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Stiffness And Pain


Guest ~wAvE WeT sAnD~

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Guest ~wAvE WeT sAnD~

I have such stiff muscles--especially in the neck and shoulder region. Has anyone else felt like this? Sleeping positions have also become excruciating.


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flagbabyds Collaborator

I don't know about that, it could just be you need to stretch more, maybe treat yourself to a massage

judy04 Rookie

Hi,

I used to have terrible pains and aches in my neck and shoulders.

I saw an orthopedist, before going gluten-free, he said I had a little

arthritis, but couldn't understand the pain in my shoulder. He

wanted to diagnosis it as Fibromyalgia, but I didn't pass the

test, you need to have several "pressure points" all over the

body. To make a long story short the pain away after going

on the gluten-free diet. I don't want to discourage you, but, soon

after I started this diet I developed pain in both knees

and the tops of both my feet. Maybe after my antibodies

come down I will become pain free :D

Guest LisaB

Jill,

I am following you around this forum, obviously we have had many of the same problems. I am just now getting past this one, first magnesium helped me A LOT, I use Mega Mag by Trace Minerals (liquid ionic magnesium with a whole host of trace minerals to help many things and all are from plant sources which make all the difference in the world) I get it at my local health food store but it can also be ordered online at a discount from places like www.totaldiscountvitamins.com

Also, I recently started making my own kefir which is like yogurt but sooooo much more than yogurt and kombucha tea (both are fermented) and now I am improving by leaps and bounds now and the best part is finally my pain (muscle and otherwise) is subsiding. I had the same problem with sleeping positions that you do, but not anymore. You can get taditional kefir grains and kombucha that reproduce if you take good care of them from people online for the cost of shipping and handling, if your interested I can provide the info you need to get some. These grains are placed in milk and once the milk is fermented, it is then digestible by even those that are lactose intolerant and is loaded with probiotics and nutrients, it helps heal the intestines and pushes infections such as candida out of the system. Kombucha is a culture that you place in black or green tea and sugar, it then ferments and is also loaded with nutrients and nutritional yeasts as well as a componant that helps the body rid itself of toxins. They work great together, and cheap as all get out, I can't believe all the $ I have spent on supplements that didn't help and now I am spending next to nothing and finally improving! Good stuff.

jaimek Enthusiast

Jill- I have had that exact same problem (stiffness in my neck/shoulders) for the past couple of weeks now. I thought it was due to a gluten accident that I had when I was away on vacation, but that was almost 2 weeks ago. I know the symptoms can last for that long, but my neck still hurts. I know this probably sounds funny, but it feels like my head is too heavy. Anyway, I was going to go to the doctors if it continued but I figured he couldn't do anything about it anyway. So strange!

Guest ~wAvE WeT sAnD~

Jaime,

My head feels sort of the same way, and it's constantly numb. My doctors probably won't figure it out...my mom thinks it's because of a vitamin deficiency I have. Oh well, the endoscopy will tell all.

Hang in there!!!

Guest Addicted2Gluten

Interesting...I was just at one of my many doctors today and mentioned to him that the muscles on the sides of my neck have been feeling very stiff for quite some time. He wasn't really sure as to why this would be, though.


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Boojca Apprentice

I've had the same thing...followed by some tingling in weird places...my arms, my jaw, etc.... Then I went to my chiropractor. Wow. Apparently I've been a little stressed these past two months (My son, 2 1/2 years old, was diagnosed in June with celiac disease after dropping to 23 lbs in less than 3 months....stress? Nah...haha) He cracked my neck, had me come back for two more visits. Amazing.

I'm still having 'head issues' but that's bc the allergy season this year is out of control. I don't even normally HAVE allergies, but this year apparently I do. My doctor has me on Zyrtec and Nasacort (I'm having sinus issues as well) and it's made a world of difference.

That may not be your problems, but I've discovered it's a little frightening what stress and allergies can do to your body!

Bridget

Georgia, VT USA

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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