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- trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs7Help understand results
Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease... -
- Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Fruits & Veggies
Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine... -
- wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips0heaps of hope!
i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free...- 1
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- knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs7Help understand results
That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies... -
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Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
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By Jordan Carlson · Posted
Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone! -
By wellthatsfun · Posted
i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are). those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy! -
By knitty kitty · Posted
That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies were being made. Your daughter is not making all different kinds of antibodies, so the test results are moot. Your daughter should have the DGP IgG and TTG IgG tests done. The tests should be performed while she is still consuming gluten. Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing. Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner. Ask for genetic testing. Celiac disease is passed on from parents to children. You and all seven children should be tested for genes for Celiac disease. Your parents, your siblings and their children should be tested as well. Eating gluten is not required for genetic testing because your genes don't change. Genetic testing is not a diagnosis of Celiac disease. Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated. Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it. Hang in there. You're a good mom for pursuing this! -
By knitty kitty · Posted
@hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease. Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible. (Read the ingredients listing.) Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize. B vitamins breakdown when exposed to heat and light, and over time. So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought. (It's also very cheap.) Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized. It takes thiamine already in the body to turn Thiamine Mononitrate into an active form. I take MegaBenfotiamine by Life Extension. Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance. I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition. Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel. Especially when taken with Magnesium Threonate. Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy. I like NeuroMag by Life Extension. It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier. My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily. Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise. But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.
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