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Consistancy Of Stools After Gf?

chasesmom

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chasesmom Newbie
chasesmom
Posted

Hi

My son has been gluten-free since 4 months old. I was strictly breastfeeding when he developed severe diahrrea. After weeks of research (no help from peditrician) I went on a dairy free gluten free diet. His symptoms disappeared. At 6 months of age I introduced solids and things went fine (still gluten-free). At 13months I weaned him and he has not had a formed stool since. He is now 17 months old and remains dairy free and gluten free. He is not having liquid stools but they continue to be very soft, often huge blow outs of his diaper. Also, his stools have a distinct odor as does his breath. I have not gotten any answers from my MD other than he would like to have my son tested to be sure he is gluten intollerant. I am just wondering if my son is normal for someone on a gluten-free diet. He remains well above the 50th % for growth and has a great appetite, and has hit all age appropriate milestones (talking, walking etc.). If anyone has experience here I would be grateful. Thanks for your time

Colleen

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NaomiR Newbie
NaomiR
Posted

We are new to this - gluten free diet. My son (23 months) has been gluten-free for one week today. A lot of what you mentioned in your post sounds so familiar to me and was part of my reason for coming to this board today.

He started having chronic constipation (which I know is an actual sign of Celiacs) at 6 months of age. He is extremely delayed developmentally and is way under the growth chart in size.

However, since starting this diet his stools are now very soft and huge blow outs too. His stomach has gone from being bloated and swollen to being very soft and flat. The one thing you mentioned that I wondered about is the distinct odor....his breath STINKS!!

My son was actually tested for Celiacs at about 14 months of age but it came back inconclusive...due to his body not producing immunoglobulins.

I can't really offer advice...just tell you I am in the same situation.

chasesmom Newbie
chasesmom
Posted
  • Author

Thanks for sharing your experience. My son has never had constipation, but I feel like because of his diarrhea at such an early age, and large loose or at least very soft stools for over a year now, I am a poopie diaper expert. My husband laughs at me because if he changes our son I give him the 3rd degree "How did it smell, how big was it, did it run out the side?". I have brought this to the attention of our ped., stinkie breath and all, but he hasn't really been able to tell me anything. The testing he wants to do would require my son to eat gluten so no way. As long as he continues to grow well, I am going to stay gluten-free (and he will stay stinkie). I hope your son catches on the growth charts, and I am curious to hear what kind of projection your ped has made for your son in realation to developmental milestones? How much do they feel he will be able to make up for? Thanks for your time.

Colleen

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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