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Unidentified Food Problem?
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4 posts in this topic

Ok, something is still upsetting my stomach, I have had such a time getting my stomach straight. :( I'm still learning what I can and can't eat, but I can't identify what i could have eaten today that is bothering me. So here's what I ate and maybe someone will see something I shouldn't have eaten..... (i'm not sure I am more than just GI, I don't have the full celiac disease symptoms, but have had the IBS sym. for years)

ok Breakfast was: 1 fried egg, bacon, gluten-free toast (Energ tapicoa bread), no sugar strawberry jelly, 1 hashbrown, low sugar fruit punch, felt fine (other than grouchy from hormones!)

lunch: baked ham, canned black eye peas, fresh tomato, onion, diet dr. pepper,

got the stomach ache after this.... then I ate to pamela's cc cookies (yes, with an already upset stomach). AND my left side is hurting.

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What does the packaging on the bacon, the jam, the hashbrowns, the fruit punch, the baked ham and the peas say about ingredients? any natural flavors hiding in any of those that could be the problem? and other suspicious ingredients?

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Dear Lesliew,

You didn't say how long you have been on the diet, but I have been on

for almost 8 mos and my stomach could not tolerate what you have

listed. First of all I start breakfast with soluble fiber such as bananas,

applesauce and herb tea(gluten-free). I try to stay away from most fried foods

because I have been sick for a long time and my stomach and yours

need time to heal. In the beginning I had to stay away from tomatoes

and onions. After 6 mos. I slowly am introducing them back into my diet.

I know rice,chicken, applesauce, potatoes and mild veggies are very

boring but you have to stick to the very basics until you heal. I would also

suggest that you cook most veggies and fruit before eating them. In the begining

stay away from fruit drinks and sodas, try substituting water or herbal and

green tea without caffeine. The pain will gradually get better and one day

you will wake up pain-free and you will understand how to stay that way.

When that day comes, you will be able to introduce your favorite foods.

Tonight I had spaghetti (rice pasta) and meatballs which I haven't had

for 2 years. This diet does work, just stick to the basics... Hope you feel

better soon....

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I figured out that yesterday's stomach ache was due to aspirin in Excedrine Migraine. But, my stomach hurt today after eating a grilled chicken salad. I'm guess it was something in the ranch dressing or maybe cheese? i need to add, that at this point I think I am only gluten intolerant, not celiac, but I guess you never know for sure unless you have the test....

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Is coffee glutem free or not ?  Always wondered about this ............. got to have my coffee... I am new to this  , very new .........
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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