Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Arrythmias?

colorado kathy

Recommended Posts

colorado kathy Newbie
colorado kathy
Posted

I've been reading where a number of people have had heart arrythmias w/celiac. Would anyone be willing to share what kinds of problems they've had and what the treatment was? Thanks - Kathy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


whitball Explorer
whitball
Posted
I've been reading where a number of people have had heart arrythmias w/celiac. Would anyone be willing to share what kinds of problems they've had and what the treatment was? Thanks - Kathy

I have had heart issues for awhile, but usually with stress. After I went gluten-free, I had an episode where I had "heart skips" every 2-3 minutes. I had it checked, but turned out to be an extra heart beat, but also could be from aspartame from drinking diet pepsi. So, I have stopped almost all aspartame and have had few issues since.

jaten Enthusiast
jaten
Posted

Yes, I was diagnosed with PVC's (common and often benign) and PAC's (the real trouble) many years ago. I was diagnosed with this long before I was diagnosed with Celiac, but probably not before I was Celiac. Many tests were run, and I have no damage, etc., but the PVC's and PAC's are always evident and frequent. Doc could find no reason for them, but is alarmed at their severity. I have been on med to control them (and it does fairly well), but have to have med changed about once every couple of years because one will stop working after awhile.

Since Celiac diagnosis in Dec., I have read that arrhythmia can be a symptom of Celiac.

Canadian Karen Community Regular
Canadian Karen
Posted

Before going gluten-free, I would get them terrible! They terrified me! It felt like my heart was skipping a beat and then pounding through my chest on the next beat. Sometimes, it would last up to 1 hour. I had the test where I wore the monitor for 24 hours, but it didn't show anything.

After going gluten-free, they went away - totally. I NEVER get them anymore......

Karen

i canary Rookie
i canary
Posted

I have very short episodes where my heart skips. Scary when it happens. As far as I know I'm not taking anything for it. I'm taking 40 pills a day - so I might be confused as to what is for what. Next time I'm talking to my doctor - I'll ask her.

Canary

Carriefaith Enthusiast
Carriefaith
Posted

When I eat gluten by accident, I can get very bad heart palpitations, heart racing, and heart pain. The episodes can be quite scary. During my last severe episode, my heart was skipping beats, racing really fast and then I would get very sweaty, clammy, dizzy, nauseated, and then I'd feel like I would pass out. I think I even blacked out a few times. This all happened within 24 hours of eating at a restaurant. My doctor thinks that the heart problems are a wheat allergy reaction, since I am also allergic to wheat. He told me that I should not be eating food that I haven't seen being prepared, like at restaurants. I only eat food that I, or someone I trust, has prepared.

megsylvan2 Apprentice
megsylvan2
Posted

Yes, I had them too. Some kind of sub atrial/ventricular complexes (don't remember the exact name). It was like Karen described - skipping a beat and then pounding and racing. It was a wild heart arrythmia. It made me cough and was very uncomfortable. I couldn't live with it. Had all the cardio testing done, and it was nothing significant. Was put on Atenolol, and that controlled it very well. Then thought I was getting some adverse side effects from the Atenolol. Happened to mention it to one doctor who told me that more likely the cause of the heart arrythmia was too high a dosage of synthroid - my thyroid medication. Endocrinologist tested that and found it was a little high. Reduced my dose, and I was able to go off they Atenolol without any return of heart symptoms.

All of this was pre-GI problems and pre-gluten free. After gluten free, I even had to give up they synthroid, and when I started taking that again, the heart problems came back. I have read here that gluten-free may help resolve thyroid issues, so now I'll need to work on that. But, long story short, you might want to get your thryoid hormones checked.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

I also get PVCs, my dad and I both do. I typically get them when I'm run down or on occasional after stopping suddenly during a work out. They are usually benign and most folks don't need meds. But if it is happening frequently or during activity, I would mention it to the doc. As long as I take care of myself I don't usually have any problems. When I do get them, it feels like the heart is stopping for a moment and I lose my breath. PS--There is some relationship to the Vagus nerve/Digestive system and PVCs also. Many years ago my dad had what we now call the "fake heart attack" with chest pain and arrythmias/palpitations. Docs did all the scans/tests and he was fine. Attributed the symptoms to a heavy meal he had eaten that night and the Vagus nerve :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Iam
      - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Yes. I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy. Numerous dental visits and several professionally made bite plates did very little to help with symptoms
    2. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    3. Scott Adams
      0

      New Research Reveals Why the Gut May Stay Sensitive Even After a Gluten-Free Diet

    4. bobadigilatis
      - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm. Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate...
    5. cristiana
      - cristiana replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

      Hi @Scatterbrain Thank you for your reply. Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct. Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,303
    • Most Online (within 30 mins)
      7,748
    Josanita
    Newest Member
    Josanita
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Iam · Posted

      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Feel like I’m starting over

      By trents · Posted

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By bobadigilatis · Posted

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.