorne' as well as extra B12 subliminal, another one Celiacs need. I agree with Scott the need for extra B12 for a clear brain. I also take a Multi vitamin with Zinc- Naka brand.  Also, K2 MK7 is a must for Celiac... and finally, I take Omega-3 Algae.  I truly hope this helps someone -  I know the struggle well.  Florence.  
    • Known1
    • catnapt
      it's not mysterious, it's currently not officially diagnosed as labs are presenting a very complicated case with multiple potential causes- and of course they each have a different treatment.    hmm... well everything you put in your body is interactive with everything else   are you assuming I have an iodine deficiency?  I seriously doubt it but I'll check the iodine content of my nori sometime to see if maybe I'm getting too much... too much is bad too. link doesn't work I've spent hundreds if not thousands of hours crafting a good optimal diet for my particular needs.  Yes definitely thousands of hours. I have enjoyed it immensely and will continue to refine my diet as it suits me and my own physiology.  . My body has decided it will not work properly, either due to an adenoma (benign) or hyperplasia and/or a small kidney defect (that remains to be seen but it's not looking good) and/or we don't yet know......... it does NOT look like it's one single issue, it appears to be at least two different ones not going to give out my full medical history here for ppl to second guess (unless one or more of you have a medical degree and specialize in gastroenterology, nephrology, endocrinology, rheumatology etc) I got permission to stop the drug I was on (I was going to stop it without "permission") so in the meantime I have to walk a VERY VERY fine line with vit D and calcium intake to avoid losing any more BMD than I already have. while I wait til the next round of testing I MAY be able to tolerate a gluten challenge that doesn't have the addition of a confounding variable (the drug I just stopped) it was impossible to tell what symptoms were from the gluten challenge and which were from the drug  
    • Known1
      Hello @knitty kitty, Thanks for your detailed reply.  I have been eating bananas daily since my diagnosis.  The only time I have noticed a reaction is when eating a banana without washing my hands first.  I just had another banana this morning and am feeling fine.  I will eat another one for lunch, since the 4 remaining are getting quite ripe.  Traditionally speaking, I have never had a problem with latex.  Granted I am freshly diagnosed with Celiac.  With that said, I have come to learn it impacts everyone differently.  For instance my vitamin levels are all in the normal range other than D.  From what I have read (here and elsewhere), that is somewhat rare. I already purchased 64oz of Everyone by EO hand lotion that is labeled gluten-free.  It arrived yesterday afternoon via Amazon.  I started using it last night and again this morning.  I haven't formed a final opinion on it, but initial thoughts are good.  I will be giving away the 3 brand new bottles of Lubriderm I had previously purchased (from Costco) some time last year. Thank you again and have a wonderful day ahead.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.