Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Advice On Celiac Diagnosis
0

3 posts in this topic

Hey all,I am new to these boards so please bear with me. I have been running around with GI doctors for the past two years. I have received two opinions. My current doctor feels I have IBS. However, e tested me for celiac and one of the tests the Gliadin AB IgG test was elevated(35). The other tests were negative. I had a endoscopy done about two years ago from a different doctor where he biopsied me for celiac and it was negative. My current doctor feels that was sufficient and doesnt want to pursue another endoscopy. I am at a crossorads right now because I still have bad cramping and D even with the antispasmotics he has prescribed. ANy advice how to handle this?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have heard of people who had nothing but a positive Igg who went gluten-free and that solved everything.

How bad do you feel and how much do you want to feel better? Going gluten-free without knowing if that's really the problem seems radical, but if your doctors are at a complete dead end, what they're doing isn't helping, and you aren't functioning, you can always take a deep breath, go gluten-free and see if it helps. If it doesn't, then all you've lost is a few weeks of eating gluten. If it does, then you have your answer and you feel good again. You might have to do this for at least a few weeks and maybe longer to know if it's working. Some people feel better almost immediately while others take some time.

0

Share this post


Link to post
Share on other sites

Hi Tommy1976,

You could always check into Enterolab. There are many different levels of gluten intolerance. If you have a lesser level then you will not have enough damage in your intestines to cause antibodies to leak out of the intestines into the blood stream. Enterolab tests for antibodies in the stool, since they are eliminated from the intestines through the stool, and are therefor easier to determine in gluten intolerant people who are not yet classified as Celiac (which is the worst form of gluten intolerance).

You can order the tests from home without a doctors order and you perform the test ans send it back overnight mail. It is very simple to do and many of us here at this site have done their testing. Most of us were in similar situations as yours, where the doctors won't test us anymore due to negative tests. I just wanted a more concrete answer. Yes or NO. I knew I felt better off gluten, but I wanted to know it was really necessary before doing it, and I wanted my kids tested. It ends up we are all 4 gluten intolerant. All of us are doing better now and I highly recommend Enterolab. Not all doctors will accept the diagnosis (I've got about a 70% rate of acceptance with 6 different doctors), and most insurance won't pay for it, but in my mind it was worth it. The tests range from $99 to $349, depending on what you are testing for. If you are interested in checking them out here is a link to their website.

http://www.enterolab.com

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,311
  • Topics

  • Posts

    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined