Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Desperate About Cheese


natro2

Recommended Posts

natro2 Newbie

It seems as if no celiacs have problems with cheese, but that seems hard to believe, I and other celiacs that I know of, get a reaction from eating plain (European) cheese, with no additional ingredients. I have no other allergies than gluten, so I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

Are you sure you're not casein sensitive as well as gluten sensitive? That's not exactly a milk allergy, but an intolerance, like lactose intolerance. Can you digest other dairy products (than cheese) okay? I know plenty of celiacs (esp. newly diagnosed ones) who can't digest dairy products. Some are lactose intolerant, some also have casein antibodies. So they must avoid ALL dairy. Does anyone know of a dairy free, gluten free cheese??? ;)

BURDEE

  • 2 weeks later...
oreyes Newbie

You mentioned being lactose intolerant. Before I was diagnosed and for the previous seven years I was lactose intolerant. I had always eaten yogurt for breakfast and been a big cheese fan but as my disease progressed I had to give them up. Since being diagnosed three years ago, I now eat both with no trouble. It did take a while before I could tolerate either and I was reluctant to try them at first but I really missed the yogurt. It's now a regular part of my breakfast again. :) But I've not heard of a cheese that's both dairy and gluten free.

natro2 Newbie

Well I

bigapplekathleen Contributor

HI there,

I had to give up all dairy for many months after starting the gluten-free diet. I would get the worst stomach pains, etc after ingesting any dairy product (even butter!). However, in the past week, I have reintroduced dairy 3 times without any problem. (I have been totally gluten-free since august 2003 and totally dairy-free since Jan. 2004.) I even ate ice cream this week without a problem!

Hard cheeses are the safest bet for celiacs if you have no other intolerances or allergies. Don't buy low-fat (since wheat could be in there) or flavored cheese. Eat the real thing.

At the natural foods markets around here, I have seen gluten-free, dairy-free cheese. It is made from soy. You might check for that if you have no other options. In fact, I buy frozen pizzas that have gluten-free rice crusts and soy cheese. They are completely gluten-free, casein-free and dairy-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,823
    • Most Online (within 30 mins)
      7,748

    Kayaker
    Newest Member
    Kayaker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.