Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stiffness And Pain


Guest ~wAvE WeT sAnD~

Recommended Posts

Guest ~wAvE WeT sAnD~

I have such stiff muscles--especially in the neck and shoulder region. Has anyone else felt like this? Sleeping positions have also become excruciating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

I don't know about that, it could just be you need to stretch more, maybe treat yourself to a massage

judy04 Rookie

Hi,

I used to have terrible pains and aches in my neck and shoulders.

I saw an orthopedist, before going gluten-free, he said I had a little

arthritis, but couldn't understand the pain in my shoulder. He

wanted to diagnosis it as Fibromyalgia, but I didn't pass the

test, you need to have several "pressure points" all over the

body. To make a long story short the pain away after going

on the gluten-free diet. I don't want to discourage you, but, soon

after I started this diet I developed pain in both knees

and the tops of both my feet. Maybe after my antibodies

come down I will become pain free :D

Guest LisaB

Jill,

I am following you around this forum, obviously we have had many of the same problems. I am just now getting past this one, first magnesium helped me A LOT, I use Mega Mag by Trace Minerals (liquid ionic magnesium with a whole host of trace minerals to help many things and all are from plant sources which make all the difference in the world) I get it at my local health food store but it can also be ordered online at a discount from places like www.totaldiscountvitamins.com

Also, I recently started making my own kefir which is like yogurt but sooooo much more than yogurt and kombucha tea (both are fermented) and now I am improving by leaps and bounds now and the best part is finally my pain (muscle and otherwise) is subsiding. I had the same problem with sleeping positions that you do, but not anymore. You can get taditional kefir grains and kombucha that reproduce if you take good care of them from people online for the cost of shipping and handling, if your interested I can provide the info you need to get some. These grains are placed in milk and once the milk is fermented, it is then digestible by even those that are lactose intolerant and is loaded with probiotics and nutrients, it helps heal the intestines and pushes infections such as candida out of the system. Kombucha is a culture that you place in black or green tea and sugar, it then ferments and is also loaded with nutrients and nutritional yeasts as well as a componant that helps the body rid itself of toxins. They work great together, and cheap as all get out, I can't believe all the $ I have spent on supplements that didn't help and now I am spending next to nothing and finally improving! Good stuff.

jaimek Enthusiast

Jill- I have had that exact same problem (stiffness in my neck/shoulders) for the past couple of weeks now. I thought it was due to a gluten accident that I had when I was away on vacation, but that was almost 2 weeks ago. I know the symptoms can last for that long, but my neck still hurts. I know this probably sounds funny, but it feels like my head is too heavy. Anyway, I was going to go to the doctors if it continued but I figured he couldn't do anything about it anyway. So strange!

Guest ~wAvE WeT sAnD~

Jaime,

My head feels sort of the same way, and it's constantly numb. My doctors probably won't figure it out...my mom thinks it's because of a vitamin deficiency I have. Oh well, the endoscopy will tell all.

Hang in there!!!

Guest Addicted2Gluten

Interesting...I was just at one of my many doctors today and mentioned to him that the muscles on the sides of my neck have been feeling very stiff for quite some time. He wasn't really sure as to why this would be, though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Boojca Apprentice

I've had the same thing...followed by some tingling in weird places...my arms, my jaw, etc.... Then I went to my chiropractor. Wow. Apparently I've been a little stressed these past two months (My son, 2 1/2 years old, was diagnosed in June with celiac disease after dropping to 23 lbs in less than 3 months....stress? Nah...haha) He cracked my neck, had me come back for two more visits. Amazing.

I'm still having 'head issues' but that's bc the allergy season this year is out of control. I don't even normally HAVE allergies, but this year apparently I do. My doctor has me on Zyrtec and Nasacort (I'm having sinus issues as well) and it's made a world of difference.

That may not be your problems, but I've discovered it's a little frightening what stress and allergies can do to your body!

Bridget

Georgia, VT USA

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.