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Advice On Celiac Diagnosis
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Hey all,I am new to these boards so please bear with me. I have been running around with GI doctors for the past two years. I have received two opinions. My current doctor feels I have IBS. However, e tested me for celiac and one of the tests the Gliadin AB IgG test was elevated(35). The other tests were negative. I had a endoscopy done about two years ago from a different doctor where he biopsied me for celiac and it was negative. My current doctor feels that was sufficient and doesnt want to pursue another endoscopy. I am at a crossorads right now because I still have bad cramping and D even with the antispasmotics he has prescribed. ANy advice how to handle this?

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I have heard of people who had nothing but a positive Igg who went gluten-free and that solved everything.

How bad do you feel and how much do you want to feel better? Going gluten-free without knowing if that's really the problem seems radical, but if your doctors are at a complete dead end, what they're doing isn't helping, and you aren't functioning, you can always take a deep breath, go gluten-free and see if it helps. If it doesn't, then all you've lost is a few weeks of eating gluten. If it does, then you have your answer and you feel good again. You might have to do this for at least a few weeks and maybe longer to know if it's working. Some people feel better almost immediately while others take some time.

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Hi Tommy1976,

You could always check into Enterolab. There are many different levels of gluten intolerance. If you have a lesser level then you will not have enough damage in your intestines to cause antibodies to leak out of the intestines into the blood stream. Enterolab tests for antibodies in the stool, since they are eliminated from the intestines through the stool, and are therefor easier to determine in gluten intolerant people who are not yet classified as Celiac (which is the worst form of gluten intolerance).

You can order the tests from home without a doctors order and you perform the test ans send it back overnight mail. It is very simple to do and many of us here at this site have done their testing. Most of us were in similar situations as yours, where the doctors won't test us anymore due to negative tests. I just wanted a more concrete answer. Yes or NO. I knew I felt better off gluten, but I wanted to know it was really necessary before doing it, and I wanted my kids tested. It ends up we are all 4 gluten intolerant. All of us are doing better now and I highly recommend Enterolab. Not all doctors will accept the diagnosis (I've got about a 70% rate of acceptance with 6 different doctors), and most insurance won't pay for it, but in my mind it was worth it. The tests range from $99 to $349, depending on what you are testing for. If you are interested in checking them out here is a link to their website.

http://www.enterolab.com

God bless,

Mariann

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    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
    • Hi Beachgrl, We have had members with microscopic colitis before, usually in addition to celiac disease.  Have you been tested for celiac disease?  The reason I ask is, it is much better to be tested for celiac before starting the gluten-free diet.  The primary tests for celiac are to detect antibodies to gliaden in the bloodstream.  Those antibodies start to decline when a person stops eating gluten, so the tests become useless. There is no reason a person can't have more than one digestive system disease.  So it is smart to be tested for celiac disease if you can get the testing arranged.  Any change in symptoms after stopping gluten is an indicator that gluten is causing a reaction of some kind.  It could be celiac, or it could be non-celiac gluten intolerance, (NCGI).  There aren't any reliable tests for NCGI yet. Welcome to the forum!
    • I have microscopic colitis. Having a bad flare of D.  On Budesonide for first time for this. It's helping some- only on it a week. Do you think gluten free would help even if tested negative a few years ago?  Was gluten free yesterday and no BM changes. Even had cramps this AM that wasn't really having before. Thank you!!
    • Do you want to tell us the name of it ans where it is located.  maybe someone else will be looking for a restaurant there. Also, it is very helpful if you go to Find me Gluten Free and review it.
    • Hi. Im currently under consultants at my hospital,  and have just been for a blood test to test for celiacs. My symptoms are.... Low weight (8stone and 5ft6tall) Joint pain,particularly my hips and lower back  Severe pain in my gall bladder area which happens spontaneously... Especially after eating foods containing gluten.  When i have foods with wheat in i pain in my  right side just under my bottom rib, i become a bit spaced out and cant focus on anything. Also get diahorrea aswell. I recently contracted C-Diff and was in hospital for 4 days very poorly. Im 29years old (female) and the doctors r trying to work out what is wrong with me. I have always struggled to gain weight,  even after having 2 children i am still only 8stone. I was just wondering if u think i could have celiacs?  The pain in my side has been on and off for 7years! And the last 3years its been severe. And it definitely comes on as soon as i have gluten/wheat.   
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