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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The Bill Passed!
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FDA commends the passage by the House of Representatives of S. 741, a bill that includes the Food Allergen Labeling and Consumer Protection Act, as well as the Minor Use and Minor Species Animal Health Act (MUMS). Energy and Commerce Committee Chairman Joe Barton and Ranking Member John D. Dingell were instrumental in moving this bipartisan legislation forward in the House. House approval of the Senate-passed bill represents final Congressional action that clears the way for enactment of this important legislation that will help consumers identify foods that can cause severe allergic reactions and separately that will help create new incentives to develop and seek approval for treatments of diseases in animals, including zoo animals, exotic species and pets. The Agency applauds the dedication and leadership of the bill

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Thats great! Are there any estimates on when this will be enacted/ on the labels?

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Yay!

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Sibewill, I believe the bill calls for the new labeling by 2006. Don't forget, however, that the bill only requires LABELING allergens, and DEFINING gluten free. So something may still be able to hide oats or rye or barley, because they are not common allergens.

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I know it will take a while but it's a step in the right direction. I work for the FDA so I will be on the lookout for the time when they start requiring us to detain products that are not properly labeled in accordance to these new rules. One good thing that I have noticed over the years is that once a bill passes, though they may have until the year 2006 to implement it, many of the major companies will start doing it sooner than later in an effort to get a jump start on it and appear that they are abiding by the rules. It's good for publicity since this information is out there for everyone and has now been on the news (I have seen it twice this week and other friends of mine have called to tell me that they have seen it as well).

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The FDA has until 2008 to define the guidelines for gluten free and then it still remains optional for companies to include this on their labels. But this bill is a step in the right direction and we are already seeing companies moving toward better labeling--example--Kraft. And yes, the publicity is much welcomed.

DK :lol:

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    • celiac disease is psychosomatic
      If a food product contains wheat, it must be labeled by law. I have been gluten-free for 11 years and have found that this whole concept of hidden gluten (aside from cc) is really not quite true.  You have to learn how to read labels correctly to identify what is in the food you are eating.  If in any doubt, do not eat the product until further inquiry is made. Rashes happen for many different reasons but they do seem to occur more frequently in those with autoimmune or allergy problems.  Those would probably be the 2 main causes of them. It can be incredibly hard to figure out and doctors are not much better at helping.  This is why my 89 year old MIL is trying a gluten-free diet because she is having rash and itching problems that are driving her crazy. No help whatsoever from doctor-land.  They just keep feeding her prednisone and that is not a good choice for anyone, never mind an 89 year old.  It's a wonder any of us get the help we need!
    • Eating food cooked on a grill (eg, quesadillas, fish)
      I ordered mahi mahi and baked sweet potato fries off the special gluten free menu last night and had a head ache all day.  They said they cleaned before making my food but I assume it is difficult in a restaurant kitchen.
    • celiac disease is psychosomatic
      Hives can be caused by so many things but primarily, it's either allergy related or autoimmune related.  You can have autoimmune hives which can result from having one or more AI diseases.  I get hives but mine pop when it gets warm and wet......I am severely allergic to molds. They just about appear and disappear quickly, if the weather goes from wet to dry. I use Benadryl to keep them from getting too bad, when needed. I also use children's Benadryl because it works just as well as the adult formula but makes me less drowsy. You can be more susceptible to environmental allergies when you have Celiac.  Is this a problem for you and your sister? 
    • Gluten withdrawals/legs welling/bloating
      Welcome to then forum, Mona! No swelling for me but I can encourage you to read our Newbie 101 section under "Coping".  Learning how to be gluten free takes time.  Withdrawal affects some of us, but not all.  Remember this is an autoimmune disorder that is triggered by gluten (unlike MS or lupus where the trigger is unknown).  But when triggered the autoimmune response (aka "flare up") can last for days, weeks or months.  So, please give yourself time.  Try to rest and put up your feet after work.  Hopefully, others here will have good tips for your specific complaint -- swelling. Read through the forum.  Ask questions.  We are here to help.  Like you, my GI just gave me a list of gluten-free restaurants.  Really!   Take care!  You will get better!  
    • Eating food cooked on a grill (eg, quesadillas, fish)
      If you have Celiac, you would want a clean grill or piece of foil.  Pieces of flour tortilla will stick to the grill and then transfer onto your corn tortilla.  Same with grilled sandwiches.  
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