Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stiffness And Pain


Guest ~wAvE WeT sAnD~

Recommended Posts

Guest ~wAvE WeT sAnD~

I have such stiff muscles--especially in the neck and shoulder region. Has anyone else felt like this? Sleeping positions have also become excruciating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

I don't know about that, it could just be you need to stretch more, maybe treat yourself to a massage

judy04 Rookie

Hi,

I used to have terrible pains and aches in my neck and shoulders.

I saw an orthopedist, before going gluten-free, he said I had a little

arthritis, but couldn't understand the pain in my shoulder. He

wanted to diagnosis it as Fibromyalgia, but I didn't pass the

test, you need to have several "pressure points" all over the

body. To make a long story short the pain away after going

on the gluten-free diet. I don't want to discourage you, but, soon

after I started this diet I developed pain in both knees

and the tops of both my feet. Maybe after my antibodies

come down I will become pain free :D

Guest LisaB

Jill,

I am following you around this forum, obviously we have had many of the same problems. I am just now getting past this one, first magnesium helped me A LOT, I use Mega Mag by Trace Minerals (liquid ionic magnesium with a whole host of trace minerals to help many things and all are from plant sources which make all the difference in the world) I get it at my local health food store but it can also be ordered online at a discount from places like www.totaldiscountvitamins.com

Also, I recently started making my own kefir which is like yogurt but sooooo much more than yogurt and kombucha tea (both are fermented) and now I am improving by leaps and bounds now and the best part is finally my pain (muscle and otherwise) is subsiding. I had the same problem with sleeping positions that you do, but not anymore. You can get taditional kefir grains and kombucha that reproduce if you take good care of them from people online for the cost of shipping and handling, if your interested I can provide the info you need to get some. These grains are placed in milk and once the milk is fermented, it is then digestible by even those that are lactose intolerant and is loaded with probiotics and nutrients, it helps heal the intestines and pushes infections such as candida out of the system. Kombucha is a culture that you place in black or green tea and sugar, it then ferments and is also loaded with nutrients and nutritional yeasts as well as a componant that helps the body rid itself of toxins. They work great together, and cheap as all get out, I can't believe all the $ I have spent on supplements that didn't help and now I am spending next to nothing and finally improving! Good stuff.

jaimek Enthusiast

Jill- I have had that exact same problem (stiffness in my neck/shoulders) for the past couple of weeks now. I thought it was due to a gluten accident that I had when I was away on vacation, but that was almost 2 weeks ago. I know the symptoms can last for that long, but my neck still hurts. I know this probably sounds funny, but it feels like my head is too heavy. Anyway, I was going to go to the doctors if it continued but I figured he couldn't do anything about it anyway. So strange!

Guest ~wAvE WeT sAnD~

Jaime,

My head feels sort of the same way, and it's constantly numb. My doctors probably won't figure it out...my mom thinks it's because of a vitamin deficiency I have. Oh well, the endoscopy will tell all.

Hang in there!!!

Guest Addicted2Gluten

Interesting...I was just at one of my many doctors today and mentioned to him that the muscles on the sides of my neck have been feeling very stiff for quite some time. He wasn't really sure as to why this would be, though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Boojca Apprentice

I've had the same thing...followed by some tingling in weird places...my arms, my jaw, etc.... Then I went to my chiropractor. Wow. Apparently I've been a little stressed these past two months (My son, 2 1/2 years old, was diagnosed in June with celiac disease after dropping to 23 lbs in less than 3 months....stress? Nah...haha) He cracked my neck, had me come back for two more visits. Amazing.

I'm still having 'head issues' but that's bc the allergy season this year is out of control. I don't even normally HAVE allergies, but this year apparently I do. My doctor has me on Zyrtec and Nasacort (I'm having sinus issues as well) and it's made a world of difference.

That may not be your problems, but I've discovered it's a little frightening what stress and allergies can do to your body!

Bridget

Georgia, VT USA

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.